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In a message dated 2/3/02 12:55:52 PM Pacific Standard Time,

susuw@... writes:

<< Call your Rheumy, both of you and let them know. Please don't mess around

with your throat.

>>

, I will tomorrow, looks like an ear infection is coming now. LOL Must

be a infection.

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and Sharon, PLEASE, PLEASE, PLEASE, PLEASE, do not mess around GO TO YOUR REHUMY AND THE ENT RIGHT AWAY. CYRUS RP STARTED IN HIS THROAT THE SAME WAY LIKE A BAD COLD ALMOST LIKE WHOOPING COUGH AND TROUBLE BREATHING LIKE ALLERGIES AND CONTINUED UNTIL HIS AIRWAY WAS CLOSED THE SIZE OF A STRAW BEFORE WE EVEN KNEW HE HAD RP PLEASE I URGE YOU TO GO TO THE RUMATALGIST RIGHT AWAY. I WILL WORRY ABOUT YOU UNTIL I KNOW YOU HAVE SEEN THE DOCTORS IF YOU NEED TO TALK TO SOMEONE DIRECTLY PLEASE CALL ME COLLECT AT MY CELL PHONE NUMBER

LOVE GAIL

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Oh Gail, you are such a sweetheart and I have REALLY missed you. I promise

that I will go to a doctor tomorrow, which ever one can get me in on a

Monday. LOL My voice has come back most of the way, but my inner ear is in

great pain. Think it must be an ear infection,but will not take any chances

and will go to the dr tomorrow for sure. HONEST!! You are now part of the

worriers club (me and Glenda) lOL

Thank you for caring so. I sure hope Cyrus is doing okay. I never did hear

the update. I have only been getting half my mail, hope I didn't miss yours.

Let me know how he is doing.

Love, hugs, and prayers

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and Sharon,

I also have this and my Rheumy will either send me to my ENT or give me a

dose pack of Pred.

Call your Rheumy, both of you and let them know. Please don't mess around

with your throat.

>>>>>>>>>>>>>>>>>>>>>>

I have had hardly any voice for a few

> days, but don't feel

> sick. Any input? I have been lowering my pred and

> was wondering if this

> was maybe a flare.

>

>

I second this question! I have been having lots of

coughing and hoarseness again, but no other signs of

illness.

Sharon

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I didn;t mean to yell at you , but I know how important it is for you to be checked out with the problems RP can cause. I want to help you to get a jump on this disease with any information I can share with you BECAUSE I REALLY CARE for ALL the MEMBERS of this fantastic FAMILY WE HAVE HERE. Keep me posted on your condition.

Love Gail

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Gail i know exactly what you mean, this is what happened to me. I knew i was sick, but i think by me just being 24 thinking oh this rp will get better, it's just like asthsma-spelling. This is exactly what my airway did to me and i ended up in the hospital for 2 months. Now i have a Trach and a left main bronchial stent. The more the area stays inflammed the more dammage and scar tissue is building up. Right now my Trach is staying put, because of the scar tissue that is around my vocal cords.

Love

Re: hoarseness

and Sharon, PLEASE, PLEASE, PLEASE, PLEASE, do not mess around GO TO YOUR REHUMY AND THE ENT RIGHT AWAY. CYRUS RP STARTED IN HIS THROAT THE SAME WAY LIKE A BAD COLD ALMOST LIKE WHOOPING COUGH AND TROUBLE BREATHING LIKE ALLERGIES AND CONTINUED UNTIL HIS AIRWAY WAS CLOSED THE SIZE OF A STRAW BEFORE WE EVEN KNEW HE HAD RP PLEASE I URGE YOU TO GO TO THE RUMATALGIST RIGHT AWAY. I WILL WORRY ABOUT YOU UNTIL I KNOW YOU HAVE SEEN THE DOCTORS IF YOU NEED TO TALK TO SOMEONE DIRECTLY PLEASE CALL ME COLLECT AT MY CELL PHONE NUMBER LOVE GAIL DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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In a message dated 2/4/02 4:37:19 PM Pacific Standard Time, grfm@...

writes:

<< I didn;t mean to yell at you , >>

Oh Gail, you can YELL at me any ol' time. LOL I know you are concerned for

all of us. Just as we are concerned for you and Cyrus. I'm just so glad to

see a post from you. My throat is much better, but my inner ear is giving me

fits. Think is a sinus thing that has backed up to my ear. Am waiting for a

call back from my dr. I'm doing much better though.

Thank you for all of your kind thoughts and prayers. I love ya bunches.

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