Re: Autistic recovery and return to a regular diet

[Guest guest]

Hi! This is a great question!! I am waiting to see what the

moderators think.

Donna, mom to Norman, 6 yrs., ASD, SCD 21 mos.

[Guest guest]

>

> I have two autistic boys and was wondering if once they show signs of

> improvement, what is the timeline to begin adding forbidden foods back

> into their diet. In the book, it mentions Crohn's and ulcerative

> colitis and that you can give them forbidden foods after all symptoms

> disappear. I'm not expecting the autism to simply disappear, but will

> they have to be on this diet for life? I'm hoping that getting rid of

> the bad bacteria and introducing the probiotics will make it possible

> to introduce rice and potatoes sometime down the road.

Normally it's one year after the last sympom has disappeared. This applies to

gastric

diseases. I don't know if yoy would have to wait until losing the autism

diagnosis. Most

people opt not to return to rice and potatoes, cetrainly not on a regular basis.

Carol F.

SCD 6 years, celiac

[Guest guest]

--- I thought the whole point of doing the diet was so a person could

return to a normal diet in the book BVC it does state many people are

able to return to a normal diet- DOes any one know what NOrmal diet

she is refering to? I can understand being well educated on food

after all this and not having high refined sugars and flours be ever

added back in. But at some point there has to be some happy medium

even if it takes 2 or 3 years from last sympyom. I love the diet it

has saved my children my ADHD boy is doing the best he ever has. My

celiac boy hass gained 2 lbs in 2 weeks the most he has in 1 year.

But i do this for the recovery of my children. I think alot of moms

out there are banking on recovery not a lifestyle of SCD.

In pecanbread , " carolfrilegh " wrote:

>

>

> >

> > I have two autistic boys and was wondering if once they show

signs of

> > improvement, what is the timeline to begin adding forbidden foods

back

> > into their diet. In the book, it mentions Crohn's and ulcerative

> > colitis and that you can give them forbidden foods after all

symptoms

> > disappear. I'm not expecting the autism to simply disappear, but

will

> > they have to be on this diet for life? I'm hoping that getting

rid of

> > the bad bacteria and introducing the probiotics will make it

possible

> > to introduce rice and potatoes sometime down the road.

>

> Normally it's one year after the last sympom has disappeared. This

applies to gastric

> diseases. I don't know if yoy would have to wait until losing the

autism diagnosis. Most

> people opt not to return to rice and potatoes, cetrainly not on a

regular basis.

>

> Carol F.

> SCD 6 years, celiac

>

[Guest guest]

>

> --- I thought the whole point of doing the diet was so a person could

> return to a normal diet in the book BVC it does state many people are

> able to return to a normal diet- DOes any one know what NOrmal diet

> she is refering to? I can understand being well educated on food

> after all this and not having high refined sugars and flours be ever

> added back in. But at some point there has to be some happy medium

> even if it takes 2 or 3 years from last sympyom. I love the diet it

> has saved my children my ADHD boy is doing the best he ever has. My

> celiac boy hass gained 2 lbs in 2 weeks the most he has in 1 year.

> But i do this for the recovery of my children. I think alot of moms

> out there are banking on recovery not a lifestyle of SCD.

>

>

Elaine does say what you have on page 70 edition 10 of BTVC. I would imagine

parents

would be so grateful to have their children healed or greatly recovered from

autism that if

required they would remain SCD however I have heard a number of stories of

returns to

the Standard American Diet.

Note that dieticians and nutritionists advise the general population now, that

refined

carbohydrates are not the healthiest choices.

My long adherance to SCD is not for the purpose of once again being able to eat

French

fries or even bagels again. This diet has been so beneficial to my health and

fitness when

you consider my age anand the challenges I've had in the past six years. My

doctor,

continjues to praise its effects but hasn't taken the time to read the book. I

am going to

give her a copy of BTVC today.

Carol F.

SCD 6 years, celiac, MCS, latex Allergy.

[Guest guest]

Hi there,

This is a really difficult question to answer. First of all, what would

you classify as autistic recovery? It is all relative, depending on

where you are coming from. When could you say that your child is

recovered enough? There is no cure for autism, the diet helps but it

will not reverse damage that is already done. I personally have only

ever judged the diet for its effect on bowel function. The improvements

in behaviour and development were a wonderful added bonus. After 3

years on the diet, we are still on it. My daughter's bowel function is

normal. We occasionally let her have an illegal food for a treat (e.g.

a lollipop at a birthday party, or dark chocolate at christmas). She

seems to be able to tolerate these infractions. Otherwise, we eat all

SCD at home. When we go somewhere, we usually bring some food with us.

I would never go back to eating the way we used to, but I too have

toyed with the idea of adding potatoes. So far I haven't because it

would not make things any easier or more convenient for me and could

possibly harm her. She is not starch addicted anymore and I would hate

to open the door to that can of worms again.

It is up to the individual on when and if to add in illegals and judge

whether it is tolerated or not. I think Elaine's book says one year

after the last symptoms have disappeared. Perhaps the moderators have a

better answer for you.

Best wishes,

daughter 7 ASD, SCD 3 years

On Aug 10, 2006, at 7:21 PM, pecanbread wrote:

> Autistic recovery and return to a regular diet

> Posted by: " mnjnmom " nbanilla5@...   mnjnmom

>

> Thu Aug 10, 2006 1:20 pm (PST)

> I have two autistic boys and was wondering if once they show signs of

> improvement, what is the timeline to begin adding forbidden foods back

> into their diet. In the book, it mentions Crohn's and ulcerative

> colitis and that you can give them forbidden foods after all symptoms

> disappear. I'm not expecting the autism to simply disappear, but will

> they have to be on this diet for life? I'm hoping that getting rid of

> the bad bacteria and introducing the probiotics will make it possible

> to introduce rice and potatoes sometime down the road.

>

[Guest guest]

" I have two autistic boys and was wondering if once they show signs of

improvement, what is the timeline to begin adding forbidden foods back

into their diet...

I'm hoping that getting rid of the bad bacteria and introducing the

probiotics will make it possible to introduce rice and potatoes

sometime down the road. "

Well, I think that this is possible. I do not know how likely it is.

I think that it would depend on the underlying medical problems that

exist.

It's possible that if a person does not produce the appropriate

enzymes for breaking down starch, then that person may not be able to

go back to a diet that includes starch because consuming it would

start the vicious cycle of undigested food all over again.

At this point in time, I know of no way of determining who will

eventually be able to go off the diet and who will need to continue to

follow it.

As for the time table of attempting to introduce non-SCD foods, it's

one year AFTER the last symptom subsides.

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

In returning to a regular diet are there SCD illegal foods that

are easier on the digestive system to start with? Its only been

about 2 1/2 months on SCD for me now but I seem to be functioning

'normal' for the first time in years. I am curious as to what to

try when I feel I am ready.

Vito

IBS-D since '96, SCD 2 1/2 months

> As for the time table of attempting to introduce non-SCD foods, it's

> one year AFTER the last symptom subsides.

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

[Guest guest]

" In returning to a regular diet are there SCD illegal foods that

are easier on the digestive system to start with? Its only been

about 2 1/2 months on SCD for me now but I seem to be functioning

'normal' for the first time in years. I am curious as to what to

try when I feel I am ready. "

Vito,

I think that 2 1/2 months is probably not enough time to undo the

damage that had occured. But in any case, you shouldn't be

considering adding back non-allowed foods for at least another year.

And I don't think anyone knows which non-allowed foods are more easily

tolerated than others.

It seems that disaccharides would be easier than polysaccharides, but

honestly I don't know.

I think it's just a matter of personal tolerance.

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

>

> > Autistic recovery and return to a regular diet

> > Posted by: " mnjnmom " nbanilla5@...   mnjnmom

> >

> > Thu Aug 10, 2006 1:20 pm (PST)

> > I have two autistic boys and was wondering if once they show

signs of

> > improvement, what is the timeline to begin adding forbidden

foods back

> > into their diet. In the book, it mentions Crohn's and ulcerative

> > colitis and that you can give them forbidden foods after all

symptoms

> > disappear. I'm not expecting the autism to simply disappear, but

will

> > they have to be on this diet for life? I'm hoping that getting

rid of

> > the bad bacteria and introducing the probiotics will make it

possible

> > to introduce rice and potatoes sometime down the road.

> >

>

>

>

[Guest guest]

Thank-you for your interruption and perspective. This list is for the

mutual support of people managing various conditions with SCD. Please

debate elsewhere. : )

Best wishes,

karen

daughter 7 ASD, SCD 3 years

On Aug 11, 2006, at 4:14 PM, pecanbread wrote:

> 4c.

> Re: Autistic recovery and return to a regular diet

> Posted by: " jfogarty75 " jfogarty75@...   jfogarty75

>

> Fri Aug 11, 2006 1:14 pm (PST)

>

> >

> > There is no cure for autism -That is very debateable to parents

> who are doing biomedical treatment with this diet and have in fact

> recovered a child and have had the diagnoses removed!!!!!!!