Re: suffering from RP

[Guest guest]

Dear , I'm sorry to hear that you also have RP, but it is

controllable. I've had it for 8 years now and though its up and down I am

doing OK. I'm on methotrexate and have been for a long time. I am currently

on 20mgm and it helps alot . I also take Plaquenil, and Prednisone for the

RP. It took 2-3months before I started feeling better from the methotrexate

and the doctor was able to lower my prednisone. Unfortunately it usually

takes 2-3 months before it really kicks in. I hope it helps you as much as

it has helped me! If you have any questions don't hesitate to ask. I'll pray

for you and hope you feel better soon. Sue Park

suffering from RP

>

> Some of you have e-mailed my father, Bob yesterday when he found this

> support group and he couldn't have found it at a better time. I have been

> suffering with this disease since November. I finally have been correctlt

> diagnosed after 3 surguries to my ear, where it initially started. I have

> been on Predisone fro 2 months, am up to 60 mg a day and have been on

> Methotrexate fro about a month, however now I am up to 6, 2.5 mg once a

> week. Still I see no signs of improvement. My pain is still very severe.

> The disease is now in my left ear, both of my feet, and they have found a

> spot in my ling and are doing a CT needle biopsy next Monday.

> I am 30 years old and have thought that I am doing ok with everything. I

am

> hopeful and very thankful that I have a wonderful family that has been so

> supportive. But I am very thankful that God has seen fit that I have

found

> someone, anyone, many that can understand what I am going through and

maybe

> give me some answers that no one but a RP suffer can have. I am not flare

> free-and the pain, it is so overwhelming. I don't know when or if it will

> go away. I have just been through so much and i don't know what lies

ahead.

> How long does it take the med to work? Is there anything I can do to

> prevent a flare up? Am I going to be able to lead a normal life? Will I

be

> able to work again? I have so many qustions, but wnough for the first

> e-mail. I guess I opened up enough. Thanks for your time-

> Mchelle in Shreveport, Louisiana suffering from RP

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

,

I hope you are seeing a rhyemtoligist. They seem to know what Rp is about the best.

If you have been on 60mg of Predisone and it still isnt working you will probably have to go up higher.

I never have had to go higher then that but Im sure other people in this group has and they can tell you there story.

Please believe me, as soon as the meds start working the flares will go away. It just takes time, and as some people always say in here, you have to take your meds on time and the same time everyday.

It really helps to find a Dr that knows all about this RP.

Just hang in there and it will get better. I really think if your in that much pain you should tell the dr you need to be on higher predisone.

Im not a Dr but thats what I think. Maybe someone else in the group can give you more Imput.

Will say prayers you will feel better soon.

Carol Applin (Minnesota)

[Guest guest]

In a message dated 4/16/02 9:14:36 PM Pacific Daylight Time,

Kenocarol@... writes:

<<

If you have been on 60mg of Predisone and it still isnt working you will

probably have to go up higher. >>

, I was started on 80mg of pred and only had one ear flaring. I

think we are all different. I now many have been on much higher that that.

Please check with your doctor.

hugs

[Guest guest]

Hello !

I am sorry that you are suffering so much. HANG IN THERE!

I am newly diagnosed, also. I was diagnosed in mid-December and have

been on Prednisone since then, most of the time at 60 mgs. I started

Methotrexate about a month and a half into the diagnosis and have

started to see pain relief in the last month and now am starting to

see some of the fatigue lighten.

It does take time, and I still have constant pain, but the level is

so much less than it was, it's " do-able " . I am 38 years old and have

always felt healthy, so this was quite a change in my life. It hit

me like a mack truck and I haven't been the same since 12/10/01.

Things that I did that helped were to rely on this group, to tell

family and friends how I was really doing, and to use a wheel chair

when I went shopping, or traveling, rather than pushing myself to do

something that exhausted me. In other words, I tried to not be too

proud to use tools to help me get by when it was at it's worst.

Patience is hard, especially when I started doubting that the meds

were going to work.

They haven't completely gotten rid of the symptoms, but they have

helped enough that I can manage now.

Take care of yourself and use this group to ask all the questions you

have, it's very isolating to not have people who understand what we

are going through.

Take care and welcome to our group!

M

[Guest guest]

, bless your heart! I have had RP since Jan. 2000 or should I say, I was diagnosed then. It is a frightening thing but there are things for us to take that can help, we just sort of do a trial and error with them until we find what works best for us.

You are right, this is a terrific group and you could have found none better. Don't ever hesitate to contact any of us at any time.

Love and Prayers,

Lucy in North Carolina, from Alabama originally,

L10@...

-- suffering from RP

Some of you have e-mailed my father, Bob yesterday when he found this support group and he couldn't have found it at a better time. I have been suffering with this disease since November. I finally have been correctlt diagnosed after 3 surguries to my ear, where it initially started. I have been on Predisone fro 2 months, am up to 60 mg a day and have been on Methotrexate fro about a month, however now I am up to 6, 2.5 mg once a week. Still I see no signs of improvement. My pain is still very severe. The disease is now in my left ear, both of my feet, and they have found a spot in my ling and are doing a CT needle biopsy next Monday.I am 30 years old and have thought that I am doing ok with everything. I am hopeful and very thankful that I have a wonderful family that has been so supportive. But I am very thankful that God has seen fit that I have found someone, anyone, many that can understand what I am going through and maybe give me some answers that no one but a RP suffer can have. I am not flare free-and the pain, it is so overwhelming. I don't know when or if it will go away. I have just been through so much and i don't know what lies ahead. How long does it take the med to work? Is there anything I can do to prevent a flare up? Am I going to be able to lead a normal life? Will I be able to work again? I have so many qustions, but wnough for the first e-mail. I guess I opened up enough. Thanks for your time-Mchelle in Shreveport, Louisiana suffering from RP_________________________________________________________________Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com

[Guest guest]

I was told by my MD that we hope that " it will burn itself out " . So

hopefully these early flares will come down..

Where is the pain? Head? Outer ears? Inner?

You may want to check your Dr. There are only a few with regular RP

patients. Dr. D. Trentam at Beth-Israel in Boston is the best. He put me

on Plaquenil when the pred, mtx would not work. Had some effect for a while.

Are you working?

scott

> suffering from RP

>

>

>

>Some of you have e-mailed my father, Bob yesterday when he found this

>support group and he couldn't have found it at a better time. I have been

>suffering with this disease since November. I finally have been correctlt

>diagnosed after 3 surguries to my ear, where it initially started. I have

>been on Predisone fro 2 months, am up to 60 mg a day and have been on

>Methotrexate fro about a month, however now I am up to 6, 2.5 mg once a

>week. Still I see no signs of improvement. My pain is still very

>severe.

>The disease is now in my left ear, both of my feet, and they have found a

>spot in my ling and are doing a CT needle biopsy next Monday.

>I am 30 years old and have thought that I am doing ok with

>everything. I am

>hopeful and very thankful that I have a wonderful family that has been so

>supportive. But I am very thankful that God has seen fit that I

>have found

>someone, anyone, many that can understand what I am going through

>and maybe

>give me some answers that no one but a RP suffer can have. I am not flare

>free-and the pain, it is so overwhelming. I don't know when or if it will

>go away. I have just been through so much and i don't know what

>lies ahead.

> How long does it take the med to work? Is there anything I can do to

>prevent a flare up? Am I going to be able to lead a normal life?

>Will I be

>able to work again? I have so many qustions, but wnough for the first

>e-mail. I guess I opened up enough. Thanks for your time-

>Mchelle in Shreveport, Louisiana suffering from RP

>

>_________________________________________________________________

>Join the world’s largest e-mail service with MSN Hotmail.

>http://www.hotmail.com

>

>

>

>DISCLAIMER!!

>WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT

>IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR

>DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A

>SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER

>EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF

>US. THANK YOU

>

>

[Guest guest]

you are newing diagnosed too? I am really having a hard time with

it. It really scares me to death, I used to be so full of life and

now I am left wondering how to get a hold of my life. I am in

constant pain, I wake up crying almost every night. Thank God for my

boyfriend who has tried to make the adjustment easier on me. I just

don't know when the med are going to start working. It would be so

much easier if someone could tell me why, when, how, and what. I

used to be such a go-getter, I mean I took charge of everything. It

is really hard for me to adjust to this lifestyle. I am currently

not working and it is driving me craaaaaazy. I can't drive

andywhere, I just simply can not so the things that I used to do. I

am scheduled to go to Mayo may 30, I hope that they can help. Do

you know of any books or literature about this disease? Anything

that would help me understand. My flares have been ongoing since

November, I have had it in both ears, my feet the past few months and

now they think it is in my left lung. I am scheduled for a CT needlt

biopsy on MOnday. It just doesn't seem to want to let go of me. Any

advice?

[Guest guest]

Hi

I am glad you found this group. My name is and i am 28yrs, i live in Ft Worth,Tx. I became sick in Oct 97, i was 23 at the time. Jan 98 i was dx with RP officially. I was immediately treated with a low dosago of Pred. My symptoms worsened as the months passed. In May 98, I started have the breathing trouble. I was in and out of the Eme Room. I was in pain. I had and uncontrollable cough. My Ribs were tender to the touch,(my upper chest area). I felt like i was dying. I had a Broncoscopy done, and they told me there was damage but no solution was given, so i took that as i would be fine, i didn't know what questions to ask. I think i was in denial about being sick. I trying not to think about it and i was hoping it would go into remission and all this would be over.

Well Jan 99 i left work sick, i went to the hospital that night, My airway, was gradually closing. I was transfered from one hospital to a medical school. Zale Lipshy in Dallas, It's a part of UT SouthWestern. They saved my life. I went into the hospital on Jan 13 and released on March 13. I was put in a Medically induced sleep for 2weeks. During this time a Cardio surgeon had other doctor meet him in another city and talk about my case, because he had never seen an airway a destroyed as mine. My Trach had narrowed because of the flares, the damage. My left main Bronch had to be dilated because it had narrowed and a stent was put in the area that had been damaged. I still have my Tracheostomy. I am fine now. Since i stayed with the doctors at the medical school, my disease has been under control and stablized. I am taking Methotrexate 22.5 injection and 12mgs Pred. I am dropping one mg a month of the Pred. I am hoping this time i can get off of the Pred and the Metho eventually.

I know exactly what emotions you are feeling. I know you are at the beginning of the road, but you can live with RP. I am living proof. My doctor to this day is amazed. He saw me lifeless in the hospital on a venilator. Do not let what you read about this disease have you believing that your life is over, It isn't. Now is the time to be strong. I know it hurts, there are moments now I sit and just cry, because i do get angry, because i don't know why and you think back in your life to where and what could have possible caused this and you come up with nothing each time. It's the not knowing is what hurts the most. You will be fine. I could tell you more but i have said a lot already.

About work, I have been off of work since the day i left sick. That was 3 yrs ago. Let your body rest. I was always on the go, i always had something to do. I could go out at night and wake up 3 hrs later for work. It wouldn't bother me. I never talked about my problems. I think stress was my main contributer to this RP, I don't know for sure. I work for American Airlines. They're going to give me up to 5 years to get better. I have been off 3yrs, i am getting my SSD. My husband now, but boyfriend right when all this started is still with me, helping me stay strong and fight this disease. I have great family support. My doctors said that was one of the reason i did so well while in the hospital was because of my family support. you are going to be okay, i don't know if you have a faith that you believe in, I put all my faith and trust i God. You will be okay. I am at home all day you are welcomed to call me. Or just email me back with more questions if you have any. I hope i have made sense. I have so many thoughts and memories running through my mind. You take care

Re: suffering from RP

you are newing diagnosed too? I am really having a hard time with it. It really scares me to death, I used to be so full of life and now I am left wondering how to get a hold of my life. I am in constant pain, I wake up crying almost every night. Thank God for my boyfriend who has tried to make the adjustment easier on me. I just don't know when the med are going to start working. It would be so much easier if someone could tell me why, when, how, and what. I used to be such a go-getter, I mean I took charge of everything. It is really hard for me to adjust to this lifestyle. I am currently not working and it is driving me craaaaaazy. I can't drive andywhere, I just simply can not so the things that I used to do. I am scheduled to go to Mayo may 30, I hope that they can help. Do you know of any books or literature about this disease? Anything that would help me understand. My flares have been ongoing since November, I have had it in both ears, my feet the past few months and now they think it is in my left lung. I am scheduled for a CT needlt biopsy on MOnday. It just doesn't seem to want to let go of me. Any advice? DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

I'm sorry you're in pain, but crying is good, so keep doing it! I

too was very active, felt really good, and then overnight, my body

has become " sick, tired and painful " . It is getting better, but it

took about four months on the current meds., which was hard for me.

I'm used to having medicine take care of something if I wasn't

feeling well, within a day or so. I wasn't used to not feeling well,

or feeling ongoing pain. This disease has taught me a lot. It's not

the way that I would choose to learn, if I had the choice.

I have learned that I need to ask for help, rely on tools to help me

get through what I need to get through (using a wheelchair to go

shopping, using a cane at times when I need to, etc...), be patient

and try to focus on what my body needs right now.

Hang in there, . I hear the desperation and frustration in

your posts, that is similar to how I felt and still feel at times. I

can tell you that it will get better, you just have to have the meds

be able to " take hold " of the condition a bit. I have not had

a " pain free " day since December, but my pain has gone from 7 - 10's

on a 10 scale, to usually being a 2 - 4 at the most. My energy is

also better than it was.

Take care and keep posting! I'm glad you have a supportive

boyfriend. It's important that you work against becoming isolated

with your feelings.

[Guest guest]

, I know how scarey this has to be for you. Please just know that we

are all here for you. It sounds like you have great support at home. Know

that you will be in my thoughts and prayers on Monday and Please let us know

what you find out.

It is so hard to have to wait for the meds to kick in. But when they do and

are the right ones, your life will be much better.

I'm glad you are going to Mayo. Hope they can get you on the right road.

hugs

claudia

[Guest guest]

--- michelle12371106 wrote:

> you are newing diagnosed too? I am really having a

> hard time with

> it. It really scares me to death, I used to be so

> full of life and

> now I am left wondering how to get a hold of my

> life. I am in

> constant pain, I wake up crying almost every night

, my name is Liz, I have been on vacation, so

I am not up to date on things. However, your letter

rings a bell with all of us, as we can all remember

the agonies that we went through. It may not sound

correct, but the best news is that you have got a

diagnosis. I struggled around for years, with very

poor breathing, in and out of hospital, pain etc, I

thought it was just bad asthma, plus general

deterioration!! However, since I was diagnosed (3 or

4 years ago) I have been so much better. I'm not

perfect, but I am not in constant pain, only

occasional!!!! and my breathing is so much better I

feel like a new person.

The medications take a while to kick in, and sometimes

have side effects, although not always. Hang in

there, try what your rheumatologist suggests, and

listen to your body and report back. The Mayo is one

of the best places, I should think. Online and this

group are probably the best sources of information;

this group has been a life saver for me, just being

able to communicate with people who understand what

you are going through makes a difference. I was

convinced I had not long to live because I felt so

unwell all the time. Some of my friends (they tell me

now!) thought I was becoming a neurotic hypochondriac!

Now I fully expect to live until at least ninety, LOL.

I am almost fiftynine, I still enjoy my job (I work in

Saudi Arabia, and travel with a Saudi family) and hope

to go on doing it. I have recently spent a month

travelling around UK, unaccompanied, and had no

problems. I could not have done that 5 years ago. So

it CAN get a lot better.

It is very depressing when you are diagnosed with a

chronic illness, so tell your doctors if you are

feeling depressed, crying a lot, not sleeping etc,

thinking about death (not necessarily your own!) If

they suggest an anti depressant try it, being

depressed is not a sign of weakness. It is a chemical

imbalance like lots of other health problems.

I now take 17.5 mg methotrexate, weekly, folic acid,

200mg plaquenil, 10mg of prednisone daily (this can go

up and down, but I havent been over 10mg for a couple

of years, whereas initially I was on high doses

i.e.100mg daily (which can send you a little manic!) I

also take loads of other meds for other stuff, e.g. I

also have type 2 diabetes, Raynauds, an underactive

thyroid, high cholesterol etc etc but if I take my

meds regularly, eat right, exercise (gently) regularly

I am pretty much all right. SO HANG IN THERE - YOU

ARE NOT ALONE. Feel free to vent to us when

necessary, we understand which your family and friends

may not.

Please excuse the length of this, I do tend to ramble

on. Take care, love Liz

__________________________________________________

[Guest guest]

--- michelle12371106 wrote:

> you are newing diagnosed too? I am really having a

> hard time with

> it. It really scares me to death, I used to be so

> full of life and

> now I am left wondering how to get a hold of my

> life. I am in

> constant pain, I wake up crying almost every night

, my name is Liz, I have been on vacation, so

I am not up to date on things. However, your letter

rings a bell with all of us, as we can all remember

the agonies that we went through. It may not sound

correct, but the best news is that you have got a

diagnosis. I struggled around for years, with very

poor breathing, in and out of hospital, pain etc, I

thought it was just bad asthma, plus general

deterioration!! However, since I was diagnosed (3 or

4 years ago) I have been so much better. I'm not

perfect, but I am not in constant pain, only

occasional!!!! and my breathing is so much better I

feel like a new person.

The medications take a while to kick in, and sometimes

have side effects, although not always. Hang in

there, try what your rheumatologist suggests, and

listen to your body and report back. The Mayo is one

of the best places, I should think. Online and this

group are probably the best sources of information;

this group has been a life saver for me, just being

able to communicate with people who understand what

you are going through makes a difference. I was

convinced I had not long to live because I felt so

unwell all the time. Some of my friends (they tell me

now!) thought I was becoming a neurotic hypochondriac!

Now I fully expect to live until at least ninety, LOL.

I am almost fiftynine, I still enjoy my job (I work in

Saudi Arabia, and travel with a Saudi family) and hope

to go on doing it. I have recently spent a month

travelling around UK, unaccompanied, and had no

problems. I could not have done that 5 years ago. So

it CAN get a lot better.

It is very depressing when you are diagnosed with a

chronic illness, so tell your doctors if you are

feeling depressed, crying a lot, not sleeping etc,

thinking about death (not necessarily your own!) If

they suggest an anti depressant try it, being

depressed is not a sign of weakness. It is a chemical

imbalance like lots of other health problems.

I now take 17.5 mg methotrexate, weekly, folic acid,

200mg plaquenil, 10mg of prednisone daily (this can go

up and down, but I havent been over 10mg for a couple

of years, whereas initially I was on high doses

i.e.100mg daily (which can send you a little manic!) I

also take loads of other meds for other stuff, e.g. I

also have type 2 diabetes, Raynauds, an underactive

thyroid, high cholesterol etc etc but if I take my

meds regularly, eat right, exercise (gently) regularly

I am pretty much all right. SO HANG IN THERE - YOU

ARE NOT ALONE. Feel free to vent to us when

necessary, we understand which your family and friends

may not.

Please excuse the length of this, I do tend to ramble

on. Take care, love Liz

__________________________________________________

[Guest guest]

Thanks -I really have been trying to deal with it lately. I

have my CT lung biopsy monday, i am worried about that. Also, have

you heard pf anyone with feet problem? My feet are really giving me

a time-they are so swollen and hurt something terrible any advice???

As for the mayo-i hope my r & a has these flares under control by may

30. Right now my ear and feet are really getting the best of me.

are you doing ok? Are is anyone really ever ok with this disease?

Talk to soon-

[Guest guest]

In a message dated 4/20/02 7:01:59 AM Pacific Daylight Time,

mrlchris@... writes:

<< Are is anyone really ever ok with this disease?

Talk to soon- >>

, yes, the majority of us are okay with the disease. Like I have

said before, we are all different, so it effects us all different. I think

once you are on the right meds you will see a big improvement. The stress

about Monday probably isn't helping you much. I know how worried you must

be. Just know that you are in all of our thoughts and prayers and we will be

there with you in spirit.

Once you get the good news from that, then I think you will feel much better.

I just posted to Sharyn about my feet. (so I won't repeat again) If you

have any questions, feel free to post me privately.

I'm glad you found us and I just know you will get through all of this and

hopefully start to feel better soon.

hugs

[Guest guest]

-

Thanks for the words of encouragement anlthough they seem far off for

me. I am having such a horrible time with the pain. I know htat the

flares are not under control but I am also having other problems. MY

feet for one they are so swollen and it hurts to walk. I don't know

if this is a side effect of the methro or if it is a part of the

disease.

I think that I am ok with handling it, although it has only been a

few months that I was for sure diagnosed. Iam scared, as I am sure

you are or were. My life has just changed so much. I plan on using

this support group although I am not a wize at this computer. I have

been having some problems with it. So if you don't hear from me it

is through no fault but my own. Thanks for writing talk to you soon.

Take care-michelle

-- In Rpolychondritis@y..., Cobb <lizwizz2000@y...> wrote:

>

> --- michelle12371106 <mrlchris@h...> wrote:

> > you are newing diagnosed too? I am really having a

> > hard time with

> > it. It really scares me to death, I used to be so

> > full of life and

> > now I am left wondering how to get a hold of my

> > life. I am in

> > constant pain, I wake up crying almost every night

>

> , my name is Liz, I have been on vacation, so

> I am not up to date on things. However, your letter

> rings a bell with all of us, as we can all remember

> the agonies that we went through. It may not sound

> correct, but the best news is that you have got a

> diagnosis. I struggled around for years, with very

> poor breathing, in and out of hospital, pain etc, I

> thought it was just bad asthma, plus general

> deterioration!! However, since I was diagnosed (3 or

> 4 years ago) I have been so much better. I'm not

> perfect, but I am not in constant pain, only

> occasional!!!! and my breathing is so much better I

> feel like a new person.

>

> The medications take a while to kick in, and sometimes

> have side effects, although not always. Hang in

> there, try what your rheumatologist suggests, and

> listen to your body and report back. The Mayo is one

> of the best places, I should think. Online and this

> group are probably the best sources of information;

> this group has been a life saver for me, just being

> able to communicate with people who understand what

> you are going through makes a difference. I was

> convinced I had not long to live because I felt so

> unwell all the time. Some of my friends (they tell me

> now!) thought I was becoming a neurotic hypochondriac!

> Now I fully expect to live until at least ninety, LOL.

> I am almost fiftynine, I still enjoy my job (I work in

> Saudi Arabia, and travel with a Saudi family) and hope

> to go on doing it. I have recently spent a month

> travelling around UK, unaccompanied, and had no

> problems. I could not have done that 5 years ago. So

> it CAN get a lot better.

>

> It is very depressing when you are diagnosed with a

> chronic illness, so tell your doctors if you are

> feeling depressed, crying a lot, not sleeping etc,

> thinking about death (not necessarily your own!) If

> they suggest an anti depressant try it, being

> depressed is not a sign of weakness. It is a chemical

> imbalance like lots of other health problems.

>

> I now take 17.5 mg methotrexate, weekly, folic acid,

> 200mg plaquenil, 10mg of prednisone daily (this can go

> up and down, but I havent been over 10mg for a couple

> of years, whereas initially I was on high doses

> i.e.100mg daily (which can send you a little manic!) I

> also take loads of other meds for other stuff, e.g. I

> also have type 2 diabetes, Raynauds, an underactive

> thyroid, high cholesterol etc etc but if I take my

> meds regularly, eat right, exercise (gently) regularly

> I am pretty much all right. SO HANG IN THERE - YOU

> ARE NOT ALONE. Feel free to vent to us when

> necessary, we understand which your family and friends

> may not.

>

> Please excuse the length of this, I do tend to ramble

> on. Take care, love Liz

>

> __________________________________________________

>

[Guest guest]

In a message dated 4/20/02 7:28:14 AM Pacific Daylight Time,

mrlchris@... writes:

<< I plan on using

this support group although I am not a wize at this computer. I have

been having some problems with it. So if you don't hear from >>

, Hey, I think i'm the #1 dummy on the computer. Just ask Roy. LOL

I have problems with it daily. Don't blame yourself., its' more fun to

blame the computer. lOL

hugs