CT Scan

[Guest guest]

Hi everyone,

I had posted a few messages before in re: my son Gavin. He was

diagnosed with Plagiocephaly and was treated, but unfortunately he

reverted significantly. I will be taking him to Boston's Childrens

Hospital soon. I just wanted to update those who gave me advice. My

son was measured and now has a 18mm difference, after wearing the

helmet for 16 weeks. Boston thinks he was misdiagnosed, he will be

getting a CT scan next week, I hope everything is okay. Does anyone

know what they do for children who have reverted? I cannot find any

research on children who have. If anyone knows of any sites that mey

help, please let me know. I am still so worried.

Thanks,

Lindsey

[Guest guest]

I just wanted to wish you and your son the best. PLease keep us updated.

Angie

CT Scan

Hi everyone,I had posted a few messages before in re: my son Gavin. He was diagnosed with Plagiocephaly and was treated, but unfortunately he reverted significantly. I will be taking him to Boston's Childrens Hospital soon. I just wanted to update those who gave me advice. My son was measured and now has a 18mm difference, after wearing the helmet for 16 weeks. Boston thinks he was misdiagnosed, he will be getting a CT scan next week, I hope everything is okay. Does anyone know what they do for children who have reverted? I cannot find any research on children who have. If anyone knows of any sites that mey help, please let me know. I am still so worried.Thanks,Lindsey

[Guest guest]

My daughter had a CTscan when she was 8 months old because her

physical therapist was the one concerned about craniostynosis.

She was supposed to be sleep deprived and not supposed to eat

3 hours prior. After they gave her the medicine I was able to

nurse her and with in 15 mins she was passed out like a light.

The scan itself was only a couple of minutes. Then they made

her wake up enough to see her eyes and sent me on my way. She

came home and took a 4 hour nap! It was like heaven because

she never sleeps!! Anyhow results showed that she does have

some sucers that have started to prematurely close. The coronal

sucers bilaterally... anyhow the neuro says no surgery for now

because her case isn't very severe. He says it was fine to go

ahead with the doc band. My daughters last day in the band is

next monday and I go see the neurosurgeon again at the end

of the month. Surgery isn't always necessary. Oh she does have

moderate right side tort. I don't know if this helps. Good luck!

>

>

> Hi,

>

> I'm new here and have a few questions. My 7 month old son will be

> going in for a Cat Scan this week. I'm pretty sure they're going to

> sedate him. Has anyone had this done before? Did your kids handle

> it ok? He can't have anything but apple juice to drink from 5am-9am

> the morning of the scan. He doesn't really like apple juice, so

> we'll see how that goes. I guess if he's hungry enough he'll

> drink it.

>

> Our appointment with a pediatric neurosurgeon isn't until Feb.

> 16th. So, I guess we won't know the results of the scan until

> then.

>

> Thanks in Advance,

>

> ~Sandy

> Dex 6/17/04

>

[Guest guest]

I am glad to hear that your daughter didn't need surgery! Please keep us posted

when she finishes her band!!!!! Good Luck!

Mom to McKenna- band grad 1.9.09

> From: babygirl01_10_02 <babygirl01_10_02@...>

> Subject: Re: CT Scan

> Plagiocephaly

> Date: Wednesday, April 15, 2009, 9:37 PM

> My daughter had a CTscan when she was 8 months old because

> her

> physical therapist was the one concerned about

> craniostynosis.

> She was supposed to be sleep deprived and not supposed to

> eat

> 3 hours prior. After they gave her the medicine I was able

> to

> nurse her and with in 15 mins she was passed out like a

> light.

> The scan itself was only a couple of minutes. Then they

> made

> her wake up enough to see her eyes and sent me on my way.

> She

> came home and took a 4 hour nap! It was like heaven because

>

> she never sleeps!! Anyhow results showed that she does have

>

> some sucers that have started to prematurely close. The

> coronal

> sucers bilaterally... anyhow the neuro says no surgery for

> now

> because her case isn't very severe. He says it was fine

> to go

> ahead with the doc band. My daughters last day in the band

> is

> next monday and I go see the neurosurgeon again at the end

> of the month. Surgery isn't always necessary. Oh she

> does have

> moderate right side tort. I don't know if this helps.

> Good luck!

>

>

>

>

>

>

> >

> >

> > Hi,

> >

> > I'm new here and have a few questions. My 7 month

> old son will be

> > going in for a Cat Scan this week. I'm pretty

> sure they're going to

> > sedate him. Has anyone had this done before? Did

> your kids handle

> > it ok? He can't have anything but apple juice to

> drink from 5am-9am

> > the morning of the scan. He doesn't really like

> apple juice, so

> > we'll see how that goes. I guess if he's

> hungry enough he'll

> > drink it.

> >

> > Our appointment with a pediatric neurosurgeon

> isn't until Feb.

> > 16th. So, I guess we won't know the results of

> the scan until

> > then.

> >

> > Thanks in Advance,

> >

> > ~Sandy

> > Dex 6/17/04

> >

[Guest guest]

This is the update on our confusion. Justice had his head scanned on the 20th,

he was removed from the starband helmet on the 24th on the advice of the

neurologist. She evaluated him and is feeling great concern about his head.

Fusing to soon? Im not sure, i was a total wreck that day and I cant remember

half of what was said. So i have kept him out the helmet and cant get no results

until the dr has her baby so the 7th we get the results...absolutley

ludacris...i dont want to wait that long if there is concern and he isnt in the

helmet...we want to know like yesterday..what if there is nothing wrong and he

has been out the helmet so long and is steady growing..it was a waste to get the

number 2 helmet...so i called his primary and we are waiting for a return

call..i also called the neurologist to demand that someone there or his primary

tell us the results.I am so fustrated and scared and really we dont know what to

do besides worry about our son.but hopefully in the end he is ok and we move on.

I wanted to carry out number 2 helmet because he got great results with the

shape of his head and so fast and they swore that number 2 his ears would

finally shift. now i feel bad for him because this is the end results..even

though it looks better it could of been better than this...anyways thats the

update...when i get the results I will share those too...thanks everyone who

wrote back at first as I am so confused!

mom to Justice age 7 months out of starband

>

> My son, Justice, was placed in a Starband helmet on Jan,26 of this year and is

now in a second helmet. Anyways I was at the CT almost 2 weeks ago and they

asked me about Justices scan because they say that they THINK the soft spots on

his head have prematurely fused together. I said he never had a scan in which he

never did, the CT replies that all kids have to have a scan before the helmet

and that someone along the way messed up and they are thinking that it isnt

plagio at all, it could be water on the brain or craniophephly(sp?)They were

shocked of no scan ever being done. Anyways I leave and next thing I know we

were getting the calls from neorosciences about a scan and needing it ASAP. So

my question is...Did everyone elses little ones have a scan before the helmet?

Also now I feel we are messing up and I dont want to continue the helmet process

until some one can say for sure what is up. They also said that a doctor cant

physically look at a little ones head and automatically say its plagio because

it could be several other things...Im confused and to be honest im scared for my

son. any help suggestions or anything would be appreciated.

>

> Thanks,

>

> , mom to Justice 6.5 months is second Starband

>