Re: new to scd- help with Autistic 5 yr old!! Please

[Guest guest]

Dearest Beth,

I do not have an autistic child but I know a little bit about picky eaters and

oh, what a pain in the petunias!!!

I am not sure I havea ny advice for you that will help since my child is not

autistic and I have UC.

My one question...after all that throwing up, are you sure its not just a bug of

some sort like the flu? For myself, when I have the flu and throw up a lot,

after that's over, all I want is food that's bad for me. Its just a thought.

Charlene

UC 8 years

SCD 5 1/2 years

Hi Everyone,

This is my second attempt at SCD. I tried back in February- long

story.

I'm committed to making it work this time---

Joey is 5. Diagnosed with autism at age 2. Diagnosed with nodular

lymphoid hyperplasia( Dr. wakefield/MMR stuff) Had chronic

yeast/bacterial overgrowth for almost 3 years.

Joey's diet has been GFCF since age 2.6. This gave us initial

improvements.......behaviorally- but gut never really improved. 4-6

loose muchy stools daily since forever.

Here's the clincher......He is incredibly picky. Picky doens't even

describe him actually. I can't beg or bargain with him to even try a

new food that isn't visually appealing to him.

Before I started SCD 6 days ago- Joey ate:

nutbutter/fruit preserve sandwiches( on rice bread)

pancakes, rice flour muffins, fries,chips,rice cakes...see a trend!

Fruit! raw. grapes,raisens, apples,pears,oranges,BANANAS

he did love ANDI bars. ( Special Diets for Special kids

makes these rice protein bars.)

he went through a raw pecan(smoked and salted)stage

I think that's it. occasional chicken nuggets

So I'll just break down the last week on scd for you starting with

day 1.

Day 1:

Joey ate: I yellow banana. Tried one bite of chicken pancake- spit

out when he realized it wasn't regular pancake. Ran screaming from

mini hamburger patty.

Drank lots of water. Gave charcoal and magnesium citrate. No poops

all day.

Went to sleep 6:30 pm- midnight woke sick. Throwing up off and on

for about 7 hours.

Day 2:

Still had fever. Drank 2 glasses of dilluted grape juice- threw up

immediately. Sofa bound all day. Fed him later in day small kids

bowl of pureed/cooked pear sauce with 1/2 camomille capsule.

had 2 epsom salt baths.HAd huge black/green poop very runny that

night. Ate 2 tasty herb crackers before bed.

Day 3:

Joey slept through night! woke at 8 , immediately asked for juice.

threw it up immediately.Sofa bound most of day. Two naps today.Fever

remained.

later in day finally got him to eat small amount of pear sauce. gave

him charcoal capsule and mag citrate.had one epsom salt bath. slept

through night. No poops.

Day 4:

Needed to be carried out of bed this morning. No energy. Drank small

amounts of water on/off all morning. Offered scrambled egg/i tiny

hamburger patty and tasty herb cracker- refused it all.

Joey found ( don't know where) JIF simply. ( lower sugar JIF)

gobbled a couple fists full before I could get to him.

Later found an apple/raw/ gobbled it.

Gave pear sauce to get him to take his chamomile capsule/charcoal

and melatonin.

Gave 1 spotty banana before bed- he was so excited to get that!

He had a nasty runny black pooop late i day.

DAY 5:

Joey drank a little more dilluted juice than I would like today. 3

glasses.

He ate and enjoyed banana/almond flour pancakes this morning. 2

bananas. Small amounts of pear sauce with his vitamin/mag

citrate/melatonin and chamomile. Offered eggs/patty/veggies - ran

away from them.

Later that night ate and seemed to like eggless PB cookies.I offered

fried carrots.....he refused. Got him to kiss.....got him to lick a

few times . At this point he saw where I was hiding the bananas

(linin closet) and I was saying carrot first- then banana. He tried

so hard to eat it- just couldn't bring himself to do it. Licking was

the best he could do. No banana at that point.

He chewed up and spit out 4 chicken pancakes that evening. getting

more mad with each. He thought they were those banana pancakes......

No poops today.Cranky and aggressive today.

Day 6:

Joey woke at 4 am this morning...despite wanting to stay up late

night before( 8:45 pm)

Had a big black poop early. Had another, yet smaller, poop around

8:30 am. He ate:

1 spotty banana

8-10 eggless pb cookies

Tried and spit out violently the squach puree( I tried it too- yuck!)

I made and offered carrot( with 1/4 cup chicken broth) sneaky veggie

pancakes- REFUSED!

Found- again...must have been in the back of fridge....jar of

sunflower butter......ate that down.

DAy 7:

Big black runny poop in the a.m.

Joey ate banana pancakes for breakfast ( lots) and the few that were

left ate a couple hours later. PLus yellow banana.

He did eat about 10 chicken nuggets( fried in FRY DADDY fryer) with

safflower oil/salted.

Offered cooked carrots....hamburger patty.....fried chicken bites

without almond flour breading....all refused without even touching.

I really feel frustrated......especially when I read all these

newbies describing how their child is happily or even unhappily ,

but still eating the allowed foods.

No doubt he needs this diet. And I'm not gonna be arrogant enough to

say he's the pickiest kid ever.....but there isn't one food on the

intro diet he would eat. Not one. He's got major sensory issues.

Major. Never liked eggs/veggies/meats(except chicken nuggets)

bless you for reading this very long post. I just wanted to lay all

the info on the table so any who were kind enough to read might have

the best chance of helping out with all the information. Thanks in

advance......I'm desperate.

Sincerely,

Beth Mom to Joey- autism SCD for 7 days

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[Guest guest]

Welcome back to the group Beth,

> This is my second attempt at SCD. I tried back in February- long

> story.

These links may be helpful at expaining some of what he is going

through (black, weird colored stools etc.) and there may be some

helpful suggestions (picky eater ideas)

http://pecanbread.com/difficulties.html#picky

http://pecanbread.com/foodprep.html#transition

http://pecanbread.com/difficulties.html#initial

http://pecanbread.com/badreaction.html

The fever, weird stools and vomiting etc. have been reported before

by others who have gone through die off.

You may have better luck if you forget about intro diet or even

basic foods and just get him to eat anything that is legal. Once he

is feeling a bit better (gets through the worst of the die off) you

may be able to go back and do the intro (if needed at that point) or

more basic foods once you find SCD foods that he will eat.

There are some recipe ideas at

http://pecanbread.com/foodprep.html#menu

and lots of kid friendly recipes at

http://pecanbread.com/recipes.html

More SCD recipes at

http://www.scdrecipe.com/recipes.html

Sheila, SCD 2/01, UC 22yrs

mom of and

[Guest guest]

Hi Beth;

I'm also fairly new to SCD (2 months dairy-free). I empathize with your

situation.

My 2 yo daughter is also super picky. And yes, it is frustrating to read posts

of others children eating stuff willingly from the beginning - but rest assured

it's not all sunshine and lollipops for everyone!

From what you've written, I think his appetite will improve once some gut

healing takes place. He's really craving the carbs and sweets right now. Once

that dies down he may be willing to try new things.

My 2 yo still has some healing to do - still has bloated tummy and behaviour

issues so I know she's still sick. Probably why she's still so picky. Just

keep offering the SCD foods that you're making and one day he may take a bite or

two and swallow instead of spit out (boy can I relate to this one!!)

Hang in there - one day he'll be eating new things openly.

Kim

2 months dairy free SCD for 3.5 yo and 2 yo

[Guest guest]

Dear Beth,

How stressed you must be feeling. I am not sure that any of this will help,

but although 's diet was not as restricted as your sons, he was still

reluctant to try new things. It was a few weeks into the diet before he

tried anything new and now I can't believe the range of foods that he will

eat.But I did have to offer the foods on a few occasions before they were

eaten. Do you think that these initial reactions were viral or die off?? If

it was die off he must have been feeling terrible. I hope that he gets over

this initial (rather big) hurdle and you flourish on the diet. Fingers

crossed that in a few weeks you have a break through.

Good luck

Elaine

_____

From: pecanbread [mailto:pecanbread ] On

Behalf Of & Charlene Flikkema

Sent: 17 July 2006 13:47

To: pecanbread

Subject: [Norton AntiSpam] Re: new to scd- help with Autistic 5

yr old!! Please

Dearest Beth,

I do not have an autistic child but I know a little bit about picky eaters

and oh, what a pain in the petunias!!!

I am not sure I havea ny advice for you that will help since my child is not

autistic and I have UC.

My one question...after all that throwing up, are you sure its not just a

bug of some sort like the flu? For myself, when I have the flu and throw up

a lot, after that's over, all I want is food that's bad for me. Its just a

thought.

Charlene

UC 8 years

SCD 5 1/2 years

Hi Everyone,

This is my second attempt at SCD. I tried back in February- long

story.

I'm committed to making it work this time---

Joey is 5. Diagnosed with autism at age 2. Diagnosed with nodular

lymphoid hyperplasia( Dr. wakefield/MMR stuff) Had chronic

yeast/bacterial overgrowth for almost 3 years.

Joey's diet has been GFCF since age 2.6. This gave us initial

improvements.......behaviorally- but gut never really improved. 4-6

loose muchy stools daily since forever.

Here's the clincher......He is incredibly picky. Picky doens't even

describe him actually. I can't beg or bargain with him to even try a

new food that isn't visually appealing to him.

Before I started SCD 6 days ago- Joey ate:

nutbutter/fruit preserve sandwiches( on rice bread)

pancakes, rice flour muffins, fries,chips,rice cakes...see a trend!

Fruit! raw. grapes,raisens, apples,pears,oranges,BANANAS

he did love ANDI bars. ( Special Diets for Special kids

makes these rice protein bars.)

he went through a raw pecan(smoked and salted)stage

I think that's it. occasional chicken nuggets

So I'll just break down the last week on scd for you starting with

day 1.

Day 1:

Joey ate: I yellow banana. Tried one bite of chicken pancake- spit

out when he realized it wasn't regular pancake. Ran screaming from

mini hamburger patty.

Drank lots of water. Gave charcoal and magnesium citrate. No poops

all day.

Went to sleep 6:30 pm- midnight woke sick. Throwing up off and on

for about 7 hours.

Day 2:

Still had fever. Drank 2 glasses of dilluted grape juice- threw up

immediately. Sofa bound all day. Fed him later in day small kids

bowl of pureed/cooked pear sauce with 1/2 camomille capsule.

had 2 epsom salt baths.HAd huge black/green poop very runny that

night. Ate 2 tasty herb crackers before bed.

Day 3:

Joey slept through night! woke at 8 , immediately asked for juice.

threw it up immediately.Sofa bound most of day. Two naps today.Fever

remained.

later in day finally got him to eat small amount of pear sauce. gave

him charcoal capsule and mag citrate.had one epsom salt bath. slept

through night. No poops.

Day 4:

Needed to be carried out of bed this morning. No energy. Drank small

amounts of water on/off all morning. Offered scrambled egg/i tiny

hamburger patty and tasty herb cracker- refused it all.

Joey found ( don't know where) JIF simply. ( lower sugar JIF)

gobbled a couple fists full before I could get to him.

Later found an apple/raw/ gobbled it.

Gave pear sauce to get him to take his chamomile capsule/charcoal

and melatonin.

Gave 1 spotty banana before bed- he was so excited to get that!

He had a nasty runny black pooop late i day.

DAY 5:

Joey drank a little more dilluted juice than I would like today. 3

glasses.

He ate and enjoyed banana/almond flour pancakes this morning. 2

bananas. Small amounts of pear sauce with his vitamin/mag

citrate/melatonin and chamomile. Offered eggs/patty/veggies - ran

away from them.

Later that night ate and seemed to like eggless PB cookies.I offered

fried carrots.....he refused. Got him to kiss.....got him to lick a

few times . At this point he saw where I was hiding the bananas

(linin closet) and I was saying carrot first- then banana. He tried

so hard to eat it- just couldn't bring himself to do it. Licking was

the best he could do. No banana at that point.

He chewed up and spit out 4 chicken pancakes that evening. getting

more mad with each. He thought they were those banana pancakes......

No poops today.Cranky and aggressive today.

Day 6:

Joey woke at 4 am this morning...despite wanting to stay up late

night before( 8:45 pm)

Had a big black poop early. Had another, yet smaller, poop around

8:30 am. He ate:

1 spotty banana

8-10 eggless pb cookies

Tried and spit out violently the squach puree( I tried it too- yuck!)

I made and offered carrot( with 1/4 cup chicken broth) sneaky veggie

pancakes- REFUSED!

Found- again...must have been in the back of fridge....jar of

sunflower butter......ate that down.

DAy 7:

Big black runny poop in the a.m.

Joey ate banana pancakes for breakfast ( lots) and the few that were

left ate a couple hours later. PLus yellow banana.

He did eat about 10 chicken nuggets( fried in FRY DADDY fryer) with

safflower oil/salted.

Offered cooked carrots....hamburger patty.....fried chicken bites

without almond flour breading....all refused without even touching.

I really feel frustrated......especially when I read all these

newbies describing how their child is happily or even unhappily ,

but still eating the allowed foods.

No doubt he needs this diet. And I'm not gonna be arrogant enough to

say he's the pickiest kid ever.....but there isn't one food on the

intro diet he would eat. Not one. He's got major sensory issues.

Major. Never liked eggs/veggies/meats(except chicken nuggets)

bless you for reading this very long post. I just wanted to lay all

the info on the table so any who were kind enough to read might have

the best chance of helping out with all the information. Thanks in

advance......I'm desperate.

Sincerely,

Beth Mom to Joey- autism SCD for 7 days

----------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.394 / Virus Database: 268.10.1/389 - Release Date: 7/14/2006

[Guest guest]

give him fluids, he'll get hungry. when the body is in detox mode it might

make him not want foods. try the broths and slowly introduce things. don't

offer him food all day, wait until you see that he is ready for something.

he is already 5, so he can read you too. if you are anxious about giving him

the food, he won't want it.

good luck.

, mom to Fiol 19 mo, all family on SCD 1/06

[Guest guest]

Hi Beth,

I have had similar problems with my two year olds. What I did after

we lost tons of weight from not eating was just find SCD legal foods

they would eat. My worst of the two in terms of picky eating now

will eat some pumpkin mush (egg, pumpkin, a little fruit for

sweetness) but it took almost a month of giving it to his brother

and offering to him before he would even touch it without a fit. He

will eat pears and that is it right now. Sometimes guacamole (before

when he was rejecting mush he would eat guacamole and pears and

squash--now it is pears and the pumpkin thing), sometimes squash,

sometimes chicken tots (well, once chicken tots). Anyway, what has

been most helpful was act like none of it bothered me. It still does

of course. But the facts are you can't make them eat. I also put

some very finely pureed chicken in his drink for protein. I don't

have advice really--just that since I started acting like I didn't

care he has opened up a little in foods. I am doing enzymes too in

hopes of making the healing go faster and hopefully then he will eat

more variety. In the meanwhile, I just keep making it available.

Anyway, no good advice. Just wanted you to know that you aren't

alone...

le