Re: Weight

[Guest guest]

Judy,

Are you able to tolerate protein as in meat???????????? Like chicken, pork. I

can't tolerate red meat. When I lost 50 pounds due to this illness, I could only

tolerate Carbs. Then I slowly added protein and I have been able to keep the

weight off and not loose any more. Stay away from sugars and excess carbs as

they just breakdown to sugars in your body. Protein hangs around longer and you

may be able to slowly gain some weight. Just a suggestion. Also try some type of

Soy cereal. I eat this soy ceral called Soy and Oats from the health food store.

made by Organic co. It is not bad at all, Crunchy, and looks like corn flakes.

That kinda sticks to my ribs as they say and is still easy to digest. Also

papaya juice and papaya tablets aid in digestion. been taking those for 2 years.

Have they sent you to a dietician ?

Lily RN from OHIO

Weight

I have a few questions regarding weight. I lost 12 lbs. in Nov.

while in the hospital on an IV and NPO. It is now 3 months later

and I still haven't gain any back....not an ounce !

Is there anyone out there who's

having the same problem that I am or am I alone ?

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[Guest guest]

Judy,

Unfortunately, you are not alone with your weight loss problem. I

am 5'-8 " , and weigh the same as you do! On a good day I may

climb up to 112, but it never stays there. My normal weight used

to be 128, but I have not seen that since October of '02.

It all began with a 30 pound weight loss in the beginning stages

of CP in 2001. Once I was diagnosed with CP and put on

enzyme supplements, my weight very slowly climbed back up,

from 110 to 128 during an 18 month period. At the end of '02 I

got sick, lost weight and got down to 98 pounds in March when I

was hospitalized with diabetic ketoacidosis. I've been trying to

gain ever since then. Another hospitalization with an acute attack

this past October caused me to slide down again. I wasn't able

to be put on TPN because of the risk of infection. I have two

pseudocysts that the doctors have been trying to protect from

infection, as well as diabetes. Diabetics have to avoid infection

at all costs, as they are more suseptable to serious

complications from infections that are slow to heal.

I'm taking enzyme supplements, antioxidants, and have tried

Ensure and even Peptamen, which is a pre-digested medium

chain triglyceride preparation designed to add weight.

Unfortunately, I couldn't tolerate the Peptamen, but you may ask

you doctor to let you give it a try. It is the same solution that they

put into TPN or a j-tube for internal hospital or home feedings.

The only difference is that this type comes in a can that you can

special order through your pharmacy and you drink it like you

would Ensure or one of the other supplemental drinks. It caused

me to have nausea and additional cramping, but I'm told that my

reaction was unusual.

I've also just started taking additional fish oil capsules, 4 each

day. Since I have put on 2 pounds since I started these, they

may help, or it may just be a fluke. It's really too early to tell.

My weight problems are caused by malabsorption and the fact

that I have pancreas burnout now and just don't seem to be able

to absorb anything. Since your fecal fat test came back normal, it

appears that you don't have problems with malabsorption, yet. If

you just lost your weight in November, it just may be that you are

getting a slow start with weight gain. I remember when I first

started back eating after my first hospitalized attack in '01, it took

me over four months before I gained even the first pound. It may

just be that it's going to take you a little longer.

With hope and prayers,

Heidi

South Carolina

SC & SE Regional Rep.

PAI, Intl.

Note: All comments or advice are personal opinion, and should

not be substituted for professional medical consultation.

Judy wrote:

I lost 12 lbs. in Nov. while in the hospital on an IV and NPO. It is

now 3 months later and I still haven't gain any back....not an

ounce ! Is there anyone out there who's having the same

problem that I am or am I alone ?

I'm 5'3 " and now weigh 110 lbs. Do you have any

recommendations?