Re: I don't know what to do

[Guest guest]

Go to the CF clinic and have them listen to her.

[Guest guest]

We first went to the ped doc because it was closer and called the cf

center to see if we should make a appointment and didn't want to see

her. she is also on cromlyn and pulmozyne through the neb. thanks

theresa

>

> Are you going with her to a regular ped doc for the cough or to

the CF

> center doc??? You should take her to the CF center doc for anything

> pulmonary . The regular peds doc for other various kid stuff-

broken

> arm:) stumped toe.:)...whatever , BUT PULMONARY & GASTRO to

the CF

> clinic.......

> Best wishes, I do hope it is a lot better soon.Is the arbitral

the only

> " medicine " she is taken for the cough?????????????

> Keep us posted.

>

> LOVE & HUGS, grandmomBEV

>

> I don't know what to do

>

>

> I just don't know what to do. About a week ago I brought my

> daughter to the peditrician because she developed a very dry deep

> cough over night. He said it is bronchitis. He gave her

> antibiotics and increased her albuterol treatments to 4 times a

day

> instead of 2. I called her cf clinic just to see if there was

> anything else we should do(this is the first time she has had any

> lung problems) they just said to change to a diffrent kind of

> antibiotics and do chest pt 3 times a day instead of 2. She is

not

> done the medicine yet, but the cough seems worse. Is this

normal?

> She seems to feel better but her cough just sound horrible. I just

> feel like I may be letting her get more sick, or am I just being

> paranoid and over protective. I brought her back to the ped. for a

> recheck and he was no help. He just said well she looks better

> (obvisously). And he listened to her chest and said it sounds

harsh

> and to keep doing the albuterol 4 times a day. I would appreciate

> any advice or anything. I guess I am just nervous.

> thanks

> Theresa mom to Madeline 10 months wcf

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

Are you going with her to a regular ped doc for the cough or to the CF

center doc??? You should take her to the CF center doc for anything

pulmonary . The regular peds doc for other various kid stuff- broken

arm:) stumped toe.:)...whatever , BUT PULMONARY & GASTRO to the CF

clinic.......

Best wishes, I do hope it is a lot better soon.Is the arbitral the only

" medicine " she is taken for the cough?????????????

Keep us posted.

LOVE & HUGS, grandmomBEV

I don't know what to do

I just don't know what to do. About a week ago I brought my

daughter to the peditrician because she developed a very dry deep

cough over night. He said it is bronchitis. He gave her

antibiotics and increased her albuterol treatments to 4 times a day

instead of 2. I called her cf clinic just to see if there was

anything else we should do(this is the first time she has had any

lung problems) they just said to change to a diffrent kind of

antibiotics and do chest pt 3 times a day instead of 2. She is not

done the medicine yet, but the cough seems worse. Is this normal?

She seems to feel better but her cough just sound horrible. I just

feel like I may be letting her get more sick, or am I just being

paranoid and over protective. I brought her back to the ped. for a

recheck and he was no help. He just said well she looks better

(obvisously). And he listened to her chest and said it sounds harsh

and to keep doing the albuterol 4 times a day. I would appreciate

any advice or anything. I guess I am just nervous.

thanks

Theresa mom to Madeline 10 months wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Hi Theresa,

When gets like that I give him several baths with the and

Vapor Bath, and put the Vicks Vapor Rub on his chest. I hope this

helps some. )

Deana

[Guest guest]

That sounds like you have done what is best. We can just keep wishes

coming & with your concerned care she will do well. The weather doesn't

help either. On again , off again temps in summer , etc. keep up the

good works mommy

LOVE & HUGS< GRANDMOMBEV

I don't know what to do

>

>

> I just don't know what to do. About a week ago I brought my

> daughter to the peditrician because she developed a very dry deep

> cough over night. He said it is bronchitis. He gave her

> antibiotics and increased her albuterol treatments to 4 times a

day

> instead of 2. I called her cf clinic just to see if there was

> anything else we should do(this is the first time she has had any

> lung problems) they just said to change to a diffrent kind of

> antibiotics and do chest pt 3 times a day instead of 2. She is

not

> done the medicine yet, but the cough seems worse. Is this

normal?

> She seems to feel better but her cough just sound horrible. I just

> feel like I may be letting her get more sick, or am I just being

> paranoid and over protective. I brought her back to the ped. for a

> recheck and he was no help. He just said well she looks better

> (obvisously). And he listened to her chest and said it sounds

harsh

> and to keep doing the albuterol 4 times a day. I would appreciate

> any advice or anything. I guess I am just nervous.

> thanks

> Theresa mom to Madeline 10 months wcf

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

I would feel more comfortable if she was seen by the CF clinic. Even

if the recommended treatment doesn't change, you will have greater

peace of mind.

Good Luck,

Gale

> I just don't know what to do. About a week ago I brought my

> daughter to the peditrician because she developed a very dry deep

> cough over night. He said it is bronchitis. He gave her

> antibiotics and increased her albuterol treatments to 4 times a day

> instead of 2. I called her cf clinic just to see if there was

> anything else we should do(this is the first time she has had any

> lung problems) they just said to change to a diffrent kind of

> antibiotics and do chest pt 3 times a day instead of 2. She is not

> done the medicine yet, but the cough seems worse. Is this normal?

> She seems to feel better but her cough just sound horrible. I just

> feel like I may be letting her get more sick, or am I just being

> paranoid and over protective. I brought her back to the ped. for a

> recheck and he was no help. He just said well she looks better

> (obvisously). And he listened to her chest and said it sounds

harsh

> and to keep doing the albuterol 4 times a day. I would appreciate

> any advice or anything. I guess I am just nervous.

> thanks

> Theresa mom to Madeline 10 months wcf

[Guest guest]

If it was me I would:

1) do albuterol nebs and PT 4x a day.

2) get on the phone to CF clinic and ask to be seen.

If it is a nasty bug it is better to get on the IV treatment in the hosp right

away rather than let it go. Don't ask if you should be seen, tell them you want

her to be seen. This is no game, it's her health don't let anyone play games

with it. I hope she is feeling better soon.

I don't know what to do

I just don't know what to do. About a week ago I brought my

daughter to the peditrician because she developed a very dry deep

cough over night. He said it is bronchitis. He gave her

antibiotics and increased her albuterol treatments to 4 times a day

instead of 2. I called her cf clinic just to see if there was

anything else we should do(this is the first time she has had any

lung problems) they just said to change to a diffrent kind of

antibiotics and do chest pt 3 times a day instead of 2. She is not

done the medicine yet, but the cough seems worse. Is this normal?

She seems to feel better but her cough just sound horrible. I just

feel like I may be letting her get more sick, or am I just being

paranoid and over protective. I brought her back to the ped. for a

recheck and he was no help. He just said well she looks better

(obvisously). And he listened to her chest and said it sounds harsh

and to keep doing the albuterol 4 times a day. I would appreciate

any advice or anything. I guess I am just nervous.

thanks

Theresa mom to Madeline 10 months wcf

[Guest guest]

Theresa,

I know the feeling. Very frustrating. You want them to say and do more to

make your child feel better. I hope someone out there has a suggestion for

when it comes to this point. But I'd say concentrate more on the CF doc

when she's that bad and stay on the phone. Unfortunately, coughing is a

part of CF (a big part). We never got use to it and still can't sleep when

our daughter is coughing like that. Hope she feels better soon.

I was suprized when her CF doc said it was okay for her to take some cough

syrup prescribed by her regular doctor, it did seem to help a little with

the cough, at least enough for her to get some rest. I thought someone with

CF wasn't supose to take cough medicine, but they said it was okay - but

that was just for her, maybe it was something different. Just maybe

something to put out here for anyone else who may have an idea or to the

doc.

G.

mom of sam 14 w/cf

matty 11 and bobby 7 no CF

I don't know what to do

> I just don't know what to do. About a week ago I brought my

> daughter to the peditrician because she developed a very dry deep

> cough over night. He said it is bronchitis. He gave her

> antibiotics and increased her albuterol treatments to 4 times a day

> instead of 2. I called her cf clinic just to see if there was

> anything else we should do(this is the first time she has had any

> lung problems) they just said to change to a diffrent kind of

> antibiotics and do chest pt 3 times a day instead of 2. She is not

> done the medicine yet, but the cough seems worse. Is this normal?

> She seems to feel better but her cough just sound horrible. I just

> feel like I may be letting her get more sick, or am I just being

> paranoid and over protective. I brought her back to the ped. for a

> recheck and he was no help. He just said well she looks better

> (obvisously). And he listened to her chest and said it sounds harsh

> and to keep doing the albuterol 4 times a day. I would appreciate

> any advice or anything. I guess I am just nervous.

> thanks

> Theresa mom to Madeline 10 months wcf

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

In a message dated 7/2/2003 8:15:20 AM Central Daylight Time,

tlanave@... writes:

> I just don't know what to do. About a week ago I brought my

> daughter to the peditrician because she developed a very dry deep

> cough over night. He said it is bronchitis. He gave her

> antibiotics and increased her albuterol treatments to 4 times a day

> instead of 2. I called her cf clinic just to see if there was

> anything else we should do(this is the first time she has had any

> lung problems) they just said to change to a diffrent kind of

> antibiotics and do chest pt 3 times a day instead of 2. She is not

> done the medicine yet, but the cough seems worse. Is this normal?

> She seems to feel better but her cough just sound horrible. I just

> feel like I may be letting her get more sick, or am I just being

> paranoid and over protective. I brought her back to the ped. for a

> recheck and he was no help. He just said well she looks better

> (obvisously). And he listened to her chest and said it sounds harsh

> and to keep doing the albuterol 4 times a day. I would appreciate

> any advice or anything. I guess I am just nervous.

> thanks

> Theresa mom to Madeline 10 months wcf

They should do a throat culture to see if pseudomonas is present. Deb A

[Guest guest]

hi my name is michelle i have anna who is 18 months old i think you can

never be to over protective until she is old enough to tell you how she

feels and what is wrong then you can never be protective good luck with all

and take care

michelle

mom to caitlin 8 wo/cf

erin 7 wo/cf

moira 3 wo/cf

anna 18 months w/cf

Re: I don't know what to do

> In a message dated 7/2/2003 8:15:20 AM Central Daylight Time,

> tlanave@... writes:

>

>

> > I just don't know what to do. About a week ago I brought my

> > daughter to the peditrician because she developed a very dry deep

> > cough over night. He said it is bronchitis. He gave her

> > antibiotics and increased her albuterol treatments to 4 times a day

> > instead of 2. I called her cf clinic just to see if there was

> > anything else we should do(this is the first time she has had any

> > lung problems) they just said to change to a diffrent kind of

> > antibiotics and do chest pt 3 times a day instead of 2. She is not

> > done the medicine yet, but the cough seems worse. Is this normal?

> > She seems to feel better but her cough just sound horrible. I just

> > feel like I may be letting her get more sick, or am I just being

> > paranoid and over protective. I brought her back to the ped. for a

> > recheck and he was no help. He just said well she looks better

> > (obvisously). And he listened to her chest and said it sounds harsh

> > and to keep doing the albuterol 4 times a day. I would appreciate

> > any advice or anything. I guess I am just nervous.

> > thanks

> > Theresa mom to Madeline 10 months wcf

>

> They should do a throat culture to see if pseudomonas is present. Deb A

>

>

>

[Guest guest]

All I can say is our experience....most of the time, with all 3 of our

CF kids, when they start appropriate treatment (oral or iv

antibiotics, depending on situation), they seem to get worse for a few

days, that is, they cough up stuff like crazy. Usually for the first

5 days of iv antibiotics, they would seem worse to someone who has not

had alot of experience with dealing with CF lung stuff. When we asked

about this, we were told that the meds were working and they were just

bringing all the junk that had built up in the lungs up, and that is a

good thing. At least, that is our experience. They aren't really

getting worse....just bring up the nasty stuff. I can only say that

we do not seek any advice from pediatricians, we always use the CF

docs for any CF related issues....the pediatricians always seem to

under or over treat or not have a clue what to do. Once, we had a

pediatrician literally panic when Mallory had green pseudomonas goo

(thick as gum) all in her ear and she demanded the ent see her right

away, blah blah blah. We knew it was pseudo and could have saved

ourselves the trouble by calling the CF docs and doing a tuneup,

instead, we ended up having her ears drained by the ent (who said,

gee, I can diagnose this just by the smell, but I will still send it

for culture, and of course, as we already knew, it was pseudo...) so

then we had a delay in treatment, then they were not able to place the

picc (that was back before ports) and more delays because all her

veins for ivs were blown, and her ears were a mess by the time we got

her port almost a week later. After that, we decided that even ear

stuff in the Cf kids to to the CF doc.... at least, thats our

opinion, we start with them. Even the GI issues the CF docs can

handle most of the time, at least at our clinic. Hope this helps.

take care,

Jen, m ommy of 7, 3 with CF ages 4, 5 and 7 (can you believe my baby

is 4!!!!!!)

> I just don't know what to do. About a week ago I brought my

> daughter to the peditrician because she developed a very dry deep

> cough over night. He said it is bronchitis. He gave her

> antibiotics and increased her albuterol treatments to 4 times a day

> instead of 2. I called her cf clinic just to see if there was

> anything else we should do(this is the first time she has had any

> lung problems) they just said to change to a diffrent kind of

> antibiotics and do chest pt 3 times a day instead of 2. She is not

> done the medicine yet, but the cough seems worse. Is this normal?

> She seems to feel better but her cough just sound horrible. I just

> feel like I may be letting her get more sick, or am I just being

> paranoid and over protective. I brought her back to the ped. for a

> recheck and he was no help. He just said well she looks better

> (obvisously). And he listened to her chest and said it sounds harsh

> and to keep doing the albuterol 4 times a day. I would appreciate

> any advice or anything. I guess I am just nervous.

> thanks

> Theresa mom to Madeline 10 months wcf