Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Amber, Good for you for dealing the hand you were dealt. All you can do is take one step at a time. I am proud that you are learning a trade. This will carry you through even if you have to do it from home. I was a young mom. Not as young as you were, but I got married when I was 18. Times are hard no matter what. Concentrate on your relationship with your daughter and your boyfriend and things will work out when you have a strong support system. Dealing with CF is hard enough sometimes without adding other things to the mix. You are young and it sounds like you both have a good head on your shoulders. This is a great group of people here. Good luck and best wishes. Tina, mom of Steph wcf, 17 3/4 yoa, ,nocf 26yoa I'm new Hi everyone, My name is Amber I've been reading post for a couple days and I figured I should introduce my self, I have a 2 year old daughter, Hailey, with Cf, and this has been particularly hard because I my self am still a child I am 17, I became pregnant my freshman year by my childhood sweet heart and We are still together and planning to marry when our financial status becomes more stable, I am in school to be a cosmetologist and to support us as much as he can Brent has taken a factory job and given up on going to College for the time being until I finish school and able to work. Please no Your Too Young speeches I've had enough of those, and I'm not sure how many more I can take before I have to go to the loony bin! Hailey was diagnosed at 6mt. she had Pertusses she had a difficult winter the last couple years, she's done better this year so far but the worst time of year is still ahead, her last Culture was Clean nothing was down there WOOOHOOO!!! I was thrilled her Dr. likes to bronc at least 1 time a year so when she get's sick he knows what to treat is that normal?? Well I guess I've shared enough for a first post I look forward to getting to know you all Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Hi Amber, My doctor also likes to take cultures from a bronchoscopy to make sure of the bacteria being treated. My doctors were all trained at Chapel Hill, and I think this is the method preferred there. Although I've never loved the bronch process, I do take comfort that Kate isn't being bombarded with the wrong antibiotics or at doses that are too low or too high. That said, Kate only has bronchs done when she is sick (at LEAST once a year.) Glad to hear Hailey is doing well. Jane Lindrum Mom of Kate, 4 w/cf I'm new Hi everyone, My name is Amber I've been reading post for a couple days and I figured I should introduce my self, I have a 2 year old daughter, Hailey, with Cf, and this has been particularly hard because I my self am still a child I am 17, I became pregnant my freshman year by my childhood sweet heart and We are still together and planning to marry when our financial status becomes more stable, I am in school to be a cosmetologist and to support us as much as he can Brent has taken a factory job and given up on going to College for the time being until I finish school and able to work. Please no Your Too Young speeches I've had enough of those, and I'm not sure how many more I can take before I have to go to the loony bin! Hailey was diagnosed at 6mt. she had Pertusses she had a difficult winter the last couple years, she's done better this year so far but the worst time of year is still ahead, her last Culture was Clean nothing was down there WOOOHOOO!!! I was thrilled her Dr. likes to bronc at least 1 time a year so when she get's sick he knows what to treat is that normal?? Well I guess I've shared enough for a first post I look forward to getting to know you all Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 hi Amber, my name is maureen, I to was a mother at 17, and my daughter Noelle was born with cf. so i can relate to you alot. although the father did not stick around, i lived with my mother until i finished barber college. wow thats interesting!!! we have similar stories. if you need to talk I will be happy to help and just be an ear if you need. i wont say how young you are either, been there done that!! good luck Maureen mom of 3...2 with cf, Noelle forever 20 Maureen----->-@ > >Reply-To: cfparents >To: cfparents >Subject: I'm new >Date: Fri, 22 Aug 2003 10:28:29 -0000 > >Hi everyone, My name is Amber I've been reading post for a couple >days and I figured I should introduce my self, I have a 2 year old >daughter, Hailey, with Cf, and this has been particularly hard >because I my self am still a child I am 17, I became pregnant my >freshman year by my childhood sweet heart and We are still together >and planning to marry when our financial status becomes more stable, >I am in school to be a cosmetologist and to support us as much as he >can Brent has taken a factory job and given up on going to College >for the time being until I finish school and able to work. Please no >Your Too Young speeches I've had enough of those, and I'm not sure >how many more I can take before I have to go to the loony bin! Hailey >was diagnosed at 6mt. she had Pertusses she had a difficult winter >the last couple years, she's done better this year so far but the >worst time of year is still ahead, her last Culture was Clean nothing >was down there WOOOHOOO!!! I was thrilled her Dr. likes to bronc at >least 1 time a year so when she get's sick he knows what to treat is >that normal?? Well I guess I've shared enough for a first post I look >forward to getting to know you all > Amber > > > > >------------------------------------------- >The opinions and information exchanged on this list should IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > >------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Welcome Amber. No speach from me! I had Toni, my daughter, when I was just sixteen. Toni is 27 now. She finished college, got married, bought a house and had a baby. All in the right order! Toni has a pretty little daughter named Abigail (Abby). Abby is 20 months old and has cf. The CF sucks, but Abby is perfect! It was hard taking care of Toni when I was so young. I hope that your parents help you out a lot. Mine did. They watched Toni while I worked and went to technical school. Toni is still thier favorite grand daughter. I'm glad that you found this group and hope that you find it helpful, supportive and entertaining. Gale Grandma to Abby > Hi everyone, My name is Amber I've been reading post for a couple > days and I figured I should introduce my self, I have a 2 year old > daughter, Hailey, with Cf, and this has been particularly hard > because I my self am still a child I am 17, I became pregnant my > freshman year by my childhood sweet heart and We are still together > and planning to marry when our financial status becomes more stable, > I am in school to be a cosmetologist and to support us as much as he > can Brent has taken a factory job and given up on going to College > for the time being until I finish school and able to work. Please no > Your Too Young speeches I've had enough of those, and I'm not sure > how many more I can take before I have to go to the loony bin! Hailey > was diagnosed at 6mt. she had Pertusses she had a difficult winter > the last couple years, she's done better this year so far but the > worst time of year is still ahead, her last Culture was Clean nothing > was down there WOOOHOOO!!! I was thrilled her Dr. likes to bronc at > least 1 time a year so when she get's sick he knows what to treat is > that normal?? Well I guess I've shared enough for a first post I look > forward to getting to know you all > Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 WOW.You must have done all the right things. That is a great story. I am very happy for you & for your precious family that it all turned out so very well LOVE & HUGS, GrandmomBEV Re: I'm new Welcome Amber. No speach from me! I had Toni, my daughter, when I was just sixteen. Toni is 27 now. She finished college, got married, bought a house and had a baby. All in the right order! Toni has a pretty little daughter named Abigail (Abby). Abby is 20 months old and has cf. The CF sucks, but Abby is perfect! It was hard taking care of Toni when I was so young. I hope that your parents help you out a lot. Mine did. They watched Toni while I worked and went to technical school. Toni is still thier favorite grand daughter. I'm glad that you found this group and hope that you find it helpful, supportive and entertaining. Gale Grandma to Abby > Hi everyone, My name is Amber I've been reading post for a couple > days and I figured I should introduce my self, I have a 2 year old > daughter, Hailey, with Cf, and this has been particularly hard > because I my self am still a child I am 17, I became pregnant my > freshman year by my childhood sweet heart and We are still together > and planning to marry when our financial status becomes more stable, > I am in school to be a cosmetologist and to support us as much as he > can Brent has taken a factory job and given up on going to College > for the time being until I finish school and able to work. Please no > Your Too Young speeches I've had enough of those, and I'm not sure > how many more I can take before I have to go to the loony bin! Hailey > was diagnosed at 6mt. she had Pertusses she had a difficult winter > the last couple years, she's done better this year so far but the > worst time of year is still ahead, her last Culture was Clean nothing > was down there WOOOHOOO!!! I was thrilled her Dr. likes to bronc at > least 1 time a year so when she get's sick he knows what to treat is > that normal?? Well I guess I've shared enough for a first post I look > forward to getting to know you all > Amber ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Hi Amber, Welcome to the group. there is a lot of good support here. I'm sorry that your daughter has CF but I'm glad that you found us. visit our site at http://groups.msn.com/TeamJane I'm new Hi everyone, My name is Amber I've been reading post for a couple days and I figured I should introduce my self, I have a 2 year old daughter, Hailey, with Cf, and this has been particularly hard because I my self am still a child I am 17, I became pregnant my freshman year by my childhood sweet heart and We are still together and planning to marry when our financial status becomes more stable, I am in school to be a cosmetologist and to support us as much as he can Brent has taken a factory job and given up on going to College for the time being until I finish school and able to work. Please no Your Too Young speeches I've had enough of those, and I'm not sure how many more I can take before I have to go to the loony bin! Hailey was diagnosed at 6mt. she had Pertusses she had a difficult winter the last couple years, she's done better this year so far but the worst time of year is still ahead, her last Culture was Clean nothing was down there WOOOHOOO!!! I was thrilled her Dr. likes to bronc at least 1 time a year so when she get's sick he knows what to treat is that normal?? Well I guess I've shared enough for a first post I look forward to getting to know you all Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Hi! I just wanted to introduce myself, & let you know I'm looking forward to getting to know you. This is such a great group of people & I know I speak for everyone when I say we're glad to have you with us! Hugs! Deanna > > I'm just testing to see if this set-up > will allow me to post messages. So far it lets me read them. My rowserwon't allow me to get in the chat room. Oh > well, here we go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Should have said so in my post because I have already been asked a million times. I don't now, nor have I ever drank---maybe one or two drinks a year at most. I think that is why my GI wrote me off as IBS. But I'm glad you quit-keep up the good work. Thanks for your response. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 I did something wrong my very first post. It posted blank?? Oh well, here goes again. I'm brand new to this but I found this group and knew I needed some support. I was a 42 year very health woman until approxiamtely two months ago. I am very happily married with two small children. The only health issue I ever dealt with was having my gallbladder out in my twenties. Most recenly I have had GERD and a small Hiatal Hernia (although tetst for the hernia revealed elevated amylase/lipase. Long story short I ate tainted food on 11/8 and this somehow kicked something with my pancreas into high gear. I have been hospitalized three times in the last two months with malnutrition/dehydration--- nausau, diarrhea, chest to back pain, sweats, weight loss---it's been awful. I have had every scope known to man, including an EUS whcih just showed a mildly inflamed pancreas. A gastric emptying scan revelaed I had gastroparesis. Anyway I recently read a report my GI doc wrote which indicated I " could possible have chronic pancreatitis as there is evidence of prior disease. " I received my medical records because I am going to a top specialist in a big city near me and they need them. Anyway, I was shocked when I read this because he never told me he suspected CP with gastroparesis. My final diagnosis was post-infection IBS. From my research it is obvious many CP patient's are mis-diagnosed with IBS and I was put on Pancrease after my last discharge. The Pancrease has kept me out of the hospital. Why put me on Pancrease if I have IBS? Anyway I work for a doc who, prior to the aforementioned, told me I should seek the advice of a GI doc who specializes in the pancreas, as he beleived I had CP. I actually have my appointment today and wonder if anyone knows something specific I should asked. All suggestions welcome. I am scared about all of this and for those who will, please pray for me amd I will do the same for you. Thanks, J.J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 > I did something wrong my very first post. It posted blank?? Oh Welcome to the group ! you couldn't have found a better place for information, discussion or just venting when you need to. Just one question comes to mind and please don't take it the wrong way cuz you're gonna get asked it a zillion times as you embark on this journey. Do you drink alcohol ???? If so, you really need to think about stopping. There I got it out of my system. Ypu see, I had this real problem with this party called the '80's and I became an absolute A-H with my drinking and,well it was 3 years ago Dec 8th 2000 that I was finally diagnosed with CP/AP....needless to say I don't drink anymore....just stopped..... Now if I can be of any further help, feel free to email me or keep on posting.....you'll get answers....trust me....from all over the world. Good Luck ! Knox northern California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 > Should have said so in my post because I have already been asked a million > times. Sorry to have asked but, you know the drill by now. Thanx for the support. I found it a very easy choice when my dear departed GP that diagnosed me after years of struggling with CP and not being able to get a proper diagnosis, he told me quit or die.....easy decision. Best Wishes, Chris Northern California Quote Link to comment Share on other sites More sharing options...
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