Re: Nightmare U of C appointment

[Guest guest]

In a message dated 2/20/2004 3:01:53 PM Eastern Standard Time,

nwisowaty@... writes:

Oh, can't forget the stents in my pancreas. The pain is now

dying down and we are leaving in as long as we can up to the 8

weeks. Then they will pull these out and put larger ones in.

So thats my update. Will know if my heart valve is okay

probably early next week. Will see cardiologist today before he has

a chance to review the tapes. Please say some prayers for me. I

really could use some heavenly intervention. Hello to everyone new,

have been a little busy lately so not much cahnce to post.

Thanks for listening everyone......

Love,

w

Wisconsin

Hi , I am so sorry you are having so many illnesses going on all at

once. It seems that is always the case though. I hope you get everything

straightened out soon. I am relieved that you will be seeing your cardiologist

before you let the endo doctors do anything to you. Hang in there. I know that

you are under a lot of stress.

Are you progressing to larger stents preparing for a peustow surgery? I was

planning on having the peustow and progressed with the stents right up to the

point of the metal stent. The stent of no return. If you are going to have

the metal stent I just wanted you to know that once it is placed in the duct it

can only be removed with surgery. I wouldn't want to have the metal stent

placed with other problems needing care first.

What hospital are you using for your endo? Who is your doctor? I see in the

subject line UC but you are from Wisconsin. Did you go to the University of

Cincinnati? I go there for some illnesses but I don't like a lot of their

doctors. Especially gastroenterologist.

I know that everything will work out for you . Try to take one day at a

time as Peg always says. I try to take one day at a time but that is very

hard for me. I am a real worrier. I will be sure to keep you in my prayers.

Please keep us updated on what the doctors have to say about you and what test

etc. they have you take. Take care of yourself and those prayers will be

coming your way. Shirley

[Guest guest]

-

Hang in there. I will keep you in my prayers.

Patty,

Louisville, KY

> Nightmare U of C appointment

>

> Good Morning!!!!

> AAAAAAHHHHHHHHH!!!!!! Well, my appointment on Wed. was very

> interesting. I never dreamed things could get worse. How much more

> can happen to one person. I am a little calmer today, but still

> flipping out a bit. To begin with the thyroid nodule is BIG as he

> described it. They did ultrasound on it and then he wanted to

> immediately get a biopsy, needle. Thanks goodness my cardiologist

> had mentioned to me last week about the endo MDs having to be

> extremely careful when in my neck region because they could poke a

> hole in my aortic graft and cause a major problem. He said I would

> be in big trouble if they hit it. When I mentioned this to the endo

> MD he actually took a step back. Also coumadin was an issue. Can

> they do a biopsy while on coumadin??? So I was sent for my lab work,

> 16 viles of blood taken and told to return in 1/2 hour. They had to

> meet with the blood and heart MDs and come up with the plan. I went

> for the blood work and then actually got in my car. I had had

> enough. My brother talked me into getting my ass back in there and

> hearing them out. They also found a growth on my adrenal gland.

> They said it may be the reason I feel like I have the flu and why my

> blood pressure is high. He said it may explain alot. That news

> left my mouth hanging open. Had no clue was a problem there too.

> Thats why he ordered all that blood work, he needs to see the

> results before determining a game plan for that. He also said they

> had to wait on the needle biopsy until my coumadin levels are down.

> I also mentioned the graft again,he said not to worry, they wouldn't

> poke anything that was pulsating. On my way home I thought, " Does a

> fake dacron artery pulse??? How can it if it is not tissue??? Maybe

> this large thing he is seeing is actually my graft leaning on my

> thyroid.. The area he concentrated on with the ultrasound is the

> exact area my cardiologists always goes to when checking the graft

> out. Sure don't want a hole poked in my graft, would probabaly

> require surgery to plug it up. So, I was told to go off my coumadin

> and as soon as levels are down I was to call him on his cell phone

> or page him. Once the levels are down he wants to do the biopsy

> right away. Never have been given an MDs cell phone number before,

> not a good sign in my opinion. A little tooo high priority if you

> know what I mean. Oh boy, things just keep getting funner and funner.

> Today is my echodoppler at my cardiologists, also have a 5

> minute meeting after the echo to be sure what they are seeing is

> indeed a nodule and not my graft. Took me some quick talking to get

> such a short notice appointment. When I asked his nurse the

> questions on the graft thats all that it took.

> Oh, can't forget the stents in my pancreas. The pain is now

> dying down and we are leaving in as long as we can up to the 8

> weeks. Then they will pull these out and put larger ones in.

> So thats my update. Will know if my heart valve is okay

> probably early next week. Will see cardiologist today before he has

> a chance to review the tapes. Please say some prayers for me. I

> really could use some heavenly intervention. Hello to everyone new,

> have been a little busy lately so not much cahnce to post.

> Thanks for listening everyone......

> Love,

> w

> Wisconsin

>

>

>

>

>

>

>

>

>

[Guest guest]

: I cannot believe some of these doctors. I've been reading

the Merck Manual (home edition) here at home (always wanted to be

nurse!!), and I MYSELF (read: layman) have read about pancreas

problems being indicated when there are problems with the adrenal

glands. And for them to be suspicious of the place where you have a

graft? Don't they read a person's " file " ? AND, don't they read up

on medical stuff since becoming MDs?? Sorry to be so down on the

doctors, but from some of the stuff I've read here and the way they

are being with me just seems ENTIRELY unsatisfactory!!! When there

is such a risky thing involved especially in your situation, it would

seem to me that these things would have already been considered.

They cannot just focus on their one specialty w/o taking into

consideration other precipating factors.......I'll scream with you...

My best wishes and prayers are with you

> Good Morning!!!!

> AAAAAAHHHHHHHHH!!!!!! Well, my appointment on Wed. was very

> interesting. I never dreamed things could get worse. How much

more

> can happen to one person. I am a little calmer today, but still

> flipping out a bit. To begin with the thyroid nodule is BIG as he

> described it. They did ultrasound on it and then he wanted to

> immediately get a biopsy, needle. Thanks goodness my cardiologist

> had mentioned to me last week about the endo MDs having to be

> extremely careful when in my neck region because they could poke a

> hole in my aortic graft and cause a major problem. He said I would

> be in big trouble if they hit it. When I mentioned this to the

endo

> MD he actually took a step back. Also coumadin was an issue. Can

> they do a biopsy while on coumadin??? So I was sent for my lab

work,

> 16 viles of blood taken and told to return in 1/2 hour. They had to

> meet with the blood and heart MDs and come up with the plan. I

went

> for the blood work and then actually got in my car. I had had

> enough. My brother talked me into getting my ass back in there and

> hearing them out. They also found a growth on my adrenal gland.

> They said it may be the reason I feel like I have the flu and why

my

> blood pressure is high. He said it may explain alot. That news

> left my mouth hanging open. Had no clue was a problem there too.

> Thats why he ordered all that blood work, he needs to see the

> results before determining a game plan for that. He also said they

> had to wait on the needle biopsy until my coumadin levels are

down.

> I also mentioned the graft again,he said not to worry, they

wouldn't

> poke anything that was pulsating. On my way home I thought, " Does

a

> fake dacron artery pulse??? How can it if it is not tissue??? Maybe

> this large thing he is seeing is actually my graft leaning on my

> thyroid.. The area he concentrated on with the ultrasound is the

> exact area my cardiologists always goes to when checking the graft

> out. Sure don't want a hole poked in my graft, would probabaly

> require surgery to plug it up. So, I was told to go off my

coumadin

> and as soon as levels are down I was to call him on his cell phone

> or page him. Once the levels are down he wants to do the biopsy

> right away. Never have been given an MDs cell phone number before,

> not a good sign in my opinion. A little tooo high priority if you

> know what I mean. Oh boy, things just keep getting funner and

funner.

> Today is my echodoppler at my cardiologists, also have a 5

> minute meeting after the echo to be sure what they are seeing is

> indeed a nodule and not my graft. Took me some quick talking to

get

> such a short notice appointment. When I asked his nurse the

> questions on the graft thats all that it took.

> Oh, can't forget the stents in my pancreas. The pain is now

> dying down and we are leaving in as long as we can up to the 8

> weeks. Then they will pull these out and put larger ones in.

> So thats my update. Will know if my heart valve is okay

> probably early next week. Will see cardiologist today before he

has

> a chance to review the tapes. Please say some prayers for me. I

> really could use some heavenly intervention. Hello to everyone new,

> have been a little busy lately so not much cahnce to post.

> Thanks for listening everyone......

> Love,

> w

> Wisconsin

[Guest guest]

,

I am glad you are doing well. Is the first time you have had the stents? I am

supposed to be getting this done soon and have the bile duct cut too. I am kind

of scared. Can you e-mail me and tell me a little more about the process? Did

you have to stay in the hospital after this was done? Did you get allot of pain

relief? Please e-mail me and let me know how it worked for you okay?

Simi Valley, CA

[Guest guest]

,

I am praying for you and I have lit a St. Jude candle for you. St Jude is my

patron saint and I always light one of the candle's with his picture on it when

a friend or family members need help. St Jude is supposed to be the patron

Saint of those in need.

Simi Valley, CA

[Guest guest]

Yikes, I've had those needle biopsies and they aren't fun.Mine turned

out okay. Luckily I had mine done before I was put on coumadin and had

heart problems. I wouldn't have it done while you were on coumadin as

you'd be bleeding a lot, so you'd probably have to go on daily shots of

lovonox/heparin before they allowed it. Definitely consult with your

cardiologist for any type of surgery or biopsy, just to be on the safe

side. It certainly sounds scary and you need to watch out for that graft

(I've had a heart bypass, so I can understand your concern for things

like that). You are definitely in my prayers and I hope everything

works out.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

,

whenever I go see a doctor, especially a new doctor, I give them a 10

page document that is a synopsis of my health problems. I have a page

for prescriptions, diagnoses, allergies, surgeries, cases of

pancreatitis, current doctors, old doctors, etc. They are usually very

happy to see this because they can get a sense of my health problems

without having to constantly search it through my file, though I make

sure they've read that too.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.