I just posted pictures to the list. :)

[Guest guest]

http://photos.groups.yahoo.com/group/cfparents/lst?.dir=/Zlata+Tova & .src=gr & .ord\

er= & .view=t & .done=http%3a//briefcase.yahoo.com/

They are the same pictures as were on my website, but I figured out

how to put them up here!

We are still waiting on the Ambry test kit. They were supposed to

have sent it second day but sent it ground instead. It would have

been nice to have had it yesterday or today because I was in the

office and my boss could have done the blood draw... Now we have to

go to the hospital for the blood draw, which is a pain. I hope we

have it tomorow though! Then we have 2-3 weeks of limbo left.

Liba, mommy to Zlata Tova (5 w/pancreatic insufficiency, asthma and

food allergies) and Tziporah Faiga (2.5 recent oxygen saturation

problems which aren't cardiac, but hopefully healthier than her sister!)

[Guest guest]

Hi Liba,

your daughters are really cute! Somehow I have missed where you all

are from respectively where your ancestors are from.

Peace

Torsten

>

http://photos.groups.yahoo.com/group/cfparents/lst?.dir=/Zlata+Tova & .s

rc=gr & .order= & .view=t & .done=http%3a//briefcase.yahoo.com/

>

> They are the same pictures as were on my website, but I figured out

> how to put them up here!

>

> We are still waiting on the Ambry test kit. They were supposed to

> have sent it second day but sent it ground instead. It would have

> been nice to have had it yesterday or today because I was in the

> office and my boss could have done the blood draw... Now we have to

> go to the hospital for the blood draw, which is a pain. I hope we

> have it tomorow though! Then we have 2-3 weeks of limbo left.

>

> Liba, mommy to Zlata Tova (5 w/pancreatic insufficiency, asthma and

> food allergies) and Tziporah Faiga (2.5 recent oxygen saturation

> problems which aren't cardiac, but hopefully healthier than her

sister!)

[Guest guest]

Torsten,

We all live in Massachusetts, and our ancestors are eastern european,

of Jewish descent.

From what I have heard that should narrow down our CF gene mutation

search. We were tested premaritally for the 6 most common Jewish CF

genes that they knew of 7 years ago... We didn't get results, they

only tell you if you are both carriers which is stupid considering

what we have learned now.

Liba

>

> Hi Liba,

>

> your daughters are really cute! Somehow I have missed where you all

> are from respectively where your ancestors are from.

>

> Peace

> Torsten

>

[Guest guest]

VERY cute!!!!!

S., mom to Cody (7, pwcf), DJ (9, nocf), and a (14, nocf)

I just posted pictures to the list.

>

http://photos.groups.yahoo.com/group/cfparents/lst?.dir=/Zlata+Tova & .src=gr & .ord\

er= & .view=t & .done=http%3a//briefcase.yahoo.com/

>

> They are the same pictures as were on my website, but I figured out

> how to put them up here!

>

> We are still waiting on the Ambry test kit. They were supposed to

> have sent it second day but sent it ground instead. It would have

> been nice to have had it yesterday or today because I was in the

> office and my boss could have done the blood draw... Now we have to

> go to the hospital for the blood draw, which is a pain. I hope we

> have it tomorow though! Then we have 2-3 weeks of limbo left.

>

> Liba, mommy to Zlata Tova (5 w/pancreatic insufficiency, asthma and

> food allergies) and Tziporah Faiga (2.5 recent oxygen saturation

> problems which aren't cardiac, but hopefully healthier than her sister!)

[Guest guest]

Liba,

These girls are BEAUTIFUL!

And gorgeous names, too!

Lenora in Colorado

>Torsten,

>

>We all live in Massachusetts, and our ancestors are eastern european,

>of Jewish descent.

>

>From what I have heard that should narrow down our CF gene mutation

>search. We were tested premaritally for the 6 most common Jewish CF

>genes that they knew of 7 years ago... We didn't get results, they

>only tell you if you are both carriers which is stupid considering

>what we have learned now.

>

>Liba

>

>

>>

>> Hi Liba,

>>

>> your daughters are really cute! Somehow I have missed where you all

>> are from respectively where your ancestors are from.

>>

>> Peace

>> Torsten

>>

>

>

>