Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Chrissy, Thanks for your comments about Whitcomb's upcoming study. I didn't know about that, and will have Northup call him right away and see if perhaps I can get into this study. My doc just talked with Whitcomb back in October, but it wasn't about me. I don't think he's aware of the new study being done or he probably would have mentioned it to me. Lily....maybe that roadtrip will be sooner than we thought! (See above). It would be wonderful, though, if I could combine some good time with a friend into this journey...you are truly a wonderful example of the support that I'm always touting that this group has. Chrissy, I'm glad that your peg is getting more comfortable...(Heidi says, thinking that somehow, NOTHING coming unnaturally out of one's body could ever be " comfortable " !) Could your doctor's apathy, perhaps, just be his way of trying to not get you too upset and worried about this procedure? Isn't he always sort of calm and unpassionate about things? I feel certain that he is very concerned about you, and does want to find the best solution to your problem, and feels that this is it. It seems as though you have no other choice, and realizing this, he is perhaps dealing with it more clinically than emotionally. I hope you're able to sleep well. I am still having my sweating problems, in spite of the new medication that only worked for a week or so before the sweating began all over again. I wake at night and wonder who else is sitting there at 3:00 am, awake and in pain? The lack of sleep can be so wearying...hahaha! You will need the sleep, and all your strength, to get through these next weeks. Have you talked with Angel Flight? If they could help you, you wouldn't need to worry about the commercial flight costs. I think you need to get in touch with them and see what they could do to help you. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI, Intl. Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
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