SCD RECOVERY WITHOUT OTHER INTERVENTIONS

[Guest guest]

Here is a testimony of SCD recovery without other interventions:

Re: SCD RECOVERY WITHOUT OTHER INTERVENTIONS

A few mintes ago,I posted the report of a little girl who recovered

on SCD without early intervention.

I want to clarify that I am not recommending that any child skip

early intervention programs such as ABA or VB. I was concerned about

's language because she was not getting ABA. It was this

concern that led us to the discovery that there was a die off

reaction to the yogurt.

When the mother told me that the yogurt was making little

irritable but giving her great language improvements,I urged the

mother to continue with the yogurt. Up until then,I had advised

parents to stop the yogurt if there were ANY negative reactions but

I made an exception because this girl was not receiving any

intensive intervention. I was surprised to find out that the

negaitive reaction to the yogurt disappeared after about a month.

BTW,the Lyris list closes for an hour in the middle of the night.

http://lyris.dundee.net/read/messages?id=263588#263588<http://lyris.dundee.net/r\

ead/messages?id=263588#263588>

Mimi

>

> SCD attracts the most dedicated parents. Since SCD is not the most

> famous ASD treatment,the parents have already implemented ABA or

> other well known treatments before starting SCD. Therefore,we

have

> few kids who are doing only SCD.

> That is the reason that we have so few kids who are recovering

with

> only SCD. However,we do have " SCD only " recovery stories.

>

> I remember who did SCD only(with just speech therapy few

> times a week).

> Her story is on our old Elaineschildren Lyris List.

>

>

http://lyris.dundee.net/read/messages?id=267776#267776<http://lyris.dundee.net/r\

ead/messages?id=267776#267776>

>

> Hi everyone!

>

> has made another jolt of progress this month.

>

> The tantrums at school have stopped completely. Her teacher says

> that she is academically higher than most of her classmates, and

is

> one of the few who can lead " calendar " time without hand-over-hand

> assistance. This involves using a pointer and counting, telling

days

> of the week, and patterning. She is going to be " Old Mother

> Hubbard's Dog " in the Christmas Concert (don't ask!!!), and is

> putting her heart into the barking part!

>

> At home -- FINALLY! BE JOYFUL MY MOTHER'S HEART! -- she is playing

> with . Without me telling her to. Sometimes when they are

> listening to music I go in to check on them (from my permanent

> habitat -- the kitchen!) and they are holding hands and dancing to

> the music. Or is pushing on the " ride on " bus, or they

> are both on it, riding and giggling. Today they were playing a

chase

> game over my bed, and went to get the stool (as she has seen

> me do) for from the bathroom so could climb up on the

> bed after her (at almost 2 is a shortie and can't clamber up

> onto Mommy's high bed).

>

> Before SCD I would have to call 's name over and over to get

> her to turn my way, and would often have to get right in front of

> her and say her name just to get her to look at me. This morning

she

> was playing with her back to me and when I came into the room I

> whispered, " pssst, " and she turned around, said, " Hi Mommy! " and

> came to hug me.

>

> And ... we have beginning conversations! At last! For example,

when

> she is in the bath, she'll say, " I want a towel. " I'll say, " which

> one? " and she'll say, " I want the green! " Or, she'll take her

shoes

> off and I'll say, " where do they go? " and she'll say, " by the

door! "

>

> Yesterday we went to the library. There's a park outside, and we

> were playing, and she struck up a conversation with a man who was

> there with his little boy! I don't know exactly what they were

> saying, but I saw 3 or 4 interchanges (I was with ). Then we

> went inside, and she picked out a video. When we got home, she

> said, " Mommy ... " and waited till I turned around, and then

> said, " Can I have video? Please? "

>

> So for the newbie moms (and dads!) of picky eaters, take heart!

>

> This is my child whom I call Princess Picky. We have never been

able

> to do the intro diet, and Elaine says at this point we don't need

> to. has had fruit (bananas and pears) from day 1, nut

muffins

> with honey from about 2 months, and yogurt from 3 1/2 months.

>

> Admittedly her autism was mild to begin with, but now she seems

more

> and more like a regular 4 year old with a language delay. I'm

quite

> sure (on good days, anyway! ) that by the time she's 6, she'll

be

> caught up with her peers and will be functioning normally in a

grade

> 1 class.

>

> Oh yeah and, we have done NO therapy except language therapy, so

her

> gains in behaviour are not from ABA, just from feeding her brain

and

> making her body comfortable.

>

> It's not my Thanksgiving (had that, Oct. 13), but I am sooooo

> thankful for SCD!

>

> Sue (from Pickering)

> Mom to , 4, formerly? ASD, SCD 8 months

>

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

and

http://www.pecanbread.com<http://www.pecanbread.com/>

[Guest guest]

I want to add that also got some Tomatis listening therapy.

made incredible progress with SCD long she ever started the

Tomatis listening therapy.

The most important element for her recovery was SCD but Tomatis might

have helped a bit.

Mimi

> Here is a testimony of SCD recovery without other interventions:

> Re: SCD RECOVERY WITHOUT OTHER INTERVENTIONS

>

>

> A few mintes ago,I posted the report of a little girl who recovered

> on SCD without early intervention.

>

> I want to clarify that I am not recommending that any child skip

> early intervention programs such as ABA or VB. I was concerned about

> 's language because she was not getting ABA. It was this

> concern that led us to the discovery that there was a die off

> reaction to the yogurt.

>

> When the mother told me that the yogurt was making little

> irritable but giving her great language improvements,I urged the

> mother to continue with the yogurt. Up until then,I had advised

> parents to stop the yogurt if there were ANY negative reactions but

> I made an exception because this girl was not receiving any

> intensive intervention. I was surprised to find out that the

> negaitive reaction to the yogurt disappeared after about a month.

>

> BTW,the Lyris list closes for an hour in the middle of the night.

>

http://lyris.dundee.net/read/messages?id=263588#263588<http://lyris.dundee.net/r\

ead/messages?id=263588#263588>

>

> Mimi

>

> >

> > SCD attracts the most dedicated parents. Since SCD is not the most

> > famous ASD treatment,the parents have already implemented ABA or

> > other well known treatments before starting SCD. Therefore,we

> have

> > few kids who are doing only SCD.

> > That is the reason that we have so few kids who are recovering

> with

> > only SCD. However,we do have " SCD only " recovery stories.

> >

> > I remember who did SCD only(with just speech therapy few

> > times a week).

> > Her story is on our old Elaineschildren Lyris List.

> >

> >

>

http://lyris.dundee.net/read/messages?id=267776#267776<http://lyris.dundee.net/r\

ead/messages?id=267776#267776>

> >

> > Hi everyone!

> >

> > has made another jolt of progress this month.

> >

> > The tantrums at school have stopped completely. Her teacher says

> > that she is academically higher than most of her classmates, and

> is

> > one of the few who can lead " calendar " time without hand-over-hand

> > assistance. This involves using a pointer and counting, telling

> days

> > of the week, and patterning. She is going to be " Old Mother

> > Hubbard's Dog " in the Christmas Concert (don't ask!!!), and is

> > putting her heart into the barking part!

> >

> > At home -- FINALLY! BE JOYFUL MY MOTHER'S HEART! -- she is playing

> > with . Without me telling her to. Sometimes when they are

> > listening to music I go in to check on them (from my permanent

> > habitat -- the kitchen!) and they are holding hands and dancing to

> > the music. Or is pushing on the " ride on " bus, or they

> > are both on it, riding and giggling. Today they were playing a

> chase

> > game over my bed, and went to get the stool (as she has seen

> > me do) for from the bathroom so could climb up on the

> > bed after her (at almost 2 is a shortie and can't clamber up

> > onto Mommy's high bed).

> >

> > Before SCD I would have to call 's name over and over to get

> > her to turn my way, and would often have to get right in front of

> > her and say her name just to get her to look at me. This morning

> she

> > was playing with her back to me and when I came into the room I

> > whispered, " pssst, " and she turned around, said, " Hi Mommy! " and

> > came to hug me.

> >

> > And ... we have beginning conversations! At last! For example,

> when

> > she is in the bath, she'll say, " I want a towel. " I'll say, " which

> > one? " and she'll say, " I want the green! " Or, she'll take her

> shoes

> > off and I'll say, " where do they go? " and she'll say, " by the

> door! "

> >

> > Yesterday we went to the library. There's a park outside, and we

> > were playing, and she struck up a conversation with a man who was

> > there with his little boy! I don't know exactly what they were

> > saying, but I saw 3 or 4 interchanges (I was with ). Then we

> > went inside, and she picked out a video. When we got home, she

> > said, " Mommy ... " and waited till I turned around, and then

> > said, " Can I have video? Please? "

> >

> > So for the newbie moms (and dads!) of picky eaters, take heart!

> >

> > This is my child whom I call Princess Picky. We have never been

> able

> > to do the intro diet, and Elaine says at this point we don't need

> > to. has had fruit (bananas and pears) from day 1, nut

> muffins

> > with honey from about 2 months, and yogurt from 3 1/2 months.

> >

> > Admittedly her autism was mild to begin with, but now she seems

> more

> > and more like a regular 4 year old with a language delay. I'm

> quite

> > sure (on good days, anyway! ) that by the time she's 6, she'll

> be

> > caught up with her peers and will be functioning normally in a

> grade

> > 1 class.

> >

> > Oh yeah and, we have done NO therapy except language therapy, so

> her

> > gains in behaviour are not from ABA, just from feeding her brain

> and

> > making her body comfortable.

> >

> > It's not my Thanksgiving (had that, Oct. 13), but I am sooooo

> > thankful for SCD!

> >

> > Sue (from Pickering)

> > Mom to , 4, formerly? ASD, SCD 8 months

> >

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

>

http://www.breakingtheviciouscycle.info<http://www.breakingtheviciouscycle.info/\

>

> and

> http://www.pecanbread.com<http://www.pecanbread.com/>

>

>

>

>

>

[Guest guest]

In Dr Haas' book,it is written that most SCD children can move on to a

regular diet after being healed. was one of those lucky children

who no longer needed to be on SCD after a year. Some children can

graduate to a regular diet with the use of enzymes after being healed

by SCD.

My son has been SCD compliant for several years but we have no plans

to switch him to the ordinary diet. The food in the twenty first

century is much more altered than the food from the days of Dr Haas.

There is not enough data to indicate the success rates of modern

children when they switch diets. My son also has gotten to love SCD

foods and has expressed no desire to change.

Mimi

>

>

>

> > Here is a testimony of SCD recovery without other interventions:

> > Re: SCD RECOVERY WITHOUT OTHER INTERVENTIONS

> >

> >

> > A few mintes ago,I posted the report of a little girl who recovered

> > on SCD without early intervention.

> >

> > I want to clarify that I am not recommending that any child skip

> > early intervention programs such as ABA or VB. I was concerned about

> > 's language because she was not getting ABA. It was this

> > concern that led us to the discovery that there was a die off

> > reaction to the yogurt.

> >

> > When the mother told me that the yogurt was making little

> > irritable but giving her great language improvements,I urged the

> > mother to continue with the yogurt. Up until then,I had advised

> > parents to stop the yogurt if there were ANY negative reactions but

> > I made an exception because this girl was not receiving any

> > intensive intervention. I was surprised to find out that the

> > negaitive reaction to the yogurt disappeared after about a month.

> >

> > BTW,the Lyris list closes for an hour in the middle of the night.

> > http://lyris.dundee.net/read/messages?id=263588#263588<http://

> > lyris.dundee.net/read/messages?id=263588#263588>

> >

> > Mimi

> >

> >>

> >> SCD attracts the most dedicated parents. Since SCD is not the most

> >> famous ASD treatment,the parents have already implemented ABA or

> >> other well known treatments before starting SCD. Therefore,we

> > have

> >> few kids who are doing only SCD.

> >> That is the reason that we have so few kids who are recovering

> > with

> >> only SCD. However,we do have " SCD only " recovery stories.

> >>

> >> I remember who did SCD only(with just speech therapy few

> >> times a week).

> >> Her story is on our old Elaineschildren Lyris List.

> >> to.

>

> Unfortunately Sue did not continue on SCD. They live 30 minutes

> from me and we met and kept in touch for a while. Sue's parents no

> longer wish her story to be publicized.

>

> >

> >

> Carol F.

> Celiac, MCS, Latex Allergy, EMS

> SCD 6 years

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

My son with autism will be 20 soon. When he was little, there were no dietary

interventions suggested for him. He was the most withdrawn child his teacher

had seen in 20 years of working with childrem with autism. But she persevered,

and so did I. I took her advice, did what she told me. She taught me how to

teach him. He also had auditory integration training. He still has autism - it

will never go away. But he just finished his first year at the local community

college - and made Dean's List. I am so very proud of him! I only spoke to one

teacher because I knew he would have problems in that particular reading class -

and he did everything on his own.

Diet is a big thing. I can see that now, and although would do very

well on SCD he won't do it, and I can't force him, but he does eat a varied

diet. But please don't knock other interventions. They can fill in the gaps

that diet doesn't touch. Every intervention has " cured " someone of autism -

that's when the books are written. I have watched many parents spend all their

money and chase after every " cure " only to be disappointed every time.

Accepting your child for who they are, as they are, is much more important than

a cure. SCD is part of the puzzle - a big part, a beginning. But at some point

you assess your situation and think something can be tweaked, or something more

needs to be done, then you look at other therapies.

I'm on this list because of my foster child, BJ. Diet has made a tremendous

impact on his ability to function, but it is not the whole picture. I had to

get the school dept to change his program because he was regressing in it. The

school he is now in is much more appropriate - another piece of the puzzle. He

has been doing the diet with very few infractions for over 13 months, yet he is

not " cured " . He still has a long way to go. He's still not toilet trained, but

I see that as he's still not mature enough in that respect. He doesn't have the

connection quite right to tell him when he needs to go. He's made progress, and

that's very good. SCD has been a wonderful grounding, a wonderful beginning,

but more needs to be done. He will continue with SCD, but we will be adding

other therapies, because they are needed.

Sue

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi Sue,

Tomatis and other listening programs are great for children and do not

interfere with SCD,they are a wonderful complement to SCD. Some

children get big improvements with auditory training and others get

smaller gains.

You misunderstood my post. I wrote it in the middle of the night and

it contains one grammatical error because I was so tired. I am sorry

that I was not clear. I never try to discourage parents from trying

other interventions,especially if the child is older.

Congratulations for doing such a great job with your older son!

Mimi

> My son with autism will be 20 soon. When he was little, there were no

> dietary interventions suggested for him. He was the most withdrawn child

> his teacher had seen in 20 years of working with childrem with autism. But

> she persevered, and so did I. I took her advice, did what she told me. She

> taught me how to teach him. He also had auditory integration training. He

> still has autism - it will never go away. But he just finished his first

> year at the local community college - and made Dean's List. I am so very

> proud of him! I only spoke to one teacher because I knew he would have

> problems in that particular reading class - and he did everything on his

> own.

>

> Diet is a big thing. I can see that now, and although would do

> very well on SCD he won't do it, and I can't force him, but he does eat a

> varied diet. But please don't knock other interventions. They can fill in

> the gaps that diet doesn't touch. Every intervention has " cured " someone of

> autism - that's when the books are written. I have watched many parents

> spend all their money and chase after every " cure " only to be disappointed

> every time. Accepting your child for who they are, as they are, is much

> more important than a cure. SCD is part of the puzzle - a big part, a

> beginning. But at some point you assess your situation and think something

> can be tweaked, or something more needs to be done, then you look at other

> therapies.

>

> I'm on this list because of my foster child, BJ. Diet has made a

> tremendous impact on his ability to function, but it is not the whole

> picture. I had to get the school dept to change his program because he was

> regressing in it. The school he is now in is much more appropriate -

> another piece of the puzzle. He has been doing the diet with very few

> infractions for over 13 months, yet he is not " cured " . He still has a long

> way to go. He's still not toilet trained, but I see that as he's still not

> mature enough in that respect. He doesn't have the connection quite right

> to tell him when he needs to go. He's made progress, and that's very good.

> SCD has been a wonderful grounding, a wonderful beginning, but more needs to

> be done. He will continue with SCD, but we will be adding other therapies,

> because they are needed.

>

> Sue

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call

> rates.

>

>

[Guest guest]

Dear Sue,

We are not negating other therapies and interventions. There are many.

This is a specialized list to discuss SCD. There are over 2500 members.

The list would be untenable if we followed free discussion on numerous

topics. The diet is very challenging for newcomers and we want to do

our best to keep the focus on SCD to get them started properly.

> SCD has been a wonderful grounding, a wonderful beginning, but more

> needs to be done. He will continue with SCD, but we will be adding

> other therapies, because they are needed.

>

> Sue

>

>

>

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

Sue, it was lovely reading your message, something I've been feeling this

week is that I'm so " turned onto " food that I'm missing the beauty that is

before

me ie my son Jay as he is, I don't doubt SCD and its' worth at all but it is so

important to remember that it is only part of the picture. Tonight I've been

paranoid about something Jay ate when in fact he was probably overtired and

acting up!!!!!!! anyway thank you, Josie

>

> My son with autism will be 20 soon. When he was little, there were no

dietary interventions suggested for him. He was the most withdrawn child his

teacher had seen in 20 years of working with childrem with autism. But she

persevered, and so did I. I took her advice, did what she told me. She taught

me how to teach him. He also had auditory integration training. He still has

autism - it will never go away. But he just finished his first year at the

local

community college - and made Dean's List. I am so very proud of him! I only

spoke to one teacher because I knew he would have problems in that

particular reading class - and he did everything on his own.

>

> Diet is a big thing. I can see that now, and although would do very

well on SCD he won't do it, and I can't force him, but he does eat a varied

diet.

But please don't knock other interventions. They can fill in the gaps that diet

doesn't touch. Every intervention has " cured " someone of autism - that's when

the books are written. I have watched many parents spend all their money

and chase after every " cure " only to be disappointed every time. Accepting

your child for who they are, as they are, is much more important than a cure.

SCD is part of the puzzle - a big part, a beginning. But at some point you

assess your situation and think something can be tweaked, or something

more needs to be done, then you look at other therapies.

>

> I'm on this list because of my foster child, BJ. Diet has made a tremendous

impact on his ability to function, but it is not the whole picture. I had to

get the

school dept to change his program because he was regressing in it. The

school he is now in is much more appropriate - another piece of the puzzle.

He has been doing the diet with very few infractions for over 13 months, yet

he is not " cured " . He still has a long way to go. He's still not toilet

trained, but

I see that as he's still not mature enough in that respect. He doesn't have the

connection quite right to tell him when he needs to go. He's made progress,

and that's very good. SCD has been a wonderful grounding, a wonderful

beginning, but more needs to be done. He will continue with SCD, but we will

be adding other therapies, because they are needed.

>

> Sue

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call

rates.

>

>

[Guest guest]

>

> My son has been SCD compliant for several years but we have no plans

> to switch him to the ordinary diet. The food in the twenty first

> century is much more altered than the food from the days of Dr Haas.

> There is not enough data to indicate the success rates of modern

> children when they switch diets. My son also has gotten to love SCD

> foods and has expressed no desire to change.

>

> Mimi

Mimi, This is my fervant hope and prayer for our children. I talk to

them all the time about what is 'good' for their tummy and yet my

little Tobias will pick up a piece of candy off the floor in a store

and eat it. I so want to be able to move from 'Mom says you can't

have' to 'I choose to not eat this because'.

They are young, 5 and 6, so guess I have time.

Sandy M.

[Guest guest]

> Mimi, This is my fervant hope and prayer for our children. I talk to

> them all the time about what is 'good' for their tummy and yet my

> little Tobias will pick up a piece of candy off the floor in a store

> and eat it. I so want to be able to move from 'Mom says you can't

> have' to 'I choose to not eat this because'.

> They are young, 5 and 6, so guess I have time.

> Sandy M.

Sandy,

The Timex company used as their slogan. " No time like the present, no

present like the time:-)

>

>

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years