Re: I hate you PLAGIO

[Guest guest]

I know it is hard. I probably obsessed about headshapes for at least 2 years after my now 7 year graduated from her band. Then It got so much easier. Then i had another baby and the obsession started over. She is now 2 and I do not obsess anymore. It will get easier. Be sure to let us know when Cole is an official graduate!!!!!

Angie

I hate you PLAGIO

Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08

[Guest guest]

,I understand how your feel. is out of his helmet and now I seem to look at it (his head) more and more. His head is not round either. However, the tech and I couldn't see how much another band would help. They told me that nature could take care of the rest. So, I am hoping in a few months, he'll have a rounder head. Atleast the boys head are much better than they were before. Good luck, Ronda

In a message dated 02/20/09 06:10:16 Central Standard Time, knapp1307@... writes:

Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08

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[Guest guest]

I am with you! I do the same thing- my son got out of his DOC band 2 weeks ago and we were told we could get a 2nd band but he is within the normal range, so I thought I would go a few weeks and look at his head and all I do is focus on the back of his head- he has Brachy and while it has improved a lot- it is not all round like other kids. Our ortho told us some head shape is genetics and when I look at my husbands head I see that Aidan has a similar head shape- I swear I almost but a stocking on my husbands head yesterday so I could see his real head shape! ha ha so I am with you- I do the same thing and I need to either get another band or just be happy with where we are. The ortho asked me what bothered me about his head shape the day he graduated and I showed her and she told me even in a 2nd

band I will notice that- until his hair comes in.. It is so stressful. I am also worried that if we do another helmet that I will still not be happy as his head is never going to be perfect. The other thing is Aidan is so used to sleeping on his back from when ever he was in his helmet the he will not sleep any other way- he does roll around and can sit up he is 6 months old but I worry about regression since he is on his back in his crib and I have a good firm mattress like I should have for a baby! I am glad I am not the only one who feels this way, I am getting obsessive about it. I ask everyone to look at his head and I just focus on it ect...Thanks for posting- made me feel normal!Aidan Doc band graduate at 6 monthsFrom: Knapp <knapp1307@...>Plagiocephaly Sent: Thursday, February 19, 2009 11:02:31 PMSubject: I hate you PLAGIO Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at

my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08

[Guest guest]

I am dealing with the same problem. Yesterday I went for a lecture and guess what I did sitting there.... inspected heads of everybody sitting in front of me. But i should say that it re-inforced my decision to go for a helmet.From: Struick <meg5517@...>Plagiocephaly Sent: Saturday, February 21, 2009 10:08:50

AMSubject: Re: I hate you PLAGIO

I am with you! I do the same thing- my son got out of his DOC band 2 weeks ago and we were told we could get a 2nd band but he is within the normal range, so I thought I would go a few weeks and look at his head and all I do is focus on the back of his head- he has Brachy and while it has improved a lot- it is not all round like other kids. Our ortho told us some head shape is genetics and when I look at my husbands head I see that Aidan has a similar head shape- I swear I almost but a stocking on my husbands head yesterday so I could see his real head shape! ha ha so I am with you- I do the same thing and I need to either get another band or just be happy with where we are. The ortho asked me what bothered me about his head shape the day he graduated and I showed her and she told me even in a 2nd

band I will notice that- until his hair comes in.. It is so stressful. I am also worried that if we do another helmet that I will still not be happy as his head is never going to be perfect. The other thing is Aidan is so used to sleeping on his back from when ever he was in his helmet the he will not sleep any other way- he does roll around and can sit up he is 6 months old but I worry about regression since he is on his back in his crib and I have a good firm mattress like I should have for a baby! I am glad I am not the only one who feels this way, I am getting obsessive about it. I ask everyone to look at his head and I just focus on it ect...Thanks for posting- made me feel normal!Aidan Doc band graduate at 6 monthsFrom: Knapp <knapp1307 (DOT) com>PlagiocephalySent: Thursday, February 19, 2009 11:02:31 PMSubject: I hate you PLAGIO Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at

my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08

[Guest guest]

Thank you for all the responses to my post. Good to hear I am not the only one that has been "scarred" by plagio. I just hope in time, this will pass, his hair will come in and I wont notice the brachy anymore. We have only five more days in the helmet and I cant help but stress that we are getting him out too early. I am sure CT would be fine with going the full length on the helmet wear (16 weeks) but I am kind of just over the whole thing (been in the helmet for 13 weeks). I will just have to be happy with the shape that we get and move on to the next thing to worry about. Like how is he going to bop around safely without a helmet?! - From: Struick <meg5517@...>Plagiocephaly Sent: Saturday, February 21, 2009 8:08:50 AMSubject: Re: I hate you PLAGIO

I am with you! I do the same thing- my son got out of his DOC band 2 weeks ago and we were told we could get a 2nd band but he is within the normal range, so I thought I would go a few weeks and look at his head and all I do is focus on the back of his head- he has Brachy and while it has improved a lot- it is not all round like other kids. Our ortho told us some head shape is genetics and when I look at my husbands head I see that Aidan has a similar head shape- I swear I almost but a stocking on my husbands head yesterday so I could see his real head shape! ha ha so I am with you- I do the same thing and I need to either get another band or just be happy with where we are. The ortho asked me what bothered me about his head shape the day he graduated and I showed her and she told me even in a 2nd

band I will notice that- until his hair comes in.. It is so stressful. I am also worried that if we do another helmet that I will still not be happy as his head is never going to be perfect. The other thing is Aidan is so used to sleeping on his back from when ever he was in his helmet the he will not sleep any other way- he does roll around and can sit up he is 6 months old but I worry about regression since he is on his back in his crib and I have a good firm mattress like I should have for a baby! I am glad I am not the only one who feels this way, I am getting obsessive about it. I ask everyone to look at his head and I just focus on it ect...Thanks for posting- made me feel normal!Aidan Doc band graduate at 6 monthsFrom: Knapp <knapp1307 (DOT) com>PlagiocephalySent: Thursday, February 19, 2009 11:02:31 PMSubject: I hate you PLAGIO Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at

my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08

[Guest guest]

I do the same. I look around about people's head shapes - babies, children, and adults. I clearly can see it when it occurs in other babies. I have wondered about some children and even some adults, who seem to have rather wide heads.

I think that some of it is just that we are now more aware of head shapes than most of the population. It's kind of like when you get a new car, you suddenly see a lot more of them out on the street. When my daughter was diagnosed with food allergies and reflux, suddenly I was aware of a lot more people/babies with these issues.

This new awareness probably will not change, but maybe our feelings will over time. is already looking so much better than she did when we started. I do notice it when her hair is wet and when I'm comparing it to her brother's. I'd like to stop comparing some day. We'll see.

, mom to 17 months 3 weeks

13.5 weeks in STARband plus CST

land

I hate you PLAGIOJust wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives. Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08

[Guest guest]

I am very upset about plagio also, but I am channeling my anger in other ways to help people become informed about plagio. If someone stares, I tell them about plagio, I have went to the media. When I see a baby with a mishaped head, I tell them about plagio. When my daughter's head was getting flat, I had to google "flat spots on baby's heads." I have chose to use my frustraions in a way to get people informed.

From: Struick <meg5517@...>Subject: Re: I hate you PLAGIOPlagiocephaly Date: Saturday, February 21, 2009, 9:08 AM

I am with you! I do the same thing- my son got out of his DOC band 2 weeks ago and we were told we could get a 2nd band but he is within the normal range, so I thought I would go a few weeks and look at his head and all I do is focus on the back of his head- he has Brachy and while it has improved a lot- it is not all round like other kids. Our ortho told us some head shape is genetics and when I look at my husbands head I see that Aidan has a similar head shape- I swear I almost but a stocking on my husbands head yesterday so I could see his real head shape! ha ha so I am with you- I do the same thing and I need to either get another band or just be happy with where we are. The ortho asked me what bothered me about his head shape the day he graduated and I showed her and she told me even in a 2nd band I will notice that- until his hair comes in.. It is so stressful. I am also worried that if we do another helmet that I will still not be happy as

his head is never going to be perfect. The other thing is Aidan is so used to sleeping on his back from when ever he was in his helmet the he will not sleep any other way- he does roll around and can sit up he is 6 months old but I worry about regression since he is on his back in his crib and I have a good firm mattress like I should have for a baby!

I am glad I am not the only one who feels this way, I am getting obsessive about it. I ask everyone to look at his head and I just focus on it ect...

Thanks for posting- made me feel normal!

Aidan Doc band graduate at 6 months

From: Knapp <knapp1307 (DOT) com>PlagiocephalySent: Thursday, February 19, 2009 11:02:31 PMSubject: I hate you PLAGIO

Just wanted to post my thoughts. Would love to know if other's feel the same way as I do. Plagio has caused me to look at my son's head first rather than his face. I am constantly assessing the shape of it when his helmet is not on. When I see other babies I look straight at the head shape and compare and even feel envious of the naturally round headed babies out there. Before it was even pointed out to me that my son had plagio I would have never even thought twice about weird head shape. I just never even looked for it and now its all I can seem to focus on whether its my baby or a friends. I honestly hope that once we are out of the helmet I will not worry about his head shape and also not constantly assess everyone elses headshape! Even adults I meet I size their heads up too! This just feels nuts! My son has 7 more days left in his helmet and its not as round as I thought it would be but I am ready to be done with it and move on with our lives.

Ok, thats all I have to say....- Cole has been in his DOCband since 12/1/08