Guest guest Posted April 16, 2002 Report Share Posted April 16, 2002 Dawn, darn it anyway.. YOu aren't suppose to be sick again. Stress always catches up with us and you sure have had your share. Please try to rest ( yeah right on pred.) lol and take it easy. I know this is a hard time for you. You are in my thoughts girl. Talk to you later. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2002 Report Share Posted April 16, 2002 Dawn, So sorry to hear you are flaring.I know this is a very stressful time for you and I wish there was something I could do for you. Sending you Hugs, Sandy hi thought i had better fill you in. just came back from dr. flaring in my throat,larnyx, and nose, back on pred 60 mgs, to start and in a week down to 40 mg, then to 20 and so on, don't feel to bad, just can't talk and breath at the same time, no real voice to talk with anyway. i always thought that i was not going to let the stress of things get to me, but i guess with this death and all that has happened by body didn't get the message to behave its self. love to all dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 hi to all just a quick update. wanted to say thank you for all of the support, this is the greatest group of people in the world. Yesterday when I was at my PCP office he had a resident with him. He proceeded to tell the resident what my disease was, and then told me to take time to educate him a bit. So believe me I did. I just hope that guy doesn't walk out of there and forget everything we told him. My breathing is a bit better today and the swelling in the nose has gone down signfiicantly, The Dr. gave me 100 mgs of pred by injection yesterday in his office. Then today i started on 60 mgs by mouth. I am really down about going on pred again, i hate it. Hopefully it won't be fore long. thank you for your kinds words, i am happy to hear that yours sisters report was good, but sorry to hear that she had any thing at all. I know with a sister like you she has all the support she will need. You just remember to take care of yourself too, becuase as i have just learned the stress will do you in. Sandy, Sure hope this finds you doing ok, How is ? Still doing well I hope. You know this disease really is a nasty one, and about the time you think ok i have this in control, it rears its ugly head and show you different. thank you for caring, i really do appreciate it. lyn, how are things where you are, is it still cold. It was almost 90 here yesterday, but i was just to sick to enjoy it. thanks for writing, i sure wish i could get my chat fixed so i could be there and talk to all of you. Squeek, I am so sorry you have had such a time of it, I don't post much but, i do read all the post. I am hoping now things have slowed down a bit, maybe i can get back to posting again. Thank you for caring so much for all of us, you are truly a blessing to this group. Glenda hope this finds you doing better, did your flare finally go away. Please know that I think of you all the time and want the best for you. Thank you for being such a great lady, i really do appreciate it. Carol G. I have started to post to you several times and my darn comp. keeps locking up on me, I guess i am going to have to go buy a new one. Thank you for being so kind and your very kind words, Hey a new grandbaby sounds wonderful, i have four of them, ages 5, 3, 3 , 3 you should be around here on b-day's and christmas, its wild but lots of fun, look what you have to look forward to. Please keep your head up and fight this darn disease for the future of our kids and grandkids, I know its tough, believe me i have been there. again thanks for being there. love to all of you dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 Dawn, It's so good to hear from you. I'm so glad you got to be on the soapbox yesterday. I hope you told him EVERYTHING he ever wanted to know about RP. Looks like this is how we are going to have to start spreading the word. by just little baby steps. One person at a time. I'm so sorry that you are back on high doses of pred, but hope it knocks this cRaP out once and for all for a long time. You take real good care of yourself. I missed chat today. Did you make it there? I really have to get back on the chat schedule. It is so much fun. Know I'm thinking of you girl and want you well. sending lots of hugs Clauidia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 --- Dawn wrote: > > hi to all > just a quick update. wanted to say thank you for > all of the support, this is the greatest group of > people in the world. Yesterday when I was at my > PCP office he had a resident with him. He proceeded > to tell the resident what my disease was, and then > told me to take time to educate him a bit. So > believe me I did. I just hope that guy doesn't > walk out of there and forget everything we told him. > My breathing is a bit better today and the swelling > in the nose has gone down signfiicantly, The Dr. > gave me 100 mgs of pred by injection yesterday in > his office. Then today i started on 60 mgs by > mouth. I am really down about going on pred again, .. > Squeek, I am so sorry you have had such a time of > it, I don't post much but, i do read all the post. > I am hoping now things have slowed down a bit, > maybe i can get back to posting again. Thank you > for caring so much for all of us, you are truly a > blessing to this group. > --------------------------------- Dawn, thank you so much for your kind words! I appreciate them so much! Glad to hear that you are a bit better today. I know what you mean about being down about being back on pred. I haven't been off of it since I started, but even raising the dosage is enough to get me down. Just remember, there have to be better days ahead. My nine year old grandson and I were sitting in my recliner last night doing his homework when he spotted a beautiful rainbow in the sky. He was so excited cause it seemed so close and it was so vibrantly colored. I was able to see it through his eyes, and reclaim that childhood wonder and awe for just a few minutes. It was neat. So, remember to look for those rainbows, silver linings, or whatever else we can find that cheer us and encourage us to keep the faith. Love, squeek ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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