Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Hi Sharon, Congratulations!!! My daughter also had a meconium blockage and she was able to clear it without surgery. We were in the NICU for 4 days and they had her on an IV. They had me nursing her as well, mainly to practice and get my milk going. Because of the IV, she was not very hungry and we had to work pretty hard at keeping her awake to nurse. They kept us there until her poops started changing to indicate the breast milk was passing through. I have to say that I'm glad we started the breast feeding right away, it can make it harder the longer you wait. I also believe it is one of the reasons she is doing so well! If you have any other questions, feel free to email me directly. Good luck and I hope you all will be able to take him home soon (without surgery!). Mom to Ellie 9mo wCF and Jack 3yo noCF Meconium Illeus One other question for those of you whose children had meconium blockage at birth. My son is being fed intravenously. They will probably start a picc line soon. My question is when was breast/bottle feeding started on your children? His doctors want to wait until after it they can determined that he had passed all of the meconium to start his feedings. Thanks Sharon ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Zach was tube fed breast milk after he was off the ivs. He was so premature that he had not developed the suck reflex yet. As soon as they docs will let you, ask them to start giving your son your breastmilk. You may need to pump your milk and freeze it for the nurses to use when you are not there. The NICU should have a fridge set aside just for this purpose. Zach had a picc line too and it really scared me at first, but it was so much better than seeing the iv sticking out of his head. He still has a scar from that. Good luck! Sara - mommy to Zach 18 months wcf > One other question for those of you whose children had meconium > blockage at birth. My son is being fed intravenously. They will > probably start a picc line soon. My question is when was > breast/bottle feeding started on your children? His doctors want to > wait until after it they can determined that he had passed all of the > meconium to start his feedings. Thanks > > Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 I am a NICU nurse as well as mom of a baby who had a mec. ileus. My son required surgery and started feeding about five days after his surgery. When your son starts feeding varies greatly with docs but after he's passed most of his stool usually withing 3-5 days on a baby who isn't being fed- he will slowly start to eat. After about a day of going slowly assuming he is doing well and xrays look okay they will probably advance him quickly and then allow you to breastfeed him on demand. Make sure they know how to give the enzymes too, with they tried putting a day's worth of enzymes in a bottle and just feeding him from that!!! Since CF is often a diagnosis that isn't made in the newborn period NICU nurses can be ignorant about giving enzymes and are especially reluctant to start them on a spoon of applesauce. Tina mom to Zoe 3 no cf and 20mo w/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Tina's post reminded me of the enzyme issues we faced in the NICU. She's right. Our experience was that most - no wait - none of the NICU nurses knew how to care for a baby diagnosed with CF. They tried putting the enzymes on a spoon mixed with applesauce and our daughter gagged. She didn't have the reflex that allowed her to move food from the front to the back. I've read that this usually develops around 4 months. Anyway, what did finally work for us was to mix 1/2 cap of Pancrecarb 4's in a med cup with bananas. We then spooned it into the back end of a syringe. We found that attaching a cut off feeding tube to the end of the syringe allowed us to get the enzymes back further into our daughters mouth. We would push a little of the mixture to the side of her tongue and *quickly* insert her pacifier to suck it all down. It's best to ensure that enzymes are not left in her mouth as they can cause the mucous membranes to break down. Also, consider using criticade on Jack's bottom as a precaution as the enzymes sometimes pass in stool and can wreak havoc down there too. One last thought... If you're in the NICU for any length of time, request a primary nurse. Once we finally got a few primary's, our daughter had much better care. Donna mom to Mikayla 9 months (7 months adjusted mom who dislikes the term " CFer " theses kids are our kids - not to be known AS their diagnosis... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 my son had a colostomy at 12 hrs old due to meconium ilius, he was fed iv of breastmilk from 1 week on,i pumped like crazy!i first got to breast feed on mothers day ,he was born 4/27/01,we also had picc lines as he would blow a couple veins a day.good luck, Amy mom to 28 months and starting to potty train and he his doing great! >Fromm: " swellingston " >Reply-To: cfparents >To: cfparents >Subject: Meconium Illeus >Date: Thu, 28 Aug 2003 05:04:05 -0000 > >One other question for those of you whose children had meconium >blockage at birth. My son is being fed intravenously. They will >probably start a picc line soon. My question is when was >breast/bottle feeding started on your children? His doctors want to >wait until after it they can determined that he had passed all of the >meconium to start his feedings. Thanks > >Sharon > > > >------------------------------------------- >The opinions and information exchanged on this list should IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > >------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 my son had a colostomy at 12 hrs old due to meconium ilius, he was fed iv of breastmilk from 1 week on,i pumped like crazy!i first got to breast feed on mothers day ,he was born 4/27/01,we also had picc lines as he would blow a couple veins a day.good luck, Amy mom to 28 months and starting to potty train and he his doing great! >Fromm: " swellingston " >Reply-To: cfparents >To: cfparents >Subject: Meconium Illeus >Date: Thu, 28 Aug 2003 05:04:05 -0000 > >One other question for those of you whose children had meconium >blockage at birth. My son is being fed intravenously. They will >probably start a picc line soon. My question is when was >breast/bottle feeding started on your children? His doctors want to >wait until after it they can determined that he had passed all of the >meconium to start his feedings. Thanks > >Sharon > > > >------------------------------------------- >The opinions and information exchanged on this list should IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > >------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Colgan didn't eat on his own for 8 days. It was all IV. Hang in there I know it is tough but he will do just fine. MY wishes are with you Ashauna Quote Link to comment Share on other sites More sharing options...
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