Re: [SPAM] What do my numbers mean?

February 24, 2009

Your son has Brachycephaly which is measured by the

Cephalic Index which is the Cranial Breadth/Cranial Length - in your case, 93%

ideal ratio - 78%

normal - 73-83%

moderate - 83.1% to 87.9%

severe - 88% and higher

6 mm of plagio would be considered mild.

Molly

Novato, California

Nicolas, 3, tort & plagio, STARband (CIRS Oakland)

4/24/06-9/12/06, Graduate!

, 6

, 9

From: Plagiocephaly

[mailto:Plagiocephaly ] On Behalf Of Levin

Sent: 24 February 2009 07:33

Plagiocephaly

Subject: [sPAM] What do my numbers mean?

My son Zev is 9 months. I have recently posted many

questions bc I am new to this site and pretty overwhelmed.

I just spoke to NOPCO, Children's Hospital Philly where he

was fitted and they told me that these were his numbers: FYI Zev has a

HUGE head. He is greater than 95% and off the charts

cephalic ratio or 93%. She told me that they like to

see it in the mid 80s

diagonal asymetry is 6 mm.

What does this mean?

Missy,

Mother of Zev, helmet 2/23/09

From:

<nwilkens2275@...>

Subject: Re: question about NOPCO-Philiadelphia

Plagiocephaly

Date: Tuesday, February 24, 2009, 10:16 AM

Please don't stress!

Unfortunately, I can't help with NOPCO Philly,

I can't remember anyone who has used them (that doesn't mean they

haven't!). But I added Philly to the subject line so hopefully it

will stand out to someone and you'll get some good feedback. I hope

someone can respond that has used them first-hand.

Hang in there!

Jake-2 (DOCBand Grad 9/08)

Jordan-5

> From: Jen <JenandLuli@ ...>

> Subject: Re: nervous and confused in Boston

> Plagiocephaly@

groups. com

> Date: Monday, February 23, 2009, 10:51 PM

>

> I didn;t use that band so I can;t really speak

from experience with them... But you can p a search thru all the ol

messages with the keyword NOPCO. I know alot of discussion has gone

on in the past.

>

> Jen and Luli - 3 years old

>

> Left tort - Right Plagio - Hanger Band Grad - CA

>

> http://www.babieson

line.com/ babies/j/ jens5th/

>

> nervous and confused in Boston

>

> We got my son's helmet on Wednesday but waited until today to

>

> start. We got it from NOPCO at Chidren's Hospital in Boston. There

>

> they use a laser scan to get a 3D image of his head and then build

>

> the band from that.

>

> So during the practice wear I noticed there was an uneven side and

>

> went to have it shaved down at the NOPCO in the Burlington office

>

> because it was much closer to me. They had no wait and so

>

> consequently I switched all my followup apppointments there. But I

>

> got some info and the Burlington office typicaly casts the

fittingt

>

> and doesn't use a laser... They are just upgrading their

technoloyg

>

> right now and have started to use the lazer. I asked what the

scans

>

> are used for and I was told that the scans are not used for

anything

>

> but showing progress to the parent and not for any data collection

>

> or custom making of the helmet.

>

> I then talked with the orthoist from Boston and she said that I

got

>

> misinformation because they use the scan in conjunction with a

>

> machine that carves out a 3D model from the scan out of foam.

>

> Supposedly the techs modifiy it to make it more round and pull the

>

> foam and plastic over it. It's also used for data collection.

>

> So now I don't know what to do or what to believe and I just want

>

> someone to tell me what to do but no one will because my family

>

> isn't really pro band and they're questiong why was it so uneven

if

>

> it's really " custom " machine made? I'm sort of asking msyelf

that

>

> question too. I definitely want to do it, and not regret it later

on

>

> but I'm just stressed out.

>

> Is there anyone from the Boston area who has sucessfully used

NOPCO

>

> at Childrens or Burlington? I just need some advice... Which

>

> orthoist did you have?

>

> Thanks

>

> Access 350+ FREE radio stations anytime from anywhere on the web.

Get the Radio Toolbar!

>

February 24, 2009

Well it seems my son has brachy as well and very mild plagio from rading this. To me his head is flat and then you can also are the diagonal flatness which makes it asymmetrical. Can someone comment on our numbers? His w/l is 96%. Is it just a simple ratio for the cranial index? Why wouldn't they tell me that. I was told the official diagnosis is plagio. 2/5/09: circumference=45.8 cm, width=13.4, length=13.9, right front to left back=14.5, left front to right back=14(this means a cranial vault index of 5 mm, which is mild)2/18/09: circ.=45.8, width=13.5, length=13.9, right front to left=14.6, left front to right=14(this is a cranial vault index of 4 mm)From: "Foley, Molly" Date: Tue, 24 Feb 2009 08:10:11 -0800<Plagiocephaly >Subject: RE: [sPAM] What do my numbers mean? Your son has Brachycephaly which is measured by the Cephalic Index which is the Cranial Breadth/Cranial Length - in your case, 93% ideal ratio - 78% normal - 73-83% moderate - 83.1% to 87.9% severe - 88% and higher 6 mm of plagio would be considered mild. Molly Novato, California Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6 , 9 From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of LevinSent: 24 February 2009 07:33Plagiocephaly Subject: [sPAM] What do my numbers mean? My son Zev is 9 months. I have recently posted many questions bc I am new to this site and pretty overwhelmed. I just spoke to NOPCO, Children's Hospital Philly where he was fitted and they told me that these were his numbers: FYI Zev has a HUGE head. He is greater than 95% and off the charts cephalic ratio or 93%. She told me that they like to see it in the mid 80s diagonal asymetry is 6 mm. What does this mean? Missy, Mother of Zev, helmet 2/23/09 From: <nwilkens2275 > Subject: Re: question about NOPCO-Philiadelphia Plagiocephaly Date: Tuesday, February 24, 2009, 10:16 AM Please don't stress! Unfortunately, I can't help with NOPCO Philly, I can't remember anyone who has used them (that doesn't mean they haven't!). But I added Philly to the subject line so hopefully it will stand out to someone and you'll get some good feedback. I hope someone can respond that has used them first-hand. Hang in there! Jake-2 (DOCBand Grad 9/08) Jordan-5 > From: Jen <JenandLuli@ ...> > Subject: Re: nervous and confused in Boston > Plagiocephaly > Date: Monday, February 23, 2009, 10:51 PM > > > > > > > > > > > > > I didn;t use that band so I can;t really speak from experience with them... But you can p a search thru all the ol messages with the keyword NOPCO. I know alot of discussion has gone on in the past. > > > > > > Jen and Luli - 3 years old > > Left tort - Right Plagio - Hanger Band Grad - CA > > http://www.babieson line.com/ babies/j/ jens5th/ > > > > > nervous and confused in Boston > > > > > > > > > > > > > > We got my son's helmet on Wednesday but waited until today to > > start. We got it from NOPCO at Chidren's Hospital in Boston. There > > they use a laser scan to get a 3D image of his head and then build > > the band from that. > > > > So during the practice wear I noticed there was an uneven side and > > went to have it shaved down at the NOPCO in the Burlington office > > because it was much closer to me. They had no wait and so > > consequently I switched all my followup apppointments there. But I > > got some info and the Burlington office typicaly casts the fittingt > > and doesn't use a laser... They are just upgrading their technoloyg > > right now and have started to use the lazer. I asked what the scans > > are used for and I was told that the scans are not used for anything > > but showing progress to the parent and not for any data collection > > or custom making of the helmet. > > > > I then talked with the orthoist from Boston and she said that I got > > misinformation because they use the scan in conjunction with a > > machine that carves out a 3D model from the scan out of foam. > > Supposedly the techs modifiy it to make it more round and pull the > > foam and plastic over it. It's also used for data collection. > > > > So now I don't know what to do or what to believe and I just want > > someone to tell me what to do but no one will because my family > > isn't really pro band and they're questiong why was it so uneven if > > it's really " custom " machine made? I'm sort of asking msyelf that > > question too. I definitely want to do it, and not regret it later on > > but I'm just stressed out. > > > > Is there anyone from the Boston area who has sucessfully used NOPCO > > at Childrens or Burlington? I just need some advice... Which > > orthoist did you have? > > > > Thanks > > > > > > > > > > > > > > > > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! >

February 24, 2009

You are correct, your son does have brachy, much more than plagio.

2/5 - brachy = cranial width/cranial length - 13.4/13.9=96%

plagio=right front to left back - left front to right back - 14.5-14

= .5 cm or 5 mm

2/18 - brachy = cranial width/cranial length - 13.5/13.9=97%

plagio=right front to left back - left front to right back - 14.6-14

= .6 cm or 6 mm

Brachycephaly Severity:

ideal ratio - 78%

normal - 73-83%

moderate - 83.1% to 87.9%

severe - 88% and higher

Plagio Severity:

0-3 mm is normal

<6 mm is very mild

6-10 mm is mild

10-15 mm is moderate

15+ mm is severe

Is your child in a band yet? If so, what kind?

Molly

Novato, California

Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 6

, 9

> > From: Jen <JenandLuli@ ...>

> > Subject: Re: nervous and confused in Boston

> > Plagiocephaly@ <mailto:Plagiocephaly%40>

groups.

> com

> > Date: Monday, February 23, 2009, 10:51 PM

> >

> > I didn;t use that band so I can;t really speak

> from experience with them... But you can p a search thru all the ol

> messages with the keyword NOPCO. I know alot of discussion has

gone

> on in the past.

> >

> > Jen and Luli - 3 years old

> >

> > Left tort - Right Plagio - Hanger Band Grad - CA

> >

> > http://www.babieson <http://www.babieson/> line.com/ babies/j/

jens5th/

> >

> > nervous and confused in Boston

> >

> > We got my son's helmet on Wednesday but waited until today to

> >

> > start. We got it from NOPCO at Chidren's Hospital in Boston.

There

> >

> > they use a laser scan to get a 3D image of his head and then

build

> >

> > the band from that.

> >

> > So during the practice wear I noticed there was an uneven side

and

> >

> > went to have it shaved down at the NOPCO in the Burlington office

> >

> > because it was much closer to me. They had no wait and so

> >

> > consequently I switched all my followup apppointments there. But

I

> >

> > got some info and the Burlington office typicaly casts the

> fittingt

> >

> > and doesn't use a laser... They are just upgrading their

> technoloyg

> >

> > right now and have started to use the lazer. I asked what the

> scans

> >

> > are used for and I was told that the scans are not used for

> anything

> >

> > but showing progress to the parent and not for any data

collection

> >

> > or custom making of the helmet.

> >

> > I then talked with the orthoist from Boston and she said that I

> got

> >

> > misinformation because they use the scan in conjunction with a

> >

> > machine that carves out a 3D model from the scan out of foam.

> >

> > Supposedly the techs modifiy it to make it more round and pull

the

> >

> > foam and plastic over it. It's also used for data collection.

> >

> > So now I don't know what to do or what to believe and I just want

> >

> > someone to tell me what to do but no one will because my family

> >

> > isn't really pro band and they're questiong why was it so uneven

> if

> >

> > it's really " custom " machine made? I'm sort of asking msyelf that

> >

> > question too. I definitely want to do it, and not regret it later

> on

> >

> > but I'm just stressed out.

> >

> > Is there anyone from the Boston area who has sucessfully used

> NOPCO

> >

> > at Childrens or Burlington? I just need some advice... Which

> >

> > orthoist did you have?

> >

> > Thanks

> >

> > Access 350+ FREE radio stations anytime from anywhere on the web.

> Get the Radio Toolbar!

> >

>

February 24, 2009

He just started today with a Boston band from Nopco at Childrens in Boston. The orthoist said The Star Band is the same type of helmet as the Boston Band, it is just made by another company. They used to use them before they started making their own.From: "moligan2001" Date: Tue, 24 Feb 2009 17:08:14 -0000<Plagiocephaly >Subject: Re: [sPAM] What do my numbers mean? You are correct, your son does have brachy, much more than plagio. 2/5 - brachy = cranial width/cranial length - 13.4/13.9=96% plagio=right front to left back - left front to right back - 14.5-14 = .5 cm or 5 mm 2/18 - brachy = cranial width/cranial length - 13.5/13.9=97% plagio=right front to left back - left front to right back - 14.6-14 = .6 cm or 6 mm Brachycephaly Severity: ideal ratio - 78% normal - 73-83% moderate - 83.1% to 87.9% severe - 88% and higher Plagio Severity: 0-3 mm is normal <6 mm is very mild 6-10 mm is mild 10-15 mm is moderate 15+ mm is severe Is your child in a band yet? If so, what kind? Molly Novato, California Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 6 , 9 > > From: Jen <JenandLuli@ ...> > > Subject: Re: nervous and confused in Boston > > Plagiocephaly@ <mailto:Plagiocephaly%40> groups. > com > > Date: Monday, February 23, 2009, 10:51 PM > > > > > > > > > > > > > > > > > > > > > > > > > > I didn;t use that band so I can;t really speak > from experience with them... But you can p a search thru all the ol > messages with the keyword NOPCO. I know alot of discussion has gone > on in the past. > > > > > > > > > > > > Jen and Luli - 3 years old > > > > Left tort - Right Plagio - Hanger Band Grad - CA > > > > http://www.babieson <http://www.babieson/> line.com/ babies/j/ jens5th/ > > > > > > > > > > nervous and confused in Boston > > > > > > > > > > > > > > > > > > > > > > > > > > > > We got my son's helmet on Wednesday but waited until today to > > > > start. We got it from NOPCO at Chidren's Hospital in Boston. There > > > > they use a laser scan to get a 3D image of his head and then build > > > > the band from that. > > > > > > > > So during the practice wear I noticed there was an uneven side and > > > > went to have it shaved down at the NOPCO in the Burlington office > > > > because it was much closer to me. They had no wait and so > > > > consequently I switched all my followup apppointments there. But I > > > > got some info and the Burlington office typicaly casts the > fittingt > > > > and doesn't use a laser... They are just upgrading their > technoloyg > > > > right now and have started to use the lazer. I asked what the > scans > > > > are used for and I was told that the scans are not used for > anything > > > > but showing progress to the parent and not for any data collection > > > > or custom making of the helmet. > > > > > > > > I then talked with the orthoist from Boston and she said that I > got > > > > misinformation because they use the scan in conjunction with a > > > > machine that carves out a 3D model from the scan out of foam. > > > > Supposedly the techs modifiy it to make it more round and pull the > > > > foam and plastic over it. It's also used for data collection. > > > > > > > > So now I don't know what to do or what to believe and I just want > > > > someone to tell me what to do but no one will because my family > > > > isn't really pro band and they're questiong why was it so uneven > if > > > > it's really " custom " machine made? I'm sort of asking msyelf that > > > > question too. I definitely want to do it, and not regret it later > on > > > > but I'm just stressed out. > > > > > > > > Is there anyone from the Boston area who has sucessfully used > NOPCO > > > > at Childrens or Burlington? I just need some advice... Which > > > > orthoist did you have? > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Access 350+ FREE radio stations anytime from anywhere on the web. > Get the Radio Toolbar! > > >

February 25, 2009

Yes, you are right about the ratios. As for the terms, I was originally told that had plagio and even our referral to the specialist said so. I wonder if plagio is kind of the generic term that some use to describe any shape abnormalities in the head. You would think that the specialist would give you the correct term. That's where we heard it first. To this day, the ped refers to it as plagio.

, mom to , 18 months

14 weeks in STARband plus CST

land nervous and confused in Boston> > > > > > > > > > > > > > We got my son's helmet on Wednesday but waited until today to > > start. We got it from NOPCO at Chidren's Hospital in Boston. There > > they use a laser scan to get a 3D image of his head and then build > > the band from that. > > > > So during the practice wear I noticed there was an uneven side and > > went to have it shaved down at the NOPCO in the Burlington office > > because it was much closer to me. They had no wait and so > > consequently I switched all my followup apppointments there. But I > > got some info and the Burlington office typicaly casts the fittingt > > and doesn't use a laser... They are just upgrading their technoloyg > > right now and have started to use the lazer. I asked what the scans > > are used for and I was told that the scans are not used for anything > > but showing progress to the parent and not for any data collection > > or custom making of the helmet. > > > > I then talked with the orthoist from Boston and she said that I got > > misinformation because they use the scan in conjunction with a > > machine that carves out a 3D model from the scan out of foam. > > Supposedly the techs modifiy it to make it more round and pull the > > foam and plastic over it. It's also used for data collection. > > > > So now I don't know what to do or what to believe and I just want > > someone to tell me what to do but no one will because my family > > isn't really pro band and they're questiong why was it so uneven if > > it's really "custom" machine made? I'm sort of asking msyelf that > > question too. I definitely want to do it, and not regret it later on > > but I'm just stressed out. > > > > Is there anyone from the Boston area who has sucessfully used NOPCO > > at Childrens or Burlington? I just need some advice... Which > > orthoist did you have? > > > > Thanks> > > > > > > > > > > > > > > > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!>

February 25, 2009

I called my dr and orthotist and was told that they use plagio as all encompassing diagnosis and I even got a Greek eytmology lesson from them. What bugs me is that even tho the plagio, as we use it on this group, is mild, the brachy is severe and no one addressed that at my consult. I'm just going to keep repeating myself to them to get them to tell me that they are addressing both issues. We've been in the band for 12 hours now. From: melanie.watson@...Date: Wed, 25 Feb 2009 12:21:50 +0000 (UTC)<Plagiocephaly >Subject: Re: [sPAM] What do my numbers mean? Yes, you are right about the ratios. As for the terms, I was originally told that had plagio and even our referral to the specialist said so. I wonder if plagio is kind of the generic term that some use to describe any shape abnormalities in the head. You would think that the specialist would give you the correct term. That's where we heard it first. To this day, the ped refers to it as plagio. , mom to , 18 months14 weeks in STARband plus CSTland nervous and confused in Boston> > > > > > > > > > > > > > We got my son's helmet on Wednesday but waited until today to > > start. We got it from NOPCO at Chidren's Hospital in Boston. There > > they use a laser scan to get a 3D image of his head and then build > > the band from that. > > > > So during the practice wear I noticed there was an uneven side and > > went to have it shaved down at the NOPCO in the Burlington office > > because it was much closer to me. They had no wait and so > > consequently I switched all my followup apppointments there. But I > > got some info and the Burlington office typicaly casts the fittingt > > and doesn't use a laser... They are just upgrading their technoloyg > > right now and have started to use the lazer. I asked what the scans > > are used for and I was told that the scans are not used for anything > > but showing progress to the parent and not for any data collection > > or custom making of the helmet. > > > > I then talked with the orthoist from Boston and she said that I got > > misinformation because they use the scan in conjunction with a > > machine that carves out a 3D model from the scan out of foam. > > Supposedly the techs modifiy it to make it more round and pull the > > foam and plastic over it. It's also used for data collection. > > > > So now I don't know what to do or what to believe and I just want > > someone to tell me what to do but no one will because my family > > isn't really pro band and they're questiong why was it so uneven if > > it's really "custom" machine made? I'm sort of asking msyelf that > > question too. I definitely want to do it, and not regret it later on > > but I'm just stressed out. > > > > Is there anyone from the Boston area who has sucessfully used NOPCO > > at Childrens or Burlington? I just need some advice... Which > > orthoist did you have? > > > > Thanks> > > > > > > > > > > > > > > > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar!>

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