Re: What do my numbers mean?

[Guest guest]

He has brachy with mild plagio. My daughter's numbers were 4.5 mm and

96% at starting. She graduated at 3.5mm and 85%. We weren't worried

about her asymmetry since it was very mild. You can see pictures in

the photos section at Our Plagio Babies S/Sydney M. She has a giant

head too, which can contribute to brachy (all that growth while they

are resting on their head). At one point they were worried about

hydrocephalus because her head went from 50th percentile to over

90th, but it wasn't a problem. Her height and weight are 90th plus

too, so her head was catching up.

-christine

sydney, 3 yrs, starband grad

> > From: Jen <JenandLuli@ ...>

> > Subject: Re: nervous and confused in Boston

> > Plagiocephaly

> > Date: Monday, February 23, 2009, 10:51 PM

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> > I didn;t use that band so I can;t really speak

> from experience with them... But you can p a search thru all the ol

> messages with the keyword NOPCO.  I know alot of discussion has

gone

> on in the past.

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> >  Jen and Luli - 3 years old

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> > Left tort - Right Plagio - Hanger Band Grad - CA

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> > http://www.babieson line.com/ babies/j/ jens5th/

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> > nervous and confused in Boston

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> > We got my son's helmet on Wednesday but waited until today to

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> > start. We got it from NOPCO at Chidren's Hospital in Boston.

There

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> > they use a laser scan to get a 3D image of his head and then

build

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> > the band from that.

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> > So during the practice wear I noticed there was an uneven side

and

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> > went to have it shaved down at the NOPCO in the Burlington office

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> > because it was much closer to me. They had no wait and so

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> > consequently I switched all my followup apppointments there. But

I

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> > got some info and the Burlington office typicaly casts the

> fittingt

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> > and doesn't use a laser... They are just upgrading their

> technoloyg

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> > right now and have started to use the lazer. I asked what the

> scans

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> > are used for and I was told that the scans are not used for

> anything

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> > but showing progress to the parent and not for any data

collection

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> > or custom making of the helmet.

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> > I then talked with the orthoist from Boston and she said that I

> got

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> > misinformation because they use the scan in conjunction with a

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> > machine that carves out a 3D model from the scan out of foam.

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> > Supposedly the techs modifiy it to make it more round and pull

the

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> > foam and plastic over it. It's also used for data collection.

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> > So now I don't know what to do or what to believe and I just want

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> > someone to tell me what to do but no one will because my family

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> > isn't really pro band and they're questiong why was it so uneven

> if

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> > it's really " custom " machine made? I'm sort of asking msyelf that

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> > question too. I definitely want to do it, and not regret it later

> on

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> > but I'm just stressed out.

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> > Is there anyone from the Boston area who has sucessfully used

> NOPCO

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> > at Childrens or Burlington? I just need some advice... Which

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> > orthoist did you have?

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> > Thanks

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