Re : Diane-those who just don't get it.

[Guest guest]

Hello all,

How perfectly and Jeannine have expressed our dilemma. I am

lucky in that I have nobody in my life who apparently doubts that I

often feel very ill, in pain etc. That goes for my family, friends

and colleagues. Despite that, I know it must appear very odd to many

of them. How can somebody who seems so well at times, suddenly

change? I also suspect that some of them think I should just have

the total pancreatectomy I have been offered (NOT pressed into

having) by my specialist and be done with it. I,of course, know that

it's not that simple! People do see me when I am grey with pain so I

know they believe that part but nobody who is not very close to you

can fully understand the difficulties and diappointments of living

with this condition.

Thanks for saying so eloquently what needs to be said!

Best wishes,

Fliss