Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 This is from my other CF group. He is a very nice guy, I believe he is 25 but I'm not 100% sure. He has been waiting for a very long time for this tx x 3. We are all very happy for him, he was really needing this. He has pictures posted at the other group if you want to put a face to the name. http://groups.msn.com/cysticfibrosis2chat is the address and his name there is Gremlin. I'm keeping my fingers and toes crossed for him (though that might make it hard to walk) triple transplant Australia's first triple transplant was done yesterday (heart,liver,lungs). It was Brisbane. He is either 25 or 27, two newspapers had conflicting ages. Fingers crossed for his recovery, and those who pray please remember him. (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 Hi to all, Yes I have only been lurking for a while but the wonderful news of this fellow having these transplants has brought the issues of life to our family. Because it was in the newspaper here I decided it was best to bring it to Ainslie's attention (she is nearly 11) so as to be able to answer any questions she may have before she was possibly questioned about it at school. We have never hid cf, she has even done talks about it to her class. But this is different. I was concerned that some kids may be mean, as we know they all have the potential. Anyway when I showed her the article and explained what he had been through and why she flattly said " that won't happen to me. " Then I proceeded to - very carefully - explain that it could, or something similiar. Reinforcing that if she looks after herself, continues to exercise, take all her meds etc she should be ok, but also explained that fate may have other ideas. After that she didn't want to talk about it again. I felt awful, I have never wanted to deal with this with her, never known when the right time should be. I hope that I have done the right thing. At least she can answer any questions with " I should be fine " or mum said ..... Hope all are well Terri from Hobart mum to Ainslie 10 3/4 wcf and Connor 6 3/4 nocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 Well you sure did handle that extremely well -in my opinion. She would have thought up all kinds of things & it would really have scared the begebers out of her. I am sure she will think to herself about this , & in time , perhaps speak to someone about it ...Maybe at clinic. You might mention to the MSW at clinic about what happened. You did very well MOMMY LOVE & HUGS, grandmomBEV Triple transplant Hi to all, Yes I have only been lurking for a while but the wonderful news of this fellow having these transplants has brought the issues of life to our family. Because it was in the newspaper here I decided it was best to bring it to Ainslie's attention (she is nearly 11) so as to be able to answer any questions she may have before she was possibly questioned about it at school. We have never hid cf, she has even done talks about it to her class. But this is different. I was concerned that some kids may be mean, as we know they all have the potential. Anyway when I showed her the article and explained what he had been through and why she flattly said " that won't happen to me. " Then I proceeded to - very carefully - explain that it could, or something similiar. Reinforcing that if she looks after herself, continues to exercise, take all her meds etc she should be ok, but also explained that fate may have other ideas. After that she didn't want to talk about it again. I felt awful, I have never wanted to deal with this with her, never known when the right time should be. I hope that I have done the right thing. At least she can answer any questions with " I should be fine " or mum said ..... Hope all are well Terri from Hobart mum to Ainslie 10 3/4 wcf and Connor 6 3/4 nocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Hi Terri, I have been off the loop for a while but I had to write to your post, because I also have a pre-teen with cf, a just turned 10. But, these are my thoughts, when we become parents, we do not get a hand book with directions of how to raise and handle our kids. In our case our package came with complications, cf. In my point of view teenagers are fearless, pre-teens are even more so. I think you did right, and my reasoning is, since all of this is happening around you all, she is aware, my a always ask a thousand and one questions. So I think you had a golden opportunity to explain to her and make her think about her vulnerability, the same way that we talk to them about smoking and drinking. Don't feel bad you did right!! mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > Well you sure did handle that extremely well -in my opinion. She would have > thought up all kinds of things & it would really have scared the begebers > out of her. I am sure she will think to herself about this , & in time , > perhaps speak to someone about it ...Maybe at clinic. You might mention to > the MSW at clinic about what happened. You did very well MOMMY > > LOVE & HUGS, grandmomBEV > > Triple transplant > > > Hi to all, > > Yes I have only been lurking for a while but the wonderful news of this > fellow having these transplants has brought the issues of life to our > family. > > Because it was in the newspaper here I decided it was best to bring it > to Ainslie's attention (she is nearly 11) so as to be able to answer any > questions she may have before she was possibly questioned about it at > school. We have never hid cf, she has even done talks about it to her > class. But this is different. I was concerned that some kids may be > mean, as we know they all have the potential. > > Anyway when I showed her the article and explained what he had been > through and why she flattly said " that won't happen to me. " Then I > proceeded to - very carefully - explain that it could, or something > similiar. Reinforcing that if she looks after herself, continues to > exercise, take all her meds etc she should be ok, but also explained > that fate may have other ideas. After that she didn't want to talk > about it again. > > I felt awful, I have never wanted to deal with this with her, never > known when the right time should be. I hope that I have done the right > thing. At least she can answer any questions with " I should be fine " or > mum said ..... > > Hope all are well > > Terri > from Hobart mum to Ainslie 10 3/4 wcf and Connor 6 3/4 nocf > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
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