Re: free cystic fibrosis cookbook

[Guest guest]

In a message dated 6/25/2003 3:22:15 PM Central Daylight Time,

onespleasure@... writes:

> Hi all, there is a cookbook, its called fat and loving it, a cookbook

> written

> for the individual with cystic fibrosis. I received it for free through

> Solvay,

What is Solvay? Deb A

[Guest guest]

Slovay is the company that makes creon enzymes.

Re: free cystic fibrosis cookbook

In a message dated 6/25/2003 3:22:15 PM Central Daylight Time,

onespleasure@... writes:

> Hi all, there is a cookbook, its called fat and loving it, a cookbook

> written

> for the individual with cystic fibrosis. I received it for free through

> Solvay,

What is Solvay? Deb A

[Guest guest]

They are the makers of CREON..........an enzyme. very popular one, In fact

, the # one seller in the world...........They really do allot for the CF

community too

You can order on their web site too .www.solvay.com

Love & hugs,

grandmomBEV

Re: free cystic fibrosis cookbook

In a message dated 6/25/2003 3:22:15 PM Central Daylight Time,

onespleasure@... writes:

> Hi all, there is a cookbook, its called fat and loving it, a cookbook

> written

> for the individual with cystic fibrosis. I received it for free through

> Solvay,

What is Solvay? Deb A

[Guest guest]

The book is what I meant to order from their web site (sorry). The gal who

did them , has been doing CF for 18 years I know of .She is terrific. I have

some from her from when MY grandaugtger was born.

L & H, GRDMBEV

Re: free cystic fibrosis cookbook

In a message dated 6/25/2003 3:22:15 PM Central Daylight Time,

onespleasure@... writes:

> Hi all, there is a cookbook, its called fat and loving it, a cookbook

> written

> for the individual with cystic fibrosis. I received it for free through

> Solvay,

What is Solvay? Deb A

[Guest guest]

I have Fat and Loving It.

It was made free by the makers of Pancreacarb - Digestive Care. I am not sure

you can still get the book for free.

JOanne

> >Hi all, there is a cookbook, its called fat and loving it, a cookbook

> >written

> >for the individual with cystic fibrosis. I received it for free through

> >Solvay,

>

> What is Solvay? Deb A

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of:

http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

Grandma Bev,

Thanks for doing the " foot work " for this. It was going to take me days to

find my info.

Have a great Tuesday

Joanne

>

> At one time it was made by DCI for distribution from the CF Centers.

> They also handed them out at conferences (ED DAYS from the various

> centers that still hold them You might go straight to them and ask Call

> directly to Gorman

> Asst. Marketing Mgr.

> 1- ask her how you can get .OR will she send you one:)

> THEIR EMAIL ADDY IS www.digestivecare.com tell her I suggested you call

> her.

> She is very nice & will refer you OR send.

>

> I was doing some digging and found Wayyyyyyyyyy BACK at least 10 years

> ago . My friend who wrote " Fat & loving it .GAIL FARMER,M.S,R.D wrote

> that with Sherri Willcox. It could be ordered then from her at p.o. Box

> 5127 they sold then for 10.00 +2.00 postage. I AM SURE THAT IS NOT

> TODAY'S cost................. Gail works for Kaiser CF Ctr. In

> CA........... She is VERY well informed in the person, (regardless of

> age) with CF, needs ..

>

> I would first try the DCI folks. good luck ,best wishes...........

>

> LOVE & HUGS,

> GrandmomBEV

>

> -----Original Message-----

> From: luckylungsforjo@...

> Sent: Tuesday, July 08, 2003 2:40 PM

> To: cfparents

>

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of:

http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

At one time it was made by DCI for distribution from the CF Centers.

They also handed them out at conferences (ED DAYS from the various

centers that still hold them You might go straight to them and ask Call

directly to Gorman

Asst. Marketing Mgr.

1- ask her how you can get .OR will she send you one:)

THEIR EMAIL ADDY IS www.digestivecare.com tell her I suggested you call

her.

She is very nice & will refer you OR send.

I was doing some digging and found Wayyyyyyyyyy BACK at least 10 years

ago . My friend who wrote " Fat & loving it .GAIL FARMER,M.S,R.D wrote

that with Sherri Willcox. It could be ordered then from her at p.o. Box

5127 they sold then for 10.00 +2.00 postage. I AM SURE THAT IS NOT

TODAY'S cost................. Gail works for Kaiser CF Ctr. In

CA........... She is VERY well informed in the person, (regardless of

age) with CF, needs ..

I would first try the DCI folks. good luck ,best wishes...........

LOVE & HUGS,

GrandmomBEV

Re: free cystic fibrosis cookbook

I have Fat and Loving It.

It was made free by the makers of Pancreacarb - Digestive Care. I am not

sure

you can still get the book for free.

JOanne

> >Hi all, there is a cookbook, its called fat and loving it, a cookbook

> >written

> >for the individual with cystic fibrosis. I received it for free

through

> >Solvay,

>

> What is Solvay? Deb A

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of: http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

CHECKS OUT TO Gail Farmer.:)

the city & state are Belmont, CA.94002

AT LEAST IT WAS BACK THEN..............

Re: free cystic fibrosis cookbook

I have Fat and Loving It.

It was made free by the makers of Pancreacarb - Digestive Care. I am not

sure

you can still get the book for free.

JOanne

> >Hi all, there is a cookbook, its called fat and loving it, a cookbook

> >written for the individual with cystic fibrosis. I received it for

> >free

through

> >Solvay,

>

> What is Solvay? Deb A

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of: http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

I was just waundering how you contacted them to recieve the cookbook.

after reading you email I tried to go to there website but was not sure where

to begin. Or does you child have to be on their enzymes?

My son 3 wcf is on Pancrease Mt10 but I would like to try some new

recipes that are not dripping with butter, covered in ScandiCal, or Fried. He

is starting to refuse some of the stuff he used to love.(of course some of

that is just because he is three but I know even fruit juice and koolaid has to

have this ScandiCal in it which make the liquid all thick and gritty I probably

wouldn't want it either.)

Always looking for new reicpes,

Kathy

stepmother of Joe 13wocf, 11 wocf and mother of 3 wcf

[Guest guest]

You can also ask your clinic dietian or nurse. They should have some to

give you from the Pharmaceutical company. Good luck

LOVE & HUGS, grandmoMBEV

Re: free cystic fibrosis cookbook

I was just waundering how you contacted them to recieve the cookbook.

after reading you email I tried to go to there website but was not sure

where

to begin. Or does you child have to be on their enzymes?

My son 3 wcf is on Pancrease Mt10 but I would like to try some new

recipes that are not dripping with butter, covered in ScandiCal, or Fried.

He

is starting to refuse some of the stuff he used to love.(of course some of

that is just because he is three but I know even fruit juice and koolaid has

to

have this ScandiCal in it which make the liquid all thick and gritty I

probably

wouldn't want it either.)

Always looking for new reicpes,

Kathy

stepmother of Joe 13wocf, 11 wocf and mother of 3 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Thank you.

Information is always there just sometimes hard to find. I appreciate the

help.

kathy

Stepmother of Joe 13wocf, matthew 11wocf, and mother of 3wcf

[Guest guest]

Glad to help--let's hope it works for you and yours!

Love,

n Rojas, the salty old fool