exercises

[Guest guest]

Hi all,

I second this . One time I told my doctor I just hurt too

much to go for a walk and he looked me in the eye and said " You

gotta do it kid " . So, when ever I don't feel like going for a walk

I just remember what he said and I go out the door. A person needs

to start slowly and before you know it you will increase your

stamina and it gets addictive. I hate it when the weather is cold

or raining and I can't go, but I always get back to it when I can.

It's so good for a person both emotionally and physically.

As for diet, I pretty much eat what I want, try to fix good meals,

but I do have a problem with sweets. Gotta have those peanut butter

cookies! LOL. That was for Heidi.

Love, Marilyn

> I think I may have heard you all groan whenever I have mentioned

how important I think exercise/diet are. But exercising in some way

as a group might be a fun way to get started and keep each other

motivated. You know, if you tell yourself, " I'm going to walk for 1

minute 3 days in a row, and then 2 minutes the next 3 days, you've

just started a progressive exercise program. If walking is not your

thing, you can grab a can of soup and lift it 5 times per arm for 3

days, and build up from there. Since everyone starts at a different

fitness level, your own doctor - when asked - can give you a list of

exercises that take into consideration your physical limitations.

>

> I went to our hospital's Cardio-Pulmonary Rehabilitation Center

and asked them for a copy of their warm-up and cool-down stretches.

These are for people who are starting from scratch after major

surgery. If your breathing is compromised (like mine) they can also

give you a little sheet describing 'pursed lip breathing'.

>

> The benefits are many, but for me exercise is one part of my life

that I can control. With different doctors telling me what to do,

what pills to choke down, get this scanned, have that x-ray'd, I

started feeling like they had taken charge of my life. But

exercising has taken the place of my job and is something I have to

work at. I'm my own personal trainer. The payoff is that my

musculo-skeletal system is staying in shape so that when the RP cure

comes along to repair my cartilege, I'm going to be ready.

>

> If we begin something as a group and are accountable to each

other, we might just stay with it and provide support when we can't

exercise and have to start over again.

>

> Your thoughts/comments?

>

> --

[Guest guest]

Okay, Marilyn, that's 2 of us and that's a start. There are days when I want to

say, " I just can't " and I need the " pointed-toe shoe lady " to kick me in the

butt (you know who you are and I need you).

My RP friends, the RP and/or Wegener's hit me hard and fast. My medical

documentation refers to my case as 'complex, deteriorating status' with 'poor

prognosis'. I've never, ever been able to say those words aloud (denial?). I

look around at my family whom I love so very much and want to cry. But then I

get mad and start stomping around like a crazy woman. Well, that's how I got

started, and I'm now on my 3rd pair of walking shoes and 3 miles a day. It's

the only way I know to fight back.

The medical world has not encouraged me to exercise and I find this

disappointing!

.. At first I took this to mean that maybe they felt it wasn't worth the effort.

But I feel it is, and if not then I'll --- trying. And Marilyn's right: it is

addictive. It also curbs my appetite and I don't feel hungry for hours.

Blah, blah, blah...I've blabbed too much-sorry. Have a Happy Valentine's Day as

you are all sweethearts to me.

--

[Guest guest]

Hi all you

just to tell you that I am joining you in the fitness club:

I try to do my daily 5 - 10 minutes on the hometrainer (bicycle) and

doing my quiet walking every day between 1 and 2 hours.

but the walking I have to do it harder, so I gonna try the nordic waking,

that means faster than ordinary sunday family promenade

ok lets move and be happy

jean