Re: Veroncia

[Guest guest]

--- Harvey wrote:

> Hi Sharon, this is is . That is the test

> box i remember using. From what i understand this

> test measures the flow of air coming in and out of

> your lungs. It can tell if you are having trouble

> doing both. In my case i could get the air in my

> lungs okay but it was releasing air is when i was

> having trouble. There is another test that i have

> taken, it's where you take in your deepest breath

> and then you blow as hard as you can into this tube

> and it registers that. I could only get mine to 150

> and that was really bad. This was back in '98. I

> have a stent and a trach now as you know.

>

> My breathing is fine now. I saw my Pulmy yesterday

> and he said i looked great. He also has 2 new RP

> patients he's treating, both in the Dallas area.

> All together he is treating 4 of us. He was saying

> that a lot of Pulmonary doctors has never seen this

> RP before and they don't know how to treat it.

Great news, . I'm so happy for you. Thanks

for the information also. I am learning as much as I

can because my PCP has never seen another patient with

RP. I didn't see a pulmonary doctor....it was just

done in a procedure room at the PCP's office. I'll

talk to my rheumy about it when I see him next. I

hope things continue to go well for you. Love, squeek

=====

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