Re: HELP-yogurt concerns and questions

July 2, 2006

Hi ,

Thank you for giving us a detailed report. It does seem to me that

your son has very negative reactions to probiotics. Goat yogurt has

a much more powerful probiotic content than the nut yogurt and that

may be why you are seeing a stronger die off reaction.

I remember about one girl who was very irritable after starting the

yogurt and the severe tantrums that lasted for about a month. The

girl recovered from autism and SCD yogurt played a major part in her

recovery.

I want you to stop the yogurt. Instead,I want to see a gradual

introduction to probiotics using the acidophilous powder. There is a

method to gradually build tolerance to probiotics. This method was

developed by a mother whose son could not tolerate neither the

yogurt nor the acidophilous. After a few months,her son was able to

tolerate the yogurt.

This mother also noticed that her son could tolerate the yogurt when

she was visiting the grandparents. She then realized that the mold

in their house was to blame for this situation.

I will send you the protocol for gradually building tolerance to the

probiotics in a couple of hours.

Mimi

..

July 2, 2006

Dearest Kelli, I feel for your problems. It is not fun having a

child that is so high needs and feeling horrible. I know! This is

my advice:

1)Make sure that you are using SCD promoted yogurt starter. With no

strains in it that Elaine did not promote in her BTVC book.

2)If this is ok, try to understand that die off is not fun. But

much needed to break the vicious cycle and help these poor ASD

kids. **Use Activated Charcoal for the affects of die off to see if

some of the behavior problems vanish. Also soak her in a nice warm

tub with Epson Salts. We did this three times a day when cramping,

nausea and vomiting hit! We where all in a fog! It was horrible.

3)It is believed by Elaine that the casein is denatured in the SCD

yogurt so that allergy reactions are not likely. BUT DIE OFF (from

what I have read from old posts) is known to cause all the behavior

problems you mentioned.

4)This transition is dependent on how many illegals you are

accidently ingesting, the degree of sickness and intestinal

imbalance when you arrived to SCD.

We " jumped " into a bowl of yogurt not knowing to go slow (had not

joined pecan bread yet). It caused our little girl a horrilble die

off. She was just miserable. After this 10 days of die off she was

truly a differnt child. It was as if the sun came out. Others may

be getting tired of hering our success so PLEASE contact me off

serve if you NEED MORE HOPE!

This is my take and our experience: The more 100% you are to the

diet and the more you follow the books guide lines, the faster you

will get through this FIRST stage and difficult transistion. WE

often revisit intro diet when we fall into unkown problems. Yet

never have taken the yogurt out. I don't know what you are eating,

but this is something to think about. I honestly can't tell you

what to do with the yogurt but this is our experience.

This first year is full of die off! Not just a few days (like I

once hoped too lol!). Take advantage of the good times, when you

get there! Elaine said that regressions will even occur at 2 to 3

months. This regression was not easy for us. Kiki became so sick

and many behavior regressions. She is OK now though and is

continueing to learn how to talk an is actin more like a typical

child or her age group.

Many have noted about every three to four months that first year.

But it is worth it. I trust that you will feel better soon, try to

remember that " this too shall pass " and hang in there with us!

Again, please contact me if you need a SCD pafriend,

God Bless you on your journey back to health, Antoinette and family

of five/mother to kiki-2 celiac/autistic SCD 2/06

July 2, 2006

Hi Kelli,

I think you've given it a really good shot. If I were you, I think I would stop

now for a while, and see how quickly things return to where they were.

It does seem odd for symptoms to last this long if it is just " die-off " .... and

especially for them to be getting worse.

Of course, it is up to you.... if you think there is anything positive at all

going on at the same time? I think you should follow your instincts... as you

know your child best.

It's interesting that you say he reacted to probiotics last year, in the same

way. What strains were you using then? Just acidophilus?

This is a really tough situation... because you know his gut needs the good

flora. There has got to be a way to get them down there... otherwise you will

never get that good balance. Frustrating for you, I'm sure.

I really do hope you're able to try again before long. I just know so many of

the kids have benefitted greatly from the healing qualities of the yogurt.

best,

Patti

HELP-yogurt concerns and questions

I thought I would continue on a new thread so as to not confuse things.

As I was saying Kai started with 1/8-1/4 teaspoon of walnut yogurt 2 weeks

ago. He had a delayed slight reaction (I think) in that he became a bit more

agitated. After a week I decided to try the goat yogurt (same amount) and

the reaction was much more severe with sinus and coughing problems, severe

behavioral problems, echolalia, and loss of some eye contact. We increased

to about 1 teaspoon.We haven't seen any gains besides maybe better BMs (but

that was more for my daughter who is also trying the yogurt). It has now

been a week on the goat yogurt.a little longer. I would say it has been a

total of 17 days on yogurt (7 on nut and 10 on goat). He skipped yesterday

because we were camping and I lowered the amount this morning to a few

drips.

Could he be reacting to the dairy? Can die-off really last more than 17

days? Shouldn't we be seeing positive results by now? Btw, this would be our

2nd attempt at any sort of probiotics. I tried them last year for about 4-5

days and stopped (bad time and reaction was difficult).

The thing that concerns me the most is that the reaction seems to be getting

worse. The echolalia and spacey-ness is concerning to me too since I would

think wouldn't increase with use.

Thanks in advance.

) KELLI

Kai 3 3/4 (ASD) & Tatum 2 (NT)

SCD since 5/05

July 2, 2006

I think what really concerns me is that casein/dairy really was the biggest

problem for Kai originally. (we did CFfirst then GF before scd last year).

When we tried probiotics, we did the strain that pecanbread lists as legal

on the website (from kirkmans).

I guess I could go back to just nut yogurt and hope that it helps. If he

continues the regression, then I guess it is something different than the

dairy? I just wish I knew what to do (. It is really frustrating.

) KELLI

Kai 3 3/4 (ASD) & Tatum 2 (NT)

SCD since 5/05

Re: HELP-yogurt concerns and questions

Hi Kelli,

I think you've given it a really good shot. If I were you, I think I would

stop now for a while, and see how quickly things return to where they were.

<<original post snipped for length by moderator>>

July 2, 2006

Kelli,

I'm sorry, but I feel that Antoinette's advice here is a bit questionable.

Her family has been on SCD for only a few months, FAR less time than your

son.... yet she's responding as if she is a seasoned veteran. I don't personally

agree with some of what she is telling you here.

Kelli, your situation is a bit more complicated.... and I feel this may be more

than just " die-off " .

I want to go on record as stating that I feel Mimi is absolutely the most

qualified to advise you on what's happening with your son.... so I hope you

will listen most closely to her.

The yogurt is quite powerful stuff.... and I think it's wonderful... but some

have great difficulty tolerating it, for some reason. Mimi has the best approach

and some strategies that may help.

Patti.... list helper-moderator