Re: New to Group and questions

[Guest guest]

Dear Diane

A lot of people have tried oxygen treatment for Autism with success. Let me

have your email and I can send the files I have collected from other groups.

Yours

[ ] New to group and questions

Hello:

I am new to this group and am considering HBOT for my 4 year old son

(autism/mercury toxicity). We're in CT and I was wondering if anyone

has had any success using HBOT in CT for autism? I know there are

several hospitals that have facilities, but only for wound

treatment/critical care.We also have a Naval Research Medical Center

nearby that uses HBOT for navy divers (I'm trying to think outside the

box and look for possible sources). My inpression is that insurance

generally doesn't pay for HBOT because it's experimental (just about

everything medical is experimental for autism, so most treatments

aren't covered). Any feedback is appreciated! Thanks!

Diane

" For as the body without the spirit is dead, so faith without works is dead

also. " [ 2:26]

_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

Join the International Hyperbaric Medical Association

http://www.hyperbaricmedicalassociation.org/docs/JOIN_Friends_Apr04.pdf

EPSDT decisions http://healthlaw.org/pubs/200308.epsdtdocket.html

Unrestricted downloads of 50+ pdf files on HBOT efficacy

medicaid/files/ ,

2/files/ and

http://www.drneubauerhbo.com/papers.htm

Download your state EPSDT program

http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word

" ameliorate " . State Medicaid websites

http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver programs:

http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

Find a hyperbaric clinic http://www.netnet.net/mums/hbolistAK-FL.htm,

http://www.netnet.net/mums/hbolistGA-NC.htm,

http://www.netnet.net/mums/hbolistOH-WI.htm

HBOT can save billions of dollars and millions of heartaches. Subscribe to

by sending a blank email to

mailto:medicaid-subscribe

------------------------------------------------------------------------------

[Guest guest]

Hi Diane,

Welcome to the group. Only free standing centers will treat autism and

neurological deficits. My center is located in PA, right over the border of

NJ. I have had quite a few families from CT. If I can be of help to you feel

free to email or call the center with any questions.

Elaine

www.thejennyrosecenter.com

570-421-3415

Re: [ ] New to group and questions

Dear Diane

A lot of people have tried oxygen treatment for Autism with success. Let

me have your email and I can send the files I have collected from other

groups.

Yours

[ ] New to group and questions

Hello:

I am new to this group and am considering HBOT for my 4 year old son

(autism/mercury toxicity). We're in CT and I was wondering if anyone

has had any success using HBOT in CT for autism? I know there are

several hospitals that have facilities, but only for wound

treatment/critical care.We also have a Naval Research Medical Center

nearby that uses HBOT for navy divers (I'm trying to think outside the

box and look for possible sources). My inpression is that insurance

generally doesn't pay for HBOT because it's experimental (just about

everything medical is experimental for autism, so most treatments

aren't covered). Any feedback is appreciated! Thanks!

Diane

" For as the body without the spirit is dead, so faith without works is

dead also. " [ 2:26]

_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

_.

Join the International Hyperbaric Medical Association

http://www.hyperbaricmedicalassociation.org/docs/JOIN_Friends_Apr04.pdf

EPSDT decisions http://healthlaw.org/pubs/200308.epsdtdocket.html

Unrestricted downloads of 50+ pdf files on HBOT efficacy

medicaid/files/ ,

2/files/ and

http://www.drneubauerhbo.com/papers.htm

Download your state EPSDT program

http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word

" ameliorate " . State Medicaid websites

http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

Find a hyperbaric clinic http://www.netnet.net/mums/hbolistAK-FL.htm,

http://www.netnet.net/mums/hbolistGA-NC.htm,

http://www.netnet.net/mums/hbolistOH-WI.htm

HBOT can save billions of dollars and millions of heartaches. Subscribe

to by sending a blank email to

mailto:medicaid-subscribe

--------------------------------------------------------------------------

----

[Guest guest]

Hi Diane,

try Whole Body Medicine in Trumbull CT - Dr. Adam

Breiner is very knowledgeable about metal toxicity,

and he has monoplace chambers in his clinic. The phone

number is 203-371-8258.

Good luck,

Sunny

--- ddc1026 <steven_cinami@...> wrote:

>

>

> Hello:

> I am new to this group and am considering HBOT for

> my 4 year old son

> (autism/mercury toxicity). We're in CT and I was

> wondering if anyone

> has had any success using HBOT in CT for autism? I

> know there are

> several hospitals that have facilities, but only for

> wound

> treatment/critical care.We also have a Naval

> Research Medical Center

> nearby that uses HBOT for navy divers (I'm trying to

> think outside the

> box and look for possible sources). My inpression

> is that insurance

> generally doesn't pay for HBOT because it's

> experimental (just about

> everything medical is experimental for autism, so

> most treatments

> aren't covered). Any feedback is appreciated!

> Thanks!

> Diane

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

We have Kaiser in Northern California and our band was considered to be

Durable Medical Equipment (DME). The specific Kaiser plan that we had

covered DME at 80%. I know other people with Kaiser and their DME coverage

is 100%. So, check with Kaiser directly and ask them what your DME coverage

is. They may also have a preferred provider. We were referred to a local

STARband provider which was about a half hour from home despite the fact

that we had a Hanger facility 5 minutes away from us.

Molly

Novato, California

Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5

, 8.5

Re: New to Group and questions

Thanks for the reply! It seemed like everyone here knew their

measurements, so I was worried when I wasn't given mine without

calling. In regards to his head shape, I am most concerned about his

forehead bulge and ear asymmetry. I notice it a lot, but all of our

family says they don't see anything!!

Is the DOC band helpful in correcting mild - moderate cases?

Our insurance is Kaiser Flexible Choice. We are allowed to go out of

network. I was told by the CT insurance specialist that they do

participate with Kaiser, but not with my plan (this is disturbing to

me since I have one of the most expensive Kaiser plans). She told me

I would have to file a claim on my own, they would deny it, and then

I would have to appeal it.

> >

> > Hi,

> >

> > I just joined the group after going to an initial consultation at

> CT,

> > where they recommended that my 6.5 month son be put in a band due

> to

> > moderate plagiocephaly. This is after 3 months of physical

> therapy

> > for torticollis (1 time a week) and repositioning. Both my sons

> > pediatrician and physical therapist recommended that he go for a

> > consult.

> >

> > I went for a consult at CT where they told me he's in the

moderate

> > range. After I left I realized that they had not given me the

> exact

> > measurements. I just called to find out and was given a

> measurement

> > of 5mm which I believe was front to back.

> >

> > Is it normal that CT won't volunteer the child's measurements??

> They

> > made it seem like the measurements weren't important. I already

> know

> > that my insurance will not cover the band. I'm extremely

stressed

> > out about whether or not a band will make a significant

difference

> in

> > his head shape.

> >

> > I have posted the pics from his photo study under " Our Plagio

> Babies -

> > A " under the name Adam H. I would really appreciate any advice

> you

> > could give!! Thanks so much.

> >

>

------------------------------------

For more plagio info

[Guest guest]

Hi ,

I saw Adam's pics. I can see his plagio, but it doesn't seem severe

to me. However tort is often an ongoing struggle, so that may

continue to contribute to facial asymmetry (depending to what extent

it is resolved at present). In my mind his head is borderline, and

you could go either way. Banding is really much easier than you

expect, and quickly becomes part of your routine. So if you're not

happy with his head shape now I would definitely recommend it. It

will undoubtable improve his head shape.

As for the numbers CT doesn't always use them. They often go by the

appearance. If you do go forward with banding you can let them know

that you would like measurements.

-christine

sydney 2 yrs starband grad

>

> Hi,

>

> I just joined the group after going to an initial consultation at

CT,

> where they recommended that my 6.5 month son be put in a band due

to

> moderate plagiocephaly. This is after 3 months of physical

therapy

> for torticollis (1 time a week) and repositioning. Both my sons

> pediatrician and physical therapist recommended that he go for a

> consult.

>

> I went for a consult at CT where they told me he's in the moderate

> range. After I left I realized that they had not given me the

exact

> measurements. I just called to find out and was given a

measurement

> of 5mm which I believe was front to back.

>

> Is it normal that CT won't volunteer the child's measurements??

They

> made it seem like the measurements weren't important. I already

know

> that my insurance will not cover the band. I'm extremely stressed

> out about whether or not a band will make a significant difference

in

> his head shape.

>

> I have posted the pics from his photo study under " Our Plagio

Babies -

> A " under the name Adam H. I would really appreciate any advice

you

> could give!! Thanks so much.

>

[Guest guest]

I was very interested in measurements at first too, for the same

reason, eveyone seemed to know theirs. And for me, I really wanted

some concrete number for validation that I was seeing what I thought

I was seeing (doctors kept telling me my son's head would round out

on it's own, and a lot of people didn't notice anything until I

pointed it out to them). So when I asked for the measurements at CT

(15mm of asym), I felt like running to each doctor and yelling " see!

I told you so! " :-P But since then, I've come to learn that you need

to trust your eyes more than the numbers. In fact, once you start

treatment at CT, the only measurement they take at each adjustment

is head circumference, to see how much the head has grown. They will

only measure again at the end of treatment. At each adjustment they

check progress visually by comparing the baby's current head shape

with their pre-treatment head mold (a " headsicle " ).

I can't help you with Kaiser specifically. We had to pay up front at

CT and file our own claim with BCBS and were then reimbursed 75% of

the cost (after deductible). Do as much research as you can into

Durable Medical Equipment, maybe there's something that will work

out for you. The insurance lady at CT told me that I would be lucky

to get $600 reimbursed, but I had a different plan than she was used

to and I ended up getting $2100 back. So definitely do your own

legwork, and don't just trust what you've been told so far.

Good luck!

Jake-21m (tort resolved/rt plagio/DOCBand #2-day 4)

Jordan-4

> > >

> > > Hi,

> > >

> > > I just joined the group after going to an initial consultation

at

> > CT,

> > > where they recommended that my 6.5 month son be put in a band

due

> > to

> > > moderate plagiocephaly. This is after 3 months of physical

> > therapy

> > > for torticollis (1 time a week) and repositioning. Both my

sons

> > > pediatrician and physical therapist recommended that he go for

a

> > > consult.

> > >

> > > I went for a consult at CT where they told me he's in the

> moderate

> > > range. After I left I realized that they had not given me the

> > exact

> > > measurements. I just called to find out and was given a

> > measurement

> > > of 5mm which I believe was front to back.

> > >

> > > Is it normal that CT won't volunteer the child's

measurements??

> > They

> > > made it seem like the measurements weren't important. I

already

> > know

> > > that my insurance will not cover the band. I'm extremely

> stressed

> > > out about whether or not a band will make a significant

> difference

> > in

> > > his head shape.

> > >

> > > I have posted the pics from his photo study under " Our Plagio

> > Babies -

> > > A " under the name Adam H. I would really appreciate any

advice

> > you

> > > could give!! Thanks so much.

> > >

> >

>