Re: Part 3

[Guest guest]

> Now Part 3 .

> What kind of support do you have at Home ??

> How can your spouse and Family and friends

> help you deal with RP ???

>

>

My sisters are the very best support that anyone could

ask for. They both have conditions which cause

chronic pain, so I know that they understand me better

than anyone in my family. We all three live within

walking distance, so if one of us has a need, the

other two are right there.

The family members that I live with (husband, teenage

son, grown-up son, and grandson) are as understanding

as they can be. It's me who has the problem asking

for help when I need it. I tend to want them to " see "

that I need help, and not have to ask for help. If I

ask, they are always willing to help. My teenage son

is probably the best about seeing, because of the

amount of time that we spend together. Being

homeschooled he sees me at my worst, and is so good to

be supportive.

The other grown children couldn't give a rip. They

never even ask how I am, what the doctor had to say,

how the infusions are going. It hurts really badly,

but I refuse to dwell on it. I have no energy to

waste on being mad or disappointed with them, so I

tend to ignore it.

How friends and family could help??? Just by being

understanding when I am having a bad day, and not

expecting too much during those days.

O.K. Come on everyone! I've only seen 's

answer to this and I want to know what everyone has to

say.

Love, squeek

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