Guest guest Posted August 6, 2003 Report Share Posted August 6, 2003 Tina, I do know if a CF child has burns or orthopedic problems they will take care of that part of their treatment. My husband submitted the problems with CF to the National Shriner's Office. He also let them know that there is a one in four chance of a child being born with CF. We have not heard from them about it. He had asked them to include CF kids and asked them to get involved in the research for a cure for CF. Their research department is outstanding! So are their hospitals. It would be sooooo great if they would get involved. I will be asking the people at the convention. Will let you know when I get back. Maybe they have been waiting for the convention to make a big announcement! Keep your fingers and toesies crossed! Love, Aunt B Quote Link to comment Share on other sites More sharing options...
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