Re: Doctors don't know?????Sharyn

[Guest guest]

Sharyn,

Lu and I went to chat last night and no one was there. Maybe everyone was busy. The old chat had voice and this new place that yahoo sent us doesn't. I guess we are going to have to search for a new place to chat or start bugging Yahoo.

As for contacting talk shows some of us have done that too. No one yet has paid too much attention to us. Maybe we should all start the rounds again. Gish!

I will send good thoughts for your friend. The hardest part about RP is getting diagnosed I think. Well almost the hardest part!

Take care and I will help in anyway I can!

Lots of love

Glenda

[Guest guest]

I get tired easily so staying up past 9:30 EST sometimes is almost

impossible for me. During the week it's really impossible since I

am still struggling trying to work and have to be up before 5am

every day. Don't get home until 6pm either so you can see makes for

long days for me. How I manage to do it is something I find

I " have " to do.

Just trying to take one day at a time like the rest of us.

Thanks for the well wishes for my friend. She found her old Rheumy

so will be calling her tomorrow. Hopefully she has heard or knows

more about RP.

I belong to another support group that deals with a lot of other

strange medical problems and they will be at a medical conference in

Las Vegas next month. They told me they would print up some

information regard RP and pass it out so it's a start.

hugs

Sharyn

> Sharyn,

> Lu and I went to chat last night and no one was there. Maybe

everyone was busy. The old chat had voice and this new place that

yahoo sent us doesn't. I guess we are going to have to search for a

new place to chat or start bugging Yahoo.

>

> As for contacting talk shows some of us have done that too. No

one yet has paid too much attention to us. Maybe we should all

start the rounds again. Gish!

>

> I will send good thoughts for your friend. The hardest part about

RP is getting diagnosed I think. Well almost the hardest part!

>

> Take care and I will help in anyway I can!

> Lots of love

> Glenda