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Re: My New Update

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HEY gal, I am sorry about your cheesecake night didn't turn into a bigger

dinner BUT--------You will have time when you are out & it will be a

wonderful way to start off your being OUT of the hospital .You can also save

$$ until then too.

Look at the hospital full stay this time as a " savings plan " ....you wont

have any $$ to pay . -also your food bill will be less at home-hahahehe.

Just trying to find something good about the longer stay. Oh, maybe , you

wont have house work to do ??? Is that a good one??

Really sweet gal .You need the break & rest so .......lay back & enjoy .

visit , etc. as you gain more strength. .BUT make sure you get addy to us

real soon ! !

Love ya lots!!

LOVE & HUGS, grandmomBEV

My New Update

Hey Guys,

I just wanted to tell ya I am gonna try to get an appt with the pulmo guy

today.Its been a long time in the making (I should have gone in close to a

month

ago..bad

me ! ! ! ) I Finally got my car out of the shop so I can now drive up there

without getting a ticket. Unfortunately b/c my stupid insurance put a co-pay

on Home IV therapy I will probably have to do the whole darn thing

inhouse...UGHHHHHHHHHHHhhhhhhhhhhhhhhhhhhhhhhh

Today I really started to feel bad and just couldn't flipping breathe. I

felt

SOB on 6L.

I'll email later if I can get into see the doc. If so I'll email my

addy...=)

If someone can then post to Cystic-L and Concoll where I am. I didn't sign

back on when I got back from vacation last week b/c I knew Id be going in.

Unfortunately I won't have my Cellular b/c I can't pay the bill this month

so

its kinda outa commission...lol

Hopefully to, the IV's will help this darn swelling. Its has REALLY

irritated

my neuropathy. My legs just get soooo tight...ughhhhhhhhhhhhhhhhhhh.

Anyways...I gotta try to get to sleep.If only this elephant would get off my

chest...=(

I did have my night out though...I went to the Grand Opening of THE

CHEESECAKE FACTORY. Well, actually I just picked up a piece of cheesecake

with Brad at

the counnter. There was a 3 hr wait to be seated ! ! ! As it was we waited

30

mins for cheesecake ! ! ! But dang it was unbelievable. I like to eat

something good before I go in b/c I know that I can't stand they call food

in the

hospital.

Anyways... I'll chat with yall later.

Oh one more thing, that new drug for the gastric empting problem didn't get

approved...ughhhhhhhhhhhhhhhhh...so thats one my to do list...Its called

Zelnorm.

The other choices are Raglan and Erythromycin.

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

www.topica.com/lists/younglung

Pediatric Interstitial Lung Disease Society

http://groups.yahoo.com/group/InterstitialLung_Kids/

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Becky,

I'm sorry to hear that you are feeling so crummy. I hope that the

pulmo guy gets you feeling much better!

You had the best part of the meal at The Cheesecake Factory. Thier

meals are okay, but thier cheesecake is superb. Which one did you

pick?

Please keep us posted. I'll be thinking about you and worrying until

we hear again that you are feeling better. That darn elephant!

Love,

Gale

> Hey Guys,

> I just wanted to tell ya I am gonna try to get an appt with the

pulmo guy

> today.Its been a long time in the making (I should have gone in

close to a month

> ago..bad

> me ! ! ! ) I Finally got my car out of the shop so I can now drive

up there

> without getting a ticket. Unfortunately b/c my stupid insurance put

a co-pay

> on Home IV therapy I will probably have to do the whole darn thing

> inhouse...UGHHHHHHHHHHHhhhhhhhhhhhhhhhhhhhhhhh

> Today I really started to feel bad and just couldn't flipping

breathe. I felt

> SOB on 6L.

> I'll email later if I can get into see the doc. If so I'll email my

addy...=)

> If someone can then post to Cystic-L and Concoll where I am. I

didn't sign

> back on when I got back from vacation last week b/c I knew Id be

going in.

> Unfortunately I won't have my Cellular b/c I can't pay the bill

this month so

> its kinda outa commission...lol

> Hopefully to, the IV's will help this darn swelling. Its has REALLY

irritated

> my neuropathy. My legs just get soooo tight...ughhhhhhhhhhhhhhhhhhh.

> Anyways...I gotta try to get to sleep.If only this elephant would

get off my

> chest...=(

>

> I did have my night out though...I went to the Grand Opening of THE

> CHEESECAKE FACTORY. Well, actually I just picked up a piece of

cheesecake with Brad at

> the counnter. There was a 3 hr wait to be seated ! ! ! As it was

we waited 30

> mins for cheesecake ! ! ! But dang it was unbelievable. I like to

eat

> something good before I go in b/c I know that I can't stand they

call food in the

> hospital.

>

> Anyways... I'll chat with yall later.

>

> Oh one more thing, that new drug for the gastric empting problem

didn't get

> approved...ughhhhhhhhhhhhhhhhh...so thats one my to do list...Its

called

> Zelnorm.

> The other choices are Raglan and Erythromycin.

>

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

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