My New Update

August 19, 2003

Hey Guys,

I just wanted to tell ya I am gonna try to get an appt with the pulmo guy

today.Its been a long time in the making (I should have gone in close to a month

ago..bad

me ! ! ! ) I Finally got my car out of the shop so I can now drive up there

without getting a ticket. Unfortunately b/c my stupid insurance put a co-pay

on Home IV therapy I will probably have to do the whole darn thing

inhouse...UGHHHHHHHHHHHhhhhhhhhhhhhhhhhhhhhhhh

Today I really started to feel bad and just couldn't flipping breathe. I felt

SOB on 6L.

I'll email later if I can get into see the doc. If so I'll email my addy...=)

If someone can then post to Cystic-L and Concoll where I am. I didn't sign

back on when I got back from vacation last week b/c I knew Id be going in.

Unfortunately I won't have my Cellular b/c I can't pay the bill this month so

its kinda outa commission...lol

Hopefully to, the IV's will help this darn swelling. Its has REALLY irritated

my neuropathy. My legs just get soooo tight...ughhhhhhhhhhhhhhhhhhh.

Anyways...I gotta try to get to sleep.If only this elephant would get off my

chest...=(

I did have my night out though...I went to the Grand Opening of THE

CHEESECAKE FACTORY. Well, actually I just picked up a piece of cheesecake with

Brad at

the counnter. There was a 3 hr wait to be seated ! ! ! As it was we waited 30

mins for cheesecake ! ! ! But dang it was unbelievable. I like to eat

something good before I go in b/c I know that I can't stand they call food in

the

hospital.

Anyways... I'll chat with yall later.

Oh one more thing, that new drug for the gastric empting problem didn't get

approved...ughhhhhhhhhhhhhhhhh...so thats one my to do list...Its called

Zelnorm.

The other choices are Raglan and Erythromycin.

Becki

YOUR FAVORITE LilGooberGirl

YOUNGLUNG EMAIL SUPPORT LIST

Pediatric Interstitial Lung Disease Society

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