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Re: new member needs advice!

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Our boy is 4 months old too and has had his helmet for about 2 weeks

now. I'll be honest that I didn't notice his mishapen head, our

doctor did. When she brought it up, my husband said he'd noticed it

too. To me was perfect. Anyway, we did PT for about 6 weeks to

make sure that his range of motion was not impaired. We also did

some repositioning during this time. Our PT did some research for us

and found out that Hanger does free evaluations. Our doctor

recommended we take advantage of it. The orthotist recommended

getting the helmet for a couple of reasons. One, is a boy and

will have short hair most of his life (as long as Dad is around

anyway) and because his condition would not correct itself. It may

never get better, but it won't correct without some help. It sucks

that our insurance won't pay for the helmet, but neither my husband

nor I hesitated to say, yes, we want to do this for our son. And it

turns out that the helmet doesn't bother one bit. I don't know

if I've been any help, you don't have anything to feel guilty about.

--

>

> Hi there,

> I am glad I found this support group. Don't even know where to

start.

> My baby is 4 month old and from birth had a full head of hair. His

hair

> were getting to cover his eyes, so we trimmed them and it was then

I

> noticed this strange head shape. After doing some research I think

he

> most likely has plagiocephaly -- I am very frustrated and feeling

like

> a complete failure for not noticing it earlier. We will see our

> pediatrician today.

> His ears are misalligned (maybe ~1cm) and there is a slight

assymetry

> on the forhead and cheek. So my question is, should I insist on

getting

> a helmet (we don't have cranial technologies here in Ann Arbor, MI)

or

> should we wait and try repositioning first.

> The other question is would the face assymetry go away after the

> treatment? We would do the treatment anyway, but I think knowing

that

> it is reversible would help me with my guilt feeling.

>

> Thanks a lot!

> Zhyldyz

>

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