Percussion (was Re: Update on Shaelin)

[Guest guest]

>

> Does your son do PFT's? If so, what are his results? Do you see a

CF doc,

> or just a regular pediatrician?

He sees both. He was just diagnosed in May and we have been trying

to get his sinusitis under control. CF doc says his lung look clear

although when he started on the meds he coughed at first. He will

have a check up in 3 months so I will ask then.

I took a copy of the spirometry result last visit. I really have no

idea if his results are good/OK or poor. FVC=2.11 FEV! 1.68

FEV1/FVC=80. He cooperates for the test but I don't think he

really " gets " how to do the test correctly.

jan

[Guest guest]

I agree with Leonora. We started manually with chest PT's then went to vest

at 2 or 3.....yrs..with Dylan. Other 2 diagnosed at same time so started

vest.

I personally think that if they know they MUST do it end of story it helps

decrease the fighting. I tell my 13 yr. a/k/a SYBIL LOL she can do her vest

BEFORE she goes out or AFTER but she is DOING IT....

Kids have to learn they do not have a choice with treatments.

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Do you remember what his percentages were at those levels? The minimum

levels vary according to age, weight and height, and I'm not sure what his

would be. Cody's weren't as good before we increased the amount of

treatments he gets to a total of 2 hours of vest treatments/daily (he's

never had any major lung exacerbations yet--just a few bouts of aspiration

pneumonia caused by his reflux). His tests showed that there was some

blockage of his small airways, so they did an aerosol scan of his lungs, and

it showed major amounts of blockage. We increased his treatments while he

was hospitalized, and by the end, his PFT's were WAY better. A couple were

over 100%, and two were over 80%--I have misplaced my sheet with his

results, or I could give an exact amount of each. If I find them, I'll send

them. He goes back for another one August 22nd--I look forward to seeing

the results from them.

And Cody, too, also has a difficult time doing it " properly " --but I have to

say, after doing it 3 times/week for 4 weeks while hospitalized, he got

pretty darn good at it! LOL Practice makes perfect!

S., mom to Cody (7, pwcf), DJ (9, nocf), and a (14, nocf)

Percussion (was Re: Update on Shaelin)

>

> >

> > Does your son do PFT's? If so, what are his results? Do you see a

> CF doc,

> > or just a regular pediatrician?

>

> He sees both. He was just diagnosed in May and we have been trying

> to get his sinusitis under control. CF doc says his lung look clear

> although when he started on the meds he coughed at first. He will

> have a check up in 3 months so I will ask then.

>

> I took a copy of the spirometry result last visit. I really have no

> idea if his results are good/OK or poor. FVC=2.11 FEV! 1.68

> FEV1/FVC=80. He cooperates for the test but I don't think he

> really " gets " how to do the test correctly.

>

> jan