Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Susiecue... PLEASE let us know what you find out at the dentist.... You take care and rest.... keeping you in my thoughts. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Sue, please take care and let us know what you find out. You have been sick way too long. Now, i'm worrying bout you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2002 Report Share Posted January 29, 2002 Susiecue, I know how hard it must be for you. Your dr. sounds like he is doing what he can. I just know you will start to feel better when you are on Imuan or another med and can lower your Pred. I was soooo depressed when I was on high doses for a long period of time. It really plays havoc with your mind and body. You are NEVER a cry baby and you just remember that. I find with RP you can't take one day at a time, you have to take one hour at a time. LOL I sure hope today is a better one for you. I'm thinking of ya. Lots of hugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Susiecue, Gosh I know what you are going through. Your story sounds almost like mine. I finally went to my PCP and said. Okay either you take charge or I am going to find another Dr. I can't have the two of you trying to figure out what you are going to do separately. The only problem is I don't think he listened very well! ) I think it is time I started shopping for a new Dr. My Rheumy knows what to do it is just he doesn't want to step on any toes with the PCP. I would like to step on some toes! I will keep you in my thoughts and prayers. Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 Glenda/Susiecue, I sure hope you both start feeling better soon. It's so hard sometimes when we're trying to do what our doctors want and they just won't/don't give us enough direction. Kinda shakes my faith. My brother-in-law is an allergy/asthma doc in Okla. City, and we had a long talk about Dr/Patient relationships over Christmas. He said, " You know, sometimes we M.D.s can be real bastards, can't we? " Good grief! Maybe it's time you go doctor-shopping. Hang in there. You're in my thoughts and prayers. Re: Susiecue Re: Susiecue, Re: Gosh I know what you are going through. Your story sounds almost like mine. I finally went to my PCP and said. Okay either you take charge or I am going to find another Dr. I can't have the two of you trying to figure out what you are going to do separately. The only problem is I don't think he listened very well! ) I think it is time I started shopping for a new Dr. My Rheumy knows what to do it is just he doesn't want to step on any toes with the PCP. I would like to step on some toes! Re: Re: I will keep you in my thoughts and prayers. Re: Lots of love Re: Glenda Re: Re: -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 > I am getting scared because the Dr. said the RP is > progressing much more rapidly than they expected. > Does this mean I'm going downhill fast? They are > praying that the Imuran will kick in, but I'm > getting so much worse by the day. The flare isn't > too bad but i'm just so exhausted & having such a > hard time breathing & just moving around in general. & all I did today was go out for breakfast. I could > hardly keep my eyes open when I got home. > > Luv ya, > > Susiecue > Hi Susiecue, I am so worried about you....trying to take some of the worry off of Glenda and , but I know it won't work. Are you on anything else for your RP besides Imuran? Probably prednisone but I can't possibly remember. Anyway, a while back I wrote the analogy that my doctor uses about RP and a wild cat in a trash can. I'm sure it's in the old messages on the group site. I am not the one to give you medical advice and I am not trying to, but maybe you need more help than Imuran alone can provide. Have your doctors ever mentioned Enbrel or Remicade? Please take care of yourself and if you can't find the story about the wild cat, let me know and I will try to write it out for you. Love, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 I think the Imuran might be starting to kick in. My > left ear is better, just a teensy bit sore, hardly > at all although my right eye lid is swollen. Will > find out more next week. > > Will keep you posted as to what transpires tomorrow. > > Luv ya, > > Susiecue > Lets hope for the best with Imuran kicking in, and for everything else that is going on with you. Take care! Love, Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Susiecue, glad you didn't have to have the biopsy. I am sure that when they sort out a medication plan for you your breathing will improve. Trouble is it takes a while, and it is rather trial and error, but although it may not feel like it now, hopefuly you will feel better. Love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Susiecue, Gish where to start!LOL I am behind on reading my mail and just now read this one. Pred is a pain sometimes when you are going down off of it. I get all kinds of weird side effects when I am on it and when I am going down on it. I take Imuran and have from almost the time of my diagnoses about 8 years ago. I guess I was lucky I never had too many of the side affects. I was really, really tired but that was about all I remember about the early days of Imuran. As for the back pain. I have lower back pain near the tail bone. I know it is RP because it feels like some of the other places that I flare. Don't care if the doctors don't think it is RP it is to me. ) Take care Lots of love Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Hi Glenda Imuran really did a number on me. Thought I had an ulser among other things. As for that pain in your tailbone. I have that too. Feels like I'm sitting on a damn marble. Do your knees ever burn? Mine do and my back in places feels like someone has been giving me sucker punches. Also feels like someone has me around the waste holding me tight and then under my ribs it cramps so bad sometimes it can bring me to the floor. The doctor has me down to 15mg on the Pred...but I think he may up it since I'm having hot flashes really bad now. My face gets so red..the ears and neck too looks like I have a sunburn so not sure if this is part of RP. I think it is since I know it's not menapause...finished that up over 12 years ago. Aren't we just a great group here. Would love to be all together in front of my boss when we have flares.. Sharyn > Susiecue, > Gish where to start!LOL I am behind on reading my mail and just now read this one. > > Pred is a pain sometimes when you are going down off of it. I get all kinds of weird side effects when I am on it and when I am going down on it. > > I take Imuran and have from almost the time of my diagnoses about 8 years ago. I guess I was lucky I never had too many of the side affects. I was really, really tired but that was about all I remember about the early days of Imuran. > > As for the back pain. I have lower back pain near the tail bone. I know it is RP because it feels like some of the other places that I flare. Don't care if the doctors don't think it is RP it is to me. ) > Take care > Lots of love > Glenda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Susiecue, I just don't understand your doctors, then again, I don't understand many doctors. Gosh I hope all goes well for you. Know I'm keeping you in my thoughts and prayers. hugs Quote Link to comment Share on other sites More sharing options...
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