NEW HERE AND NEED HELP- CHRONIC PANC.

January 27, 2004

Hi everyone,

This is my first post here and I am really in need of some help

today!

I will try to make this a short story......I have a long history of

problems with my bile duct and pancreatic duct. I have had 12 ERCPs,

stents, spincterotomies, etc. over the past 6 years. I have had

acute pancreatitis many times from duct blockage and from the ERCPs.

In June I had a Bile duct Sphincteroplasty (surgery where they cut

me open and reconstructed the bile duct opening). After surgery, I

felt great for 6 months. Then I started having pains again. Even

though my liver and pancreatic enzymes were normal I kept telling my

doctor I felt like I had pancreatitis. I just had another ERCP

yesterday and everything is wide open and working well, so they say.

As usual, I feel some of the pancreatitis today and as usual my labs

are normal!

So....my question for you all is.....do you think I could have some

chronic pancreatitis as a result of all the other episodes of

pancreatitis? Maybe it doesn't show up on any test? The problem is

that sometimes it feels like my bile duct is blocked. I get real bad

right upper back pain as well as pain right in the middle of where

my ribs meet. Does anybody get this pain (ezpecially the back pain)

with chronic pancreatitis?

My doctor (who has been great) tells me to go back to the pain

clinic and see my general doctor to look at some autoimmune diseases

like Lupus! What is that all about! I still have the same pains, why

would it be lupus?

Any informtion on what you all feel with chronic pancreatis would be

great. I feel like I am losing my mind!

Denny

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