Re: Welcome to the group Robyn

[Guest guest]

Welcome to the group Robyn.

You have joined the greatest group of people you will ever get the chance to meet. My name is Glenda and I live in Oregon. I have had RP now for over eight years. I lead a fairly normal life for me that is. Sure RP has slowed me down some but I am not one to stay down for long.

It sounds like you have had a time with getting your Dr.'s to diagnose you with RP. RP is a scary disease but it is treatable. There are some in the group who have had it for years. Hope the get it figured out soon and get you headed in the right direction.

Please post again soon so we can get to know you better.

Lots of love

Glenda

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