Re: I have no idea what's going on!

[Guest guest]

In a message dated 12/5/2003 12:52:50 AM Eastern Standard Time,

hhessgriffeth@... writes:

I know it's just this same old unpredictable disease playing it's tricks on

me

again, but whatever it is, please tell it to go away!

Oh, well, tomorrow's another day. We'll see how it goes.

Hi Heidi, I know you took your enzymes right? Do you think that your liver

or if you still have a gallbladder that they are the culprit? Did you have

pain that limited your breathing? I used to have horrific pain that would come

out of no where and I literally couldn't move or take normal breaths. I often

thought during those times that I had a cyst on my pancreas and it burst. I

never found a doctor who knew what caused such pain. I had a feeling that

something burst inside of me and spread through out my chest and back. I was

unable to move turn over, or breath correctly. After these attacks happened I

had

a CT scan and was told by the doctor that my left lung was fibrous. I never

found out what make my lung fibrous but I always believed that my pancreas was

at fault. I haven't had an attack like that since I had my pancreas removed.

If your pain at dinner wasn't like the pain I described then have you ever

experienced anything like what I had?

Has anyone ever experienced pain that made you unable to breath, or even

move. My enzymes weren't elevated from the problem. Driving to the hospital

was

so painful with even a very small bump in the road. I couldn't control my

screaming. I can endure pain. I had pain with my pancreas from 1985 and then

started having attacks in 1994. I had my TP/ICT in 2000. During the whole time

I had pain and attacks with my pancreas I never went on pain meds except when

I had an attack and was taken to the hospital. My point to telling you this

is not to brag about not taking pain meds. Maybe I should have. Maybe if I

had taken them I would have been able to eat at least something. The way I

handled my pain was to not eat at all and to exist on TPN. As I look back on my

illness I now wish I had taken pain meds. I believe my life wouldn't have been

quite so difficult. The pain doctor we met at the symposium gave me much to

think about.

Dear Heidi, I hope and pray that you don't experience that pain and diarrhea

again. I wish I could do something to help you. You are so beautiful and

giving with your help to others. I am so sorry that you suffer so much and that

your life is hindered by pancreatitis. I understand so well because I have

been there. Please let me know how you are feeling. Love, Shirley

[Guest guest]

> Hi y'all,

>

> The last ten days or more have been great, as I reported a few days

ago.

>

I would try more cats....it usually works for me ;-)

Seriously...hope ypu feel better today !

Best Wishes,

Chris

[Guest guest]

Heidi,

I'm so sorry you are having such bad evenings the past few days. I hope

they are clearing up. I know that I can have something similar happen,

though not usually that bad, at night anytime after about 6pm. That's

why, for a while, I have avoided eating dinner at all except for a boost

or ensure. I have lately, however, that if I eat a small amount of food

around 10-11 pm, I can usually handle that, though it has to be

something light, like mashed potatoes (low fat ones) or cream of wheat

or something similar.

You are certainly in my prayers that this clears up soon. It gets old

really quickly, I know.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.