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Pulmozyme about $18,000 per annum

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Pulmozyme is not covered in New Zealand for CF patients, stupid small country,

the CF person has to have had a major decline in luing function like gone down

from 70 to 40 % or something stupid. I asked the doctor and it will cost

About $18,000 per annum. UGGGGGGG I would like to put Liam on this when he is

older but well maybe we wont be now that I know the cost.

mum to Liam 10 months wcf

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Here in the States if you can afford it they give it for free.We didnt have

insurance for a year and we applied and got approve. Of course they go by your

income but who can afford 1300.00 a month thru the cf pharmacy.We got it free

of charge until qualify for Lachip.I dont know in NZ but just ask it wont

hurt .

Debbie Mom to Sharon 18 ncf, 11 ncf & 4 wcf

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That is thru the Genentech Voucher Program.The US phone # is (in the

states) toll free 1- Ask for TIKI WILLIAMS. Good Luck.

The mailing address is 4828 Parkway plaza Blvd,suite120

Charlotte, N.C. 28217-1969

I think if it is actually sold in your country , then they will allow

vouchers. It as others have said. Worth a try.

LOVE & HUGS< grandmoMBEv

Re: Pulmozyme about $18,000 per annum

Here in the States if you can afford it they give it for free.We didnt

have

insurance for a year and we applied and got approve. Of course they go

by your

income but who can afford 1300.00 a month thru the cf pharmacy.We got it

free

of charge until qualify for Lachip.I dont know in NZ but just ask

it wont

hurt .

Debbie Mom to Sharon 18 ncf, 11 ncf & 4 wcf

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