Re: Growth in prepubertal children with cystic fibrosis, homozygous for the F50

[Guest guest]

Hi Torsten

I have missed you. How is the family?

Jen

[Guest guest]

> Hi Torsten

> I have missed you. How is the family?

> Jen

Hi Jen,

have missed you too and am glad that you find some time in your cabin

to post to the list again. I don't find the time to read my mailbox,

not to speak about writing answers (wanna say sorry to those who

haven't gotten a reply to a private mail). My grown family is just

too time-consuming. Have I told you yet that I don't know how you can

handle 7 kids, LOL?

Regarding 's feet. Are you sure that he isn't secretly peeling

his feet? I did that for a while as a kid and while I always thougt I

have been the only human being that got that weird habit I read last

year that it's the same kind of psychological disorder as nail

biting.

Hope the rest of your family will have a nice stay and you can enjoy

the second part of your vacation in August. What's about Mo?

Peace

Torsten

[Guest guest]

YEAH, Torsten is here. !! Your wee family isn't so wee anymore. You are

right though , it sure does take a bunch of time. ....It is so nice to see

you here .even once in awhile. I am sending all good wishes to your

precious Family. They are such a joy & worth all your wonderful care!!

LOVE & HUGS to each of you

GrandmomBEV

Re: Growth in prepubertal children with cystic

fibrosis, homozygous for the F50

> Hi Torsten

> I have missed you. How is the family?

> Jen

Hi Jen,

have missed you too and am glad that you find some time in your cabin

to post to the list again. I don't find the time to read my mailbox,

not to speak about writing answers (wanna say sorry to those who

haven't gotten a reply to a private mail). My grown family is just

too time-consuming. Have I told you yet that I don't know how you can

handle 7 kids, LOL?

Regarding 's feet. Are you sure that he isn't secretly peeling

his feet? I did that for a while as a kid and while I always thougt I

have been the only human being that got that weird habit I read last

year that it's the same kind of psychological disorder as nail

biting.

Hope the rest of your family will have a nice stay and you can enjoy

the second part of your vacation in August. What's about Mo?

Peace

Torsten

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Torsten, first off, it gets much much easier after aboutthe 3rd

child.....lol.

Second...thanks for the suggestion, but yes, I am certain he is not

peeling his feet. I wish I could somehow send a picture. They are

cracked, and the cracks all look like cuts, and the cuts all have

black around them, which is really odd looking (and a bit scary). it

is exactly what we are told to watch for in Mollie (the one with JD).

So its not so much that they are peeling, but that they are cracking

all over and look shriveled. He has been known to peel off his

toenails, lol, but his feet he doesn't mess with. I don't know what

causes this, but I sure wish I did know. It looks really odd. It is

hard to describe, but if you saw a picture, I think you would see what

I mean.

thanks for the suggestion, nonetheless.

Take care and it is so good to correspond with you again. I don't

even know if I have had the chance to tell you congrats on the new

baby. I assume that your second is CF free? If so, congrats on that,

too. I am just happy, personally, that our youngest is now 4 and that

Catholic family planning thing is working, finally, lol....

take care,

Jen