Re: classification of cf patients?

[Guest guest]

Yes, but in the us in Cystic Fibrosis Centers, most children and adults

are given private rooms. This worried mother (with good reason) appears to

be writing either from the UK or Australia, I think--just gues

sing.

n Rojas

[Guest guest]

Our hospital separates the pwcf who have pseudomonas from those that

do not have it. Each area has different medical staff, so that there

is less risk of spreading it.

Gale

> I am not aware of any classification of cf patients at our clinic.

Is this

> standard in the US?

>

>

> mom of Henry 19.5 months wcf

>

>

>

> > We got a leetr today from our Dr at the CF clinic informing us

that

> 's

> > pseudomanas status is now CC = chronically cultured as opposed to

CI=

> > intermittent. This means that will attend clinic with

children with

> > pseudomanas and will be in the open ward when in hospital (for a

few days

> > every 2 months at the start of IV sessions).

> >

> > I am really concerned that this will adversely affect his health

and I

> feel

> > that he hasn't had a fair chance at shifting the pseudomonas as

he has

> only

> > recently started zithro (cos the Drs dragged their heels for 6

months re a

> > decision about zithro) and they have v. recently increased his

colimycin

> > dose to four times what it was previously which makes me wonder

if it has

> > been doing any good until now. And they misdx'd for 3.5 yrs in

the first

> > place!! But they have a rule that if cough swabs show PA for a

year then

> he

> > changes category.

> >

> > I wondered what your thoughts are about the possible risks - how

do your

> > clinics classify patients - what impact does this have on their

treatment?

> >

> > Thanks

> >

> > Margaret - Mum of 4yo wcf - and no canula as have just

finished IV

> > course - thank goodness, he can have a bath now!!

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >