Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 Hi Everyone! I have written once before, and am new to the group. I just kind of need some mommy opinions!! Please help!! So... my son Blake will be 5 months old tomorrow. He was diagnosed with tort and plagiocephaly the beginning of this month, after I finally had had it withh our Pediatrician. We expressed our concerns about the difference in his ears twice, and no reaction at all. So..I did reasearch on my own, and called my daughters (she was born with a bilateral cleft lip) craniofacial team, who fit us in right away with the nurse practitioner, and that was when he was diagnosed. He is a mild cased, but does have ear assymetry. We have been doing PT for a few weeks now, and I was doing it at home before we started going to the doctor for it, I knew it was not normal that my baby only looked and turned to one side. Now, I am a nurse, but you do not need to be a nurse to know that was not right. I need help b/c I am leaning towards doing the band. We had an eval done at CT and he was a candidate, even though he is a mild case. I am afraid I guess, b/c all doctors have different opinions. Should I go with my gut and do it now while he is little, and potentially could be in it for a shorter time? Should I wait to see the entire craniofacial team on 3/11? (i feel like it is a year away, and fell I can not wait anymore!!) help! Thank you!! Alyson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2009 Report Share Posted February 19, 2009 As a mommy I think you always have to go with your gut. If you feel like it is the right thing for him, than do it. I do not think there are many moms who regret banding, but there a lot who regret NOT banding. Good luck, and hope all goes well! - Meg > > Hi Everyone! > I have written once before, and am new to the group. I just kind of > need some mommy opinions!! Please help!! So... my son Blake will be 5 > months old tomorrow. He was diagnosed with tort and plagiocephaly the > beginning of this month, after I finally had had it withh our > Pediatrician. We expressed our concerns about the difference in his > ears twice, and no reaction at all. So..I did reasearch on my own, > and called my daughters (she was born with a bilateral cleft lip) > craniofacial team, who fit us in right away with the nurse > practitioner, and that was when he was diagnosed. He is a mild cased, > but does have ear assymetry. We have been doing PT for a few weeks > now, and I was doing it at home before we started going to the doctor > for it, I knew it was not normal that my baby only looked and turned > to one side. Now, I am a nurse, but you do not need to be a nurse to > know that was not right. I need help b/c I am leaning towards doing > the band. We had an eval done at CT and he was a candidate, even > though he is a mild case. I am afraid I guess, b/c all doctors have > different opinions. Should I go with my gut and do it now while he is > little, and potentially could be in it for a shorter time? Should I > wait to see the entire craniofacial team on 3/11? (i feel like it is > a year away, and fell I can not wait anymore!!) help! > > Thank you!! > Alyson > Quote Link to comment Share on other sites More sharing options...
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