Carol and 0 mgs of Pred

[Guest guest]

Carol ... congratulations .... you made it to my playground ... hope you can stay off that nasty stuff for a very long time. A couple of times, I felt like maybe something was about to occur and took a wholes day dose of Anaprox (1650 mgs) and nothing ever happend .... praise the Man upstairs!!!!! I don't know if you're on any other meds, but this is one of the best to be away from ... sure would be nice if there were more people in the group that can be RP Free .... I pray every night that you all join me. I'm not trying to toot my horn, but 2 years flare free is a wonderful feeling, I was happy when I was 2 months and never thought I would see this amount of time laps. I do keep my fingers and toes crossed for all of you. Just me, Kathleen (NY)

[Guest guest]

Oh, Kathleen, keep tooting that horn so I can hear you because I'm following

your path and I'm gonna get there too! It sure helps to hear your story. I've

read and re-read that newsletter, and it still inspires me to keep focused on

the goal: Free of RP. I will have been on Cytoxan for one full year in April

and should have the Prednisone down to <5mg by that time. In the meantime, I'm

trying to stay as fit as I can thru diet and exercise. Hope to see you on the

playground soon!

Carol and 0 mgs of Pred

Re: Carol ... congratulations .... you made it to my playground ... hope you can

Re: stay off that nasty stuff for a very long time. A couple of times, I felt

Re: like maybe something was about to occur and took a wholes day dose of

Anaprox

Re: (1650 mgs) and nothing ever happend .... praise the Man upstairs!!!!! I

Re: don't know if you're on any other meds, but this is one of the best to be

Re: away from ... sure would be nice if there were more people in the group that

Re: can be RP Free .... I pray every night that you all join me. I'm not trying

Re: to toot my horn, but 2 years flare free is a wonderful feeling, I was happy

Re: when I was 2 months and never thought I would see this amount of time laps.

Re: I do keep my fingers and toes crossed for all of you. Just me, Kathleen

(NY)

Re:

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