Re: Re: [Rpolychondritis) update

[Guest guest]

Bonita, Hi neighbor, it is so good to hear from you again. Is Gabby still

going to Stanford? I think he might have the same pulmonologist that I have.

She said a new RP patient had been sent to her from the pediatric clinic.

Has your sister come to terms with this yet. Would you still like me to

call her? You know I will help in anyway I can. I just don't want to but

in and have her feel like i'm prying. Let me know.

Did you have your surgery? Hope you are feeling better if you did. I know

about this weather. it's the pits huh?

Keep us updated on Gaby, you know he is in our prayers.

hugs

[Guest guest]

Hello, Bonita,

<<<<Gabby is somewhat ok, he is having difficult when he sleeps because his

oxygen level drops some.>>>>

My name is and after reading your post about Gabby I was curious about

his difficulty during sleep. In my case, my airway was collapsing when I layed

down on my back to sleep. Last August, my doctor ordered a C-PAP machine that I

use at night. C-PAP stands for Continuous Pulmonary Air Pressure and is

commonly used for people who have sleep apnea. I sleep with the C-PAP mask at

night and have an oxygen feed going into the mask. The air pressure blows into

my airways and keeps them open. I really don't need the oxygen anymore, but I

feel like there is some benefit. Sleep has been wonderful since August!

I just wanted to mention this in case Gabby's problem was similar to mine.

Take care,

Re: [Rpolychondritis) update

Re: Hello Everyone,,

Re:

Re:

Re: This is Bonita, just thought i would drop a line to wish everyone of my

Re: cyber-family a very Happy Birthday! to those who have had a birthday and to

Re: the ones coming up!

Re: I just thought i would drop a line to tell everyone that i am still

here,

Re: and i do read each and everyone of the posts it means alot to me, knowing

Re: that we are growing each and every day with more family members, one thing

is

Re: i am sadden to know of this illness and hoping and praying each and every

day

Re: a cure. but on the second hand it is extremely with happiness and great

Re: comfort knowing we are here for each other. Gabby is somewhat ok, he is

Re: having difficult when he sleeps because his oxygen level drops some. They

Re: will probley have him wearing a oxygen mask so he can rest and breathe

better

Re: i am not to sure of this issue, but we are still searching for other ways

Re: besides the mask. As for myself, i am doing alot better, but the

Re: osteoarthritis is playing hard on my lower back and joints i guess its with

Re: the change of weather, one day is is warm and spring like then mother-nature

Re: brings in the cold. but i am doing good, please let me know if there is

Re: anything i can do for anyone here, please i consider helping out the best

way

Re: i can and with my heart attached, because i pray each and everyday for all

of

Re: us, that we can bring joy and hopefully some comfort of the pain we are

going

Re: threw. Well just touching base with you all, and also to introduce myself

and

Re: my family (Gabby especially ) to the new family members. God bless us all,

Re: and most to all of you, also my prayers are with you all.

Re: So again happy birthday to the ones that have passed, and to the ones that

Re: are coming up. I may not post frequently, but please remember i am here and

Re: my love and prayers are with you all each day.

Re:

Re: Love and warm wishes, and my blessings Bonita

Re:

Re:

Re: DISCLAIMER!!

Re: WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE

NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT

FOR MANY OF US. THANK YOU

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