Lily

[Guest guest]

ditto !

Lily

That is probaly the most accurate scale writen yet. There should be

that adendum; or separate category for a level of pain that is so

intense that it would force a person or thier family, to drive

countless miles at all hours of the night or day to sit in a crowded

dirty disease ridden ER for hours and hours just a few precious

moments of peaceful relief. The fact that we would go to such a

place is a testimonial unrelenting this condition is.

Chrissy

[Guest guest]

In a message dated 2/28/2004 12:58:25 PM Eastern Standard Time,

Bigsister@... writes:

Will Shirley be able to catch up with us ?

Hi Lily, I sure will try to be there. I would love to see you and and

meet Chrissy. Is Chrissy's appointment this Wed? Please tell me where and

when we will meet. I am a bit under the weather but will be there if I can. I

don't know any of the particulars. Love, Shirley

[Guest guest]

,

Weather is beautiful today ( for Ohio ) 50 degrees. I have my windows open.

Suppose to be nice all weekend. Chance of rain on Monday but rest of week

suppoose to be between 40 and 50 with upper 20's at night. My hubby has checked

the forecast for you !!!

Dad still in hopsital but stable. I talked to , she is getting kids taken

care of in the event her health and mine hold up we will meet you in Cincy on

Wednesday if you are in the mood. You have my celll number, call me and let me

know where you will be. Will Shirley be able to catch up with us ?

Gosh I hope we all feel well enough for a low fat get together. I will bring

some xtra Zofran if you need it. Is there anything else I can bring for you ?

Lily from Springfield Ohio

Lily

I dont mind Nurse Ratchett at all as long as I am not working with

her...lol I would love to meet all of ya'll. When I have all the

details I will let you know. My appt is the 3rd. I dont know what

time about the flight because I am, hoping, with Angel flight. I

have not heard back form the.

I have not been feeling at all well lately and am not a very

pleasant companion. I would love to meet for a low fat dinner. I

can still eat just not a lot and have to be careful or close to home

if you get my drift. I will take a few cans but not too many and

certainly not the pump. I will have to hang the old fashioned way

and count my drips. When was the last time you did that; long time

huh. Like taking a blood pressure manually; I dont think I have

heard a Kortikoff sound in a decade. Well you know what they say

about old nurses, they never die they just stick around.

You'll have to keep me abreast of the weather for sure. I am a

true blue southern belle who doesn't know snow from shinola. What

the heck is shinola anyway....

Thanks Again and what is cincy famous for; I'll have to bring the

kids back something,.

Well if your dad is feeling that frisky he must be feeling better, I

do hope so. I kind of like the cantankerous dirtly old men;

especially when they are some body elses patient....lol

Love;

Chrissy

[Guest guest]

I will leave here at 9ish, go to Asheville and do not know how long

it will take from there. Its only 90 minutes from ton to

Cincy so I cant imagine it will take too long. I'll land at Lunken

field guessing around noon and will call a cab to take me to the

Marriott the one by the hospital. They have a hospital rate that is

resonable.

My appt is at 1pm. I would love to meet ya'll that afternoon as I

am sure I will have lots to talk about after my appt. even though I

doubt seriously there would be much silence between the 2 of us.

LOL. I am not sure how long the appt will take. Probabaly a few

hours. I dont know what time I fly out; from what I gather the pilot

will work with me on that. But he is going to call me Monday night

so I will be sure to ask.

I dont think I will be able to do too many tube feedings, so an

early dinner would be great; I do still eat just not as much as I

used to. You would think I would be thin as a rail; but the

feedings as my son pointed out this morning are 40g of fat in 5

cans. Pheewweee I haven't had that many grams of fat in a day in

forever, not even on Thanksgiving. I wonder if there is a drug

store near my hotel where I can purchase the cans so I dont have to

carry so many. I tried to give myself a can via bolus and it made

me sick as hell. So I cant push them in fast with a 60cc syringe.

Even diluted.

I cant wait to me ya'll. I'll bring a camera and take our pix so we

can add them to the web page. I'll send you my phone number and

stuff by email.

You know; I have been kind of scared about traveling alone, but

knowing that ya'll might be able to visit me makes it more fun,

something positive to think about, the plane thing is pretty cool

too.

I'll meet ya'll where ever you want; just give me an address for the

cabby.

Chrissy

> ,

> Weather is beautiful today ( for Ohio ) 50 degrees. I have my

windows open. Suppose to be nice all weekend. Chance of rain on

Monday but rest of week suppoose to be between 40 and 50 with upper

20's at night. My hubby has checked the forecast for you !!!

> Dad still in hopsital but stable. I talked to , she is

getting kids taken care of in the event her health and mine hold up

we will meet you in Cincy on Wednesday if you are in the mood. You

have my celll number, call me and let me know where you will be.

Will Shirley be able to catch up with us ?

> Gosh I hope we all feel well enough for a low fat get together. I

will bring some xtra Zofran if you need it. Is there anything else I

can bring for you ?

> Lily from Springfield Ohio

> Lily

>

>

> I dont mind Nurse Ratchett at all as long as I am not working

with

> her...lol I would love to meet all of ya'll. When I have all

the

> details I will let you know. My appt is the 3rd. I dont know

what

> time about the flight because I am, hoping, with Angel flight.

I

> have not heard back form the.

>

> I have not been feeling at all well lately and am not a very

> pleasant companion. I would love to meet for a low fat dinner.

I

> can still eat just not a lot and have to be careful or close to

home

> if you get my drift. I will take a few cans but not too many

and

> certainly not the pump. I will have to hang the old fashioned

way

> and count my drips. When was the last time you did that; long

time

> huh. Like taking a blood pressure manually; I dont think I have

> heard a Kortikoff sound in a decade. Well you know what they

say

> about old nurses, they never die they just stick around.

>

> You'll have to keep me abreast of the weather for sure. I am a

> true blue southern belle who doesn't know snow from shinola.

What

> the heck is shinola anyway....

>

> Thanks Again and what is cincy famous for; I'll have to bring

the

> kids back something,.

>

> Well if your dad is feeling that frisky he must be feeling

better, I

> do hope so. I kind of like the cantankerous dirtly old men;

> especially when they are some body elses patient....lol

>

> Love;

> Chrissy

>

>

>

>

>

>

>

>

[Guest guest]

Lily,

I live near Columbus, Georgia now.I've been here on three years.I was born in

Troy, Ohio.And lived in West Milton most of my life.I'm coming home in June to

visit.

The list owner of the digest for PSC of liver and bile ducts Yahoo support group

lives in Piqua, Ohio.I talked to her by phone in October.I was told that I may

have PSC...but so far nothing is showing it.I had a Pancreatic Stent placement

in Oct. 2002.It's suppose to be out.But after reading 's ordeal with

the stent...I'm wondering.I can feel something sticking me.I just had and MRCP

an have heard nothing from doctor. So I'm assuming it was normal.

in Ga.

,

Springfield. Where are you living now ???? If you are still in Ohio, we are

probably about one hour away from each other.

Lily

[Guest guest]

Shirley, She is going to see Dr. Mathews (?). What hopsital is that ? She is

staying at the Marriot close by. Since you know Cincy, which hopsital is that

and where is it located ? We hope to meet Wednesday night around 6 pm ish.

I did email her just know to get the name and address of hopsital and hotel. I

will send you my cell number, check with me Tuesday or Wednesday before 12 noon

and I will see what info I have. This will be too cool !

What part of Cincy do you live in ?

Lily

Re: Lily

In a message dated 2/28/2004 12:58:25 PM Eastern Standard Time,

Bigsister@... writes:

Will Shirley be able to catch up with us ?

Hi Lily, I sure will try to be there. I would love to see you and and

meet Chrissy. Is Chrissy's appointment this Wed? Please tell me where and

when we will meet. I am a bit under the weather but will be there if I can.

I

don't know any of the particulars. Love, Shirley

[Guest guest]

In a message dated 2/29/2004 9:38:07 AM Eastern Standard Time,

Bigsister@... writes:

Shirley, She is going to see Dr. Mathews (?). What hopsital is that ? She is

staying at the Marriot close by. Since you know Cincy, which hopsital is that

and where is it located ? We hope to meet Wednesday night around 6 pm ish.

I did email her just know to get the name and address of hopsital and hotel.

I will send you my cell number, check with me Tuesday or Wednesday before 12

noon and I will see what info I have. This will be too cool !

What part of Cincy do you live in ?

Lily

Lily, Dr. s is located at the University of Cincinnati Hospital in the

Piedmont building, seventh floor. When are you sending me your cell number?

I live in about 35 min drive to the hospital. The hospital is

located in a bad neighborhood so be careful. I don't know where the marriot is

located but I will try to find out tomorrow. Keep me posted on what is

happening. I hope to be there. Love, Shirley PS If you need more information I

will

be glad to get it to you. Mapquest will be of great help to get to the

hospital.

[Guest guest]

The pilot was supposed to call me this evening around 8ish, hope

there wont be a problem. It was a lap Chole that did me in, yup

know how you feel there.

Ok so I wont be sauntering down Goodman drive looking into the

widows of bistros. Ooh well the hotel is huge 600 rooms I think

there should be plenty going on there to get me in enough trouble.

I hope the zoo is safe, it said it closes at 5 so thats early.

Your sugeon wanted to mess with a stone on a film that is

asymtomatic; why do they always think everything has to be fixed.

Every surgery I have ever had did not work out so good. Today I

scared myself, I had a hypoglycimic like spell, lasted about 20-30

minuts. that really scared me, must save the islet cells. I'll

keep some little candies with me. I forget to eat sometimes

especially dragging around that damn infusion pump and poll.

You gonna have to have one BIG eraser to get rid of all the crap in

my mind. You right, I believ in trusting your heart, gut instinct,

intuition, what ever you want to call it. I'll know if he's my

man. Aint that a song by Tammy Wynette or something... I can hear

it now.....

I'll give you a ring when I have settled in for the eveing

tomorrow. Unless the pilot looks like Seleck, then I'll call you

wednesday morning.....LOLOLOL

Chrissy

> Chrissy,

> Don't feel bad about being afraid of surgery. I have never had

surgery in my whole life. Then I had my gallbladder out and wham,

bam, no thank you ma'am,,, did I ever have pain. That is when I was

dx with the SOD. So needless to say I am very gun shy when it comes

to surgery. They found that I have a kidney stone. It fortunately is

stuck right in the pole of my kidney on the inside and has not

moved at all. I never even knew that I had it, It just showed up

on my abdominal CT. The urologist wants me to have it crushed and

taken out. I told him no way . I only had one surgery and it did

not fair well, so I am not looking for trouble. Of course as a

nurse, I know better than that. But sometimes we can not be

objective because we are not nurses now, we are THE PATIENT. And you

know how hard it is to be a patient let alone to have patience. So

take one day at a time. Ask Dr. Mathews LOTS of questions, then we

will all have very positive vibes if you need surgery. The problem

with you is that you are too smart and know too much as a nurse and

have seen alot. So we will erase all of that crap from your mind and

send positive findings your way for a great outcome. You just need

to work thru your fear, and you will know what you need to do

after you takk to Dr. Mathews. You will know if he is the man for

you.

> Just got directions form my brother inlaw in Cincy. He said not to

walk at night alone. The area is not the best and not the worst. So

becareful till we ge there young lady !

> Lily

> Lily, , & Shirley

>

>

> I am so excited about meeting ya'll that is has kept my mind

> occupied. Between ya'll and the flight, and thinking about the

zoo

> and such, my mind doesn't dwell on the negative. I have been

trying

> not to think about so much WHY I am going but to indulge in the

vast

> silver lining that surrounds this trip.

>

> Surgery has never worked well for me in the past, I dont think I

am

> a very good surgical candidate. Only because it seems that

> everytime I get cut it just makes matters worse. But, I am not

> going to think about that, I am going to keep my eyes on that

silver

> lining. I will bring some ativan though...*s*

>

> Love,

> Chrissy

>

>

>

>

>

>

>

>

> -------------------------------------------------------------------

-----------

>

[Guest guest]

You were so charming, supportive, understanding, funny and open with

me, I will remember that night forever. Ahhh heck look at me

getting all mushy. Maybe I should find an good acupunturist for a

monthly stick as well.... you are a hoot too!

Love,

Chrissy