Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 GREAT POST!! Giving credit were credit is due..on both side of the fence there . It is so great what all the folks on the lists do by being involved in all the parts of this CF " stuff " ,!! Its great to have such SUPPORT LOVE & HUGS, grandmomBEV Re: GOODBUGS.URL/ROSEMARY et. al. Hi CF Parents! Just in case you were not on the lists in 1998, the date which this article refers back to, the B. Cepacia use in pesticides was first noticed by list members even earlier than this, I think. And brought to the attention of the CFF. The CFF sent me a copy of the first letter they sent to the EPA on this matter. Interestingly enough, they gave credit to US, parents of children with CF on an Internet support group (Cystic-L) for finding and reporting this. So, while I am sad at the rate at which these wheels sometimes spin, to their credit, the CFF was involved as soon as they found out. (That is, as soon as WE told them about it!!!) Lenora ><A >HREF= " <http://www.junkscience.com/news2/goodbugs.htm>http://www.junksci ence.com/news2/goodbugs.htm " ><http://www.junkscience.com/news2/goodbugs. htm>http://www.junkscience.com/news2/goodbugs.htm</A> > >Note the early date on this one! Where has the CFF been, despite cf >patient counter-recommendation? Thank heavens that they have seen some >ray of light! > >n > > ---------- > >[internetShortcut] >URL=<http://www.junkscience.com/news2/goodbugs.htm>http://www.junkscien >ce.com/news2/goodbugs.htm >Modified=F0E49EDD7B68C301F6 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Hi CF Parents! Just in case you were not on the lists in 1998, the date which this article refers back to, the B. Cepacia use in pesticides was first noticed by list members even earlier than this, I think. And brought to the attention of the CFF. The CFF sent me a copy of the first letter they sent to the EPA on this matter. Interestingly enough, they gave credit to US, parents of children with CF on an Internet support group (Cystic-L) for finding and reporting this. So, while I am sad at the rate at which these wheels sometimes spin, to their credit, the CFF was involved as soon as they found out. (That is, as soon as WE told them about it!!!) Lenora ><A >HREF= " <http://www.junkscience.com/news2/goodbugs.htm>http://www.junkscience.com\ /news2/goodbugs.htm " ><http://www.junkscience.com/news2/goodbugs.htm>http://www.j\ unkscience.com/news2/goodbugs.htm</A> > >Note the early date on this one! Where has the CFF been, despite >cf patient counter-recommendation? Thank heavens that they have >seen some ray of light! > >n > > ---------- > >[internetShortcut] >URL=<http://www.junkscience.com/news2/goodbugs.htm>http://www.junkscience.com/n\ ews2/goodbugs.htm >Modified=F0E49EDD7B68C301F6 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 GREAT POST. Re: GOODBUGS.URL/ROSEMARY et. al. Hi CF Parents! Just in case you were not on the lists in 1998, the date which this article refers back to, the B. Cepacia use in pesticides was first noticed by list members even earlier than this, I think. And brought to the attention of the CFF. The CFF sent me a copy of the first letter they sent to the EPA on this matter. Interestingly enough, they gave credit to US, parents of children with CF on an Internet support group (Cystic-L) for finding and reporting this. So, while I am sad at the rate at which these wheels sometimes spin, to their credit, the CFF was involved as soon as they found out. (That is, as soon as WE told them about it!!!) Lenora ><A >HREF= " <http://www.junkscience.com/news2/goodbugs.htm>http://www.junksci ence.com/news2/goodbugs.htm " ><http://www.junkscience.com/news2/goodbugs. htm>http://www.junkscience.com/news2/goodbugs.htm</A> > >Note the early date on this one! Where has the CFF been, despite cf >patient counter-recommendation? Thank heavens that they have seen some >ray of light! > >n > > ---------- > >[internetShortcut] >URL=<http://www.junkscience.com/news2/goodbugs.htm>http://www.junkscien >ce.com/news2/goodbugs.htm >Modified=F0E49EDD7B68C301F6 > > > Quote Link to comment Share on other sites More sharing options...
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