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In a message dated 4/2/02 5:56:14 PM Pacific Standard Time, mmjw3@...

writes:

<< I hope the group gives back to you as

much as you give to it!!!!!

>>

Oh , you have it all wrong girl, LOL I have received 10 fold what I

have put in. I never would have imagined that there is as many wonderful,

caring, loving people that I could have met in my lifetime. You all mean the

world to me and I should be saying thank you to all of you for letting me

share in your life. sorry it was because of RP, but I think we were put into

each others path so we can maybe find a cure for this cRaP.

hugs

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>

> I forgot, how long have you been on the metho? I went up to 25mg

weekly and

> was on it for a year. I know it takes at least 3 months to fully

kick in.

-

I've been on Metho for about 2 1/2 months, and only on the 17.5 mg.

for about 3 weeks. I have been lowering the prednisone, it's down to

30 mg.

I appreciate hearing about your experience with this. I know it may

take a year, but it gets hard waiting!!!!!

Thanks for your information and words of support!

How are you doing?

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,

Again, thank you! That's great you can get in this week and it

sounds like a great excuse to do some shopping!! Please let us know

what you find out. You're a wonderful key person in this group and I

appreciate everything you do! I hope the group gives back to you as

much as you give to it!!!!!

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In a message dated 4/3/02 6:33:59 AM Pacific Standard Time,

sisterslk@... writes:

<<

Hey, you let us know how your appt goes just as soon

as you can. I'll be praying! Love squeek

===== >>

I will. I plan on leaving tomorrow, so I can be there bright and early for

my appt and home early if they don't run any tests. So I should be back by

Friday nite. I'm sure everything is just fine. Just a normal check on the

old ticker. LOL

Glad to get it over with.

hugs

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--- RCColloran@... wrote:

>

> They changed my appt at Stanford to see the

> cardiologist. Was suppose to be

> in May, but they called today and said it was

> Friday. > hugs

>

>

Hey, you let us know how your appt goes just as soon

as you can. I'll be praying! Love squeek

=====

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