intro & a hot topic - attempt #2

[Guest guest]

Hello Friends,

I'm on the Eastern Shore of land (Hi ) ~ just joined this list

after receiving a diagnosis of CF for my 19 month old son last week. Glad

to find you.

I'm in the throes of renovating a house (divorcing) and had planned to heat

with pellet stoves (these are the stoves that burn compressed sawdust

pellets) ~ shouldn't be any smoke from those but I'm wondering if it might

be too much *dust* for CF lungs? Does anyone have experience with these

stoves, or other suggestions about heating? A ducted system is not an

option for this old house, but an oil furnace might be.

Just the first of many questions, I am sure. We will be off to the CF

clinic at Hopkins next week.

Thank you,

in land

Mama to Emma (7 no cf ~ I think ~ not tested yet) and Atticus (19 months

with cf)

[Guest guest]

I am not familiar with those stoves, but I would have that as a priority at

clinic visit. they even might have to ask around. I have electric, as does

my daughter , so that wasn't a problem. I do know that folks will be

answering you with most all of your questions

Best wishes,

love & hugs,

GrandmomBEV

intro & a " hot " topic - attempt #2

Hello Friends,

I'm on the Eastern Shore of land (Hi ) ~ just joined this list

after receiving a diagnosis of CF for my 19 month old son last week. Glad

to find you.

I'm in the throes of renovating a house (divorcing) and had planned to heat

with pellet stoves (these are the stoves that burn compressed sawdust

pellets) ~ shouldn't be any smoke from those but I'm wondering if it might

be too much *dust* for CF lungs? Does anyone have experience with these

stoves, or other suggestions about heating? A ducted system is not an

option for this old house, but an oil furnace might be.

Just the first of many questions, I am sure. We will be off to the CF

clinic at Hopkins next week.

Thank you,

in land

Mama to Emma (7 no cf ~ I think ~ not tested yet) and Atticus (19 months

with cf)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hi ,

I am sorry to hear of your son's CF diagnosis. I was very

overwhelmed right after finding out my son had CF. Someone sent me

a poem called Welcome to Holland that really helped. I will try to

find it for you.

I have no idea about the stoves, but I just wanted to say

Welcome to the list!

Sara - Mommy to Zach 17 months tomorrow!

> Hello Friends,

>

> I'm on the Eastern Shore of land (Hi ) ~ just joined

this list

> after receiving a diagnosis of CF for my 19 month old son last

week. Glad

> to find you.

>

> I'm in the throes of renovating a house (divorcing) and had

planned to heat

> with pellet stoves (these are the stoves that burn compressed

sawdust

> pellets) ~ shouldn't be any smoke from those but I'm wondering if

it might

> be too much *dust* for CF lungs? Does anyone have experience with

these

> stoves, or other suggestions about heating? A ducted system is

not an

> option for this old house, but an oil furnace might be.

>

> Just the first of many questions, I am sure. We will be off to

the CF

> clinic at Hopkins next week.

>

> Thank you,

> in land

> Mama to Emma (7 no cf ~ I think ~ not tested yet) and Atticus (19

months

> with cf)

[Guest guest]

Hi! Having lived in Oregon, briefly with a pellet stove, my own purely

individual recommendation would be: ditch it; use electricity and save

on hospitalizations. They advertise themselves as emission-free--they

are just only about half as nasty as wood stoves, in my genuinely biased

opinion.

Former Oregonian!

n Rojas, wcf, wishing you good luck!

[Guest guest]

>

> I'm in the throes of renovating a house (divorcing) and had

planned to heat

> with pellet stoves (these are the stoves that burn compressed

sawdust

> pellets) ~ shouldn't be any smoke from those but I'm wondering if

it might

> be too much *dust* for CF lungs? Does anyone have experience with

these

> stoves, or other suggestions about heating?

I don't know if it will make a difference but we have a wood stove.

Every time we started it up in the winter (we have electric heat

eek) my son would get an ear infection. We haven't used ours in 5

years.

jan

[Guest guest]

I do not have CF. I may be a carrier, since my grand daughter has

CF. I have chronic sinusitis. My parents have wood heat and it

completely clogs my sinusis's. I can't breath and it gives me a

terrific headache.

Gale

>

> >

> > I'm in the throes of renovating a house (divorcing) and had

> planned to heat

> > with pellet stoves (these are the stoves that burn compressed

> sawdust

> > pellets) ~ shouldn't be any smoke from those but I'm wondering if

> it might

> > be too much *dust* for CF lungs? Does anyone have experience

with

> these

> > stoves, or other suggestions about heating?

>

> I don't know if it will make a difference but we have a wood

stove.

> Every time we started it up in the winter (we have electric heat

> eek) my son would get an ear infection. We haven't used ours in 5

> years.

>

> jan

[Guest guest]

> I do not have CF. I may be a carrier, since my grand daughter has

> CF. I have chronic sinusitis. My parents have wood heat and it

> completely clogs my sinusis's. I can't breath and it gives me a

> terrific headache.

>

>

Gale how do you know you do not have CF? My son has chronic

sinusitis with nasal polyps and sweat values were all in

indeterminate range. It wasn't until they did the Ambry test they

found the second mutation. Perhaps you should have a genetic test

done. I did find several papers though that discussed carriers

having more sinusitis than the normal population so you could be

right.

jan

[Guest guest]

Jan,

I don't think that I have CF, because I'm fat. I think that I am

just a carrier.

Gale

> > I do not have CF. I may be a carrier, since my grand daughter

has

> > CF. I have chronic sinusitis. My parents have wood heat and it

> > completely clogs my sinusis's. I can't breath and it gives me a

> > terrific headache.

> >

> >

> Gale how do you know you do not have CF? My son has chronic

> sinusitis with nasal polyps and sweat values were all in

> indeterminate range. It wasn't until they did the Ambry test they

> found the second mutation. Perhaps you should have a genetic test

> done. I did find several papers though that discussed carriers

> having more sinusitis than the normal population so you could be

> right.

>

> jan

[Guest guest]

,

So glad to hear of a local list member. What part of the eastern shore. My

daughter went to hopkins, but now goes to AI Dupont - We love it!. If

there's anything, even just to talk I'm at mjg@... just write. And

welcome.

G

mom of Sam 14 w/cf

mom of matty 10, bobby 7 no CF

intro & a " hot " topic - attempt #2

> Hello Friends,

>

> I'm on the Eastern Shore of land (Hi ) ~ just joined this

list

> after receiving a diagnosis of CF for my 19 month old son last week. Glad

> to find you.

>

> I'm in the throes of renovating a house (divorcing) and had planned to

heat

> with pellet stoves (these are the stoves that burn compressed sawdust

> pellets) ~ shouldn't be any smoke from those but I'm wondering if it might

> be too much *dust* for CF lungs? Does anyone have experience with these

> stoves, or other suggestions about heating? A ducted system is not an

> option for this old house, but an oil furnace might be.

>

> Just the first of many questions, I am sure. We will be off to the CF

> clinic at Hopkins next week.

>

> Thank you,

> in land

> Mama to Emma (7 no cf ~ I think ~ not tested yet) and Atticus (19 months

> with cf)

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>