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Fliss

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I got an 11 pound beef roast for the kids. (23, 24 & one's husband) I think

it'll be a nice change from turkey and ham. Tender as a baby's butt!

You and yours have a great one, Heidi!

Jerry/NC

*************************************

Fliss

> > I'm doing my final main course thinking, too.

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  • 1 month later...

I have plenty of meds for the pain, I just hate my mind being so

muddy. I worry though, I dont know if the pain is indicative of

more damage. I will need 3000islet cells per kg. That is a lot of

cells. I looked to see if I could find something about stimulating

these and such, but found nothing. I guess the science of

understanding pancreatitis is still in the infancy stage. I am

absolutely terrified about going acute.

The peg tube is pretty much in place. There is a large balloon type

device that hold it into my stomach. There are 2 ports, one to the

gastic (stomach) then the other goes all the way past the pance to

the jejunum. I get my feedings in the 2nd port so it bypasses the

panc all together. I still take in food by mouth. Not a whole lot

because it does increase the panc pain and the balloon in my stomach

takes up a lot of space. You would think I would be skinny as a

rail by now.. Nope. I wouldn't mind getting back to my pre-marriage

weight of 40 pounds lighter, but that was 20 some odd years ago.

I would have liked to have seen that show on discovery about tp.

Maybe it will air again.

Fliss, I am so sorry that your pain is coming back. YOu did have a

wonderful pain free holiday though. That was a gift from God.

Please hold off as long as possible before you even consider

surgery. That freedom of choice was not available to me and , of

course, just knowing that is in itself a stressor. When you make

your decision you will know that it is the right decision to make

and you will go through life with that certainty. A luxury I will

not know. I wish I knew what triggers attacks. One day I could eat

a boiled and the next day it would throw me over. That is what is

so frustrating, there is no black or white, its all just grey and

clouded.

I prayed for you Fliss, that this long good spell will return for

you. Please take care and give Jim mt best. Oh btw, did ya'll get

any photos all gussied up. I would love to see it.

Chrissy

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  • 4 weeks later...
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I must have missed this post. My left elbow has been hurting something

awful lately. Does it mean something and is it connected with CP?

Sandy/California

wrote:

>Looking back over some post, Isaw that you had asked if any body had

>joint pain. My left elbow bothers me quite often. I had thought I

>banged it or something, but dont recall having done so and it

>doesn't seem to want to heal. I guessed it was my achilles elbow.

>

>This afternoon 2 of my oldest girlfriends took the long ride up to

>see me. We sat in the yard and talked and laughed and I filled

>them in. I even had some very good cake to share. It was such a

>nice day out too. We have been friends since we were 12 or so and

>the first thing they wanted to see was the peg tube in my belly.

>How's that for a funny pair. There was a gang of 7 of us and most

>of us still live in the near vacinity of one and other. We had all

>gotten together last sept. and dont see each other all that often.

>Even though we may go months with out talking when we do get

>together we can finish each other's sentences and know exactly what

>the other feels. These are my true sisters with unconditional love

>and genuine concern. And they couldn't care less that I had dishes

>in my sink and laundry in the baskets. And they loved my cake!!

>What a wonderful day i had today! I just had to tell some one.

>Chrissy

>

>

>

>

>

>

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I know that my doc truly want what will be the best for me. I was

suprised by the other guy's opinion. I wonder what is the cut off

mark for how sick or well one's pancrease should be. Let the damage

go on too long and risk no islets suriving at all. I wonder where

is that line in the sand is; that once crossed; life as you know it

now changed forever. I think that line in the sand likes to take a

meandering path in my life.

I'll be ok Fliss, I see my doc on wednesday and we will talk. He

mentioned the whipple on the phone and I said no. I dont want a

whipple.

I need to do something, I am way too young to be sitting around all

mopey.

Chrissy

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