Off the Imuran

[Guest guest]

Hi All

Well think I told you my Rheumy took me off the Imuran. That was

the trick...all the side effects have stopped thank goodness and am

able to eat finaly and not have it go right through me. Looked up

all the adverse effects of the medication and dang if I didn't have

over half of them. I guess this is what I am to expect with other

medication he may try on me.

Boy, never thought I would have ever been like this. When I was

younger I was very healthy and active. Skinny too and a damn good

looking gal.

I was wondering if any of you other than the several I have talked

to have ever been exposed to any chemicals? One of my theroys to RP

has to do with the possible multi chemical insults to our bodys.

Let me know if any of you have or think they have been exposed to

any chemicals.

I know that my friend Kathy and me have something in common and that

both of us have been exposed to multi chemicals. Strange that two

people would have a lot of the same problems like many of us women

who had silicone implants would be experiencing these health

problems.

Don't care what the news media or other so-called studies have said

about it. Most of those studies were either funded by the

manufactures or were don't on women who only had implants for a

short number of years. People like me who had them for over 20

years seem to be the worse off. For a long time I didn't think they

had anything to do with my health problems, but now you couldn't

convince me they don't.

Just like going to the doctors who know nothing about RP many

doctors will tell you it's all in your mind. Boy, are they wrong

now. Am going to make it a point to see one of them that told me 10

years ago I had nothing to worry about...it was all in my mind.

Wonder what he would say today?

I'm all for sending out that information to doctors here in my area

about RP.

I've made arrangement for a new primary doctor who takes my current

health insurance as well as the health insurance I will be covered

under my husband. Hopefully this will make it easier when I drop

the insurance from my work because I will at least be able to get

most or all of my medication free. It has become so expensive that

I would not be able to afford to get it now that I know there is

this trial and error on the medication to treat the RP.

Am due to see my Rheumy on the 20th. Will keep you all informed to

what he says and what meds he puts me on.

I really feel bad for those of you who are really suffering with

this RP. After the past couple of weeks I can only imagine how bad

some of you feel.

Thank goodness the group here is so understanding. I feel right at

home here and hope to grow closer to all of you.

Oh, ...sent my membership out today. Let me know when you

get it. Sent a little extra too and will try and send some money on

a monthly basis. I really want to help as much as I can.

Hugs to all

Sharyn