Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi Jill; My docs had mentioned calciium channel blockers, like nitro, because it is a smoothe muscle relaxer. They said also that it would relax the sphincer of oddi and reduce the pain of spasms. I didn't spend a lot of time looking into it and wasn't very comfortable with it. I had tried antidipressants and didn't like the way I felt but they did help reduce the pain from spasms. From what I had learned though, the calcium channel blockers do help some. I guess that wasn't much help, just what I had experienced, Goof luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Jill , I have tried the Nito for my SOD. All it did was give me a raging headache. I do use Levsin .125 mg under the tongue when I have a spasm. It works really well . Not a cure nor does ot take the pain completely away, but if I catch it in time it is greater than 80 % effective. Have you ever tried that ? Lily from Ohio nitroglycerine? Hi, all I went to see a specialist, in Boston, on Wednesday, the 11th. I have mixed feelings about it and it was topped off by a hospital evacuation for what I think was a fire drill, just as my appointment was winding down. That, unfortunately, finished it off. Anyway, after the exam we chatted a bit. One of his thoughts was that a sphincter is going into spasm (which my own doctor has thought in the past). His recommendation was 2-fold. He said I should have an ERCP (last one was many yrs ago) and have an EUS, which I've never had. But, before going through any testing he suggested trying nitroglycerin. The thought being that it would relax the sphincter and therefore there should be no more pain. I never heard of nitro used this way before. Has anyone else? He said if the nitro works he wouldn't do the testing. I will, naturally, discuss this with my own doctor in a few weeks and by that time he should have a letter from the consult. I don't really like the idea of nitro. Apparen! tly, he's used it successfully. I plan to do some research. This doctor also seemed to indicate that since no damage has been visible on scans that that even tho I have pain 24/7 and elevated amylase, that I have recurrent acute pancreatitis and not chronic. I guess I'm only chronic in symptoms. I broached the subject of my mutated cystic fibrosis gene but we never had the chance to really pursue the subject before the fire alarm went off. I've found his email address so I've drafted an email to him to get that issue addressed along with a couple of others. I'd be interested to hear if anyone has used or knows of anyone that has used nitroglycerine for sphincter spasms. Be well, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 and Jill, I tried the calcium channel blockers as well,,, no luck with them. I have not tried the anti depressant route yet. So far the Levsin helps. But I also take that Clidinuim every 6 hours. That is my life saver. Lily Re: nitroglycerine? Hi Jill; My docs had mentioned calciium channel blockers, like nitro, because it is a smoothe muscle relaxer. They said also that it would relax the sphincer of oddi and reduce the pain of spasms. I didn't spend a lot of time looking into it and wasn't very comfortable with it. I had tried antidipressants and didn't like the way I felt but they did help reduce the pain from spasms. From what I had learned though, the calcium channel blockers do help some. I guess that wasn't much help, just what I had experienced, Goof luck, ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 I don't know much about CP but when I was in the ER with an attack a few months back the doctor ordered Nitroglycerin hoping it would relax the ducts and stop some of the pain but it didn't work. He said on some people it does have a positive affect------they must be the lucky ones. > Hi, all > > I went to see a specialist, in Boston, on Wednesday, the 11th. I have mixed feelings about it and it was topped off by a hospital evacuation for what I think was a fire drill, just as my appointment was winding down. That, unfortunately, finished it off. Anyway, after the exam we chatted a bit. One of his thoughts was that a sphincter is going into spasm (which my own doctor has thought in the past). His recommendation was 2-fold. He said I should have an ERCP (last one was many yrs ago) and have an EUS, which I've never had. But, before going through any testing he suggested trying nitroglycerin. The thought being that it would relax the sphincter and therefore there should be no more pain. I never heard of nitro used this way before. Has anyone else? He said if the nitro works he wouldn't do the testing. I will, naturally, discuss this with my own doctor in a few weeks and by that time he should have a letter from the consult. I don't really like the idea of nitro. Apparently, he's used it successfully. I plan to do some research. > > This doctor also seemed to indicate that since no damage has been visible on scans that that even tho I have pain 24/7 and elevated amylase, that I have recurrent acute pancreatitis and not chronic. I guess I'm only chronic in symptoms. > > I broached the subject of my mutated cystic fibrosis gene but we never had the chance to really pursue the subject before the fire alarm went off. I've found his email address so I've drafted an email to him to get that issue addressed along with a couple of others. > > I'd be interested to hear if anyone has used or knows of anyone that has used nitroglycerine for sphincter spasms. > > Be well, > Jill > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Thanks to those that responded to my post about the nitro. I will respond in a few days but did want to say to Lily that one of my main concerns was headache since I get 3 day migraines almost every week. I don't really want to add to that. I'm glad you mentioned the headaches. I asked about side-effects (when I cornered him outside during the fire drill) and that's the only one he mentioned but didn't make a big deal of it. It's a big deal to me. Be well, all Jill Re: nitroglycerine? Jill , I have tried the Nito for my SOD. All it did was give me a raging headache. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Jill, Heck you don't need to add insult to injury ! Migraines hurt. Take Care, Lily from Ohio Re: nitroglycerine? Jill , I have tried the Nito for my SOD. All it did was give me a raging headache. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Thanks, Lily. I appreciate your input. I think I'll most likely turn down that option. Yes, migraines hurt! Will let you know after my appointment in a couple of weeks. I've been away since Monday morning and just got back. I went to visit my sister and family in NJ. Be well, Jill Re: nitroglycerine? Jill, Heck you don't need to add insult to injury ! Migraines hurt. Take Care, Lily from Ohio ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
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