Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Welcome to the list. Your daughter is indeed a fighter. I hope you will enjoy this list as much as I have. The information and support are beyond compare. Dawn mom of 4, 7 and under, the youngest wcf hello... Okay, let me introduce myself. My name is Remington. We live in Broken Arrow, OK. I have been married to my great husband, Danny, 20 yrs. now We have 3 kids. Danny Ray w/o CF is 19 yrs. and plans to go to Bible School this fall. Miranda w/o CF is 15 yrs. She plays the flute and will be a sophomore in high school. Now, Savannah w/ CF is 10 yrs. She is a fighter for sure. She had 4 sweat test that came back negative. Finally a DNA test was ordered and shower 1 classified mutation and 1 non classified. Savannah had enough clinical symptoms that CF was diagnosed at 2 1/2 yrs. She has been in the hospital 36 times. Has had her port-a-cath replaced 4 times. She has worn out the others by being accessed a lot. She has had sinus surgery and continues having sinus problems. It would take a while to list all her meds, so I'll skip that part. She also continues to struggle w/ her weight. Savannah sees the doctor every 3 weeks now. Savannah has chronic inflammation that keeps her down Also MRSA. She hasn't been able to go to school to much but goes as much as she can talk the doctor into letting her. Most of the time 4 hrs. is about her limit. Well, that's my intro. I look forward to getting to know everyone. Feel free to contact me at any time. Take Care- Remington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 , Thanks for the welcome. Broken Arrow is just south of Tulsa. Also I spent the 1st 10yrs. of my life in Huntington Beach, Calif. Like I said I look forward to getting to know other CF parents. Take Care- Remington Mom w/ 2 w/o CF and Savannah w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Welcome , My inlaws are from Tulsa. I am from Arlington Texas but I don't know where Broken Arrow is. I know where Oklahoma is . My name is and I have 2 kids, Nick is 21 w/nocf, he will be a Senior at Cal Poly Pomona in the fall. is 19, has cf, and is going to Fullerton College (community college). She lives at home here in Placentia which is in North Orange County CA. is doing well, this is a great list and we are always happy to have new peeps. love, M Quote Link to comment Share on other sites More sharing options...
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