Re: really confused

[Guest guest]

hi

i think you are actually doing really well, it sounds like hes

having all the right things at the mo, carb cravings are pretty

normal at this stage anyway as the gut bugs die back they really

kick in. Overgrowth of bad bacteria and its subsequent die off can

make some kids pretty foul - it certainly does mine - my usually

placid angelic asd child becomes something of the opposite on die

off/overgrowth, and goes out of his way to bait, be rude, and pretty

damn nasty which is so out of character.

chemicals - i think they will be something that will pass as time

goes on - there are certain chemicals that get me very high - paint

and petrol being the worst - i cant fill the car because the aroma

sends me scatty. in hoping that as my immune system heals that these

will reduce.

elaine said it was okay to introduce honey at about 75% less than

instructed in recipies - im quite happy with two dreadfully yeasty

children to give them the honey since they formed healthy stools -

which was day 5 for us, and the stools have remained consistently

good. i drip small amounts on fruit, in jelly, in sausages, not

massive amounts but a little just to add some sweetness -

we personally introduced yogurt before the intro, but at 1/4tsp, it

may worth a consideration to introduce it at a small amount everyday

as it will certainly help to mop up the yeast if there is any. we

are now up to 3/4 tsp and we are 6 days from intro now, and are

eating all stage 1 foods save banana where the amines are an issue,

with success, which for us i think is primarily due to the yogurt,

this is our 2nd attempt and on our first we didnt use the yogurt

till much later, and they werent doing as well as they are now as

they did at the same time then.

dont know about coconut or the homeopathy ( we use the pillules),

sorry.

hth in some small way

emma kai 8 asd dpx fian 3 behaviourally recovered scd 2nd time

round 8 days

>

> Jack's behaviour has been up & down - is this normal. Last night

he

> was high as a kite-got into a chemical glue in the shed- & did a

> mushy poo in his nappy when he went to bed-deliberately just to

bug

> me-he is very manipulative. The poo smelt foul like a sick one, is

> this part of die off. He is also very chemically sensitive-he

> obsesses about drawing with a pen on newsprint for hours & appears

> high afterwards-we have stopped access to these things as much as

> possible, just wondering if other kids have the same probs & how

> others deal with the issue of chemicals.

> I can't tell for sure if he is reacting to a food or not, so I try

> him on bananas & heis behavior is rollercoastering so I take them

> out, then I try something else & the same thing-how do I know. I

> have stopped all supps (except melatonin & scd legal colostrum)

from

> our DAN man for a while but what about homeopathics- these are

> liquids in a alcohol base-is this ok. Also Jack always wants honey-

> I don't know what to do I allow a small amount/day in icecream. We

> did intro & gave him no honey till day3 was this to soon. At the

> moment I am so afraid to feed him. Should I start yogurt to help

> heal his gut or leave well alone for a while,no supps have made

any

> difference after 9 months-I feel his gut just doesn't absorb much

of

> anything.

> He likes to eat lots of organic meats, organic eggs & I give him

> organic carrot & pear juice (2cups/day) & sneak in as much as I

can

> in meats or omelettes. He also has pureed pear, dairy free icecream

> (just eggs & honey & coconut oil). Can fermented coconut milk be

> introduced yet- I didn;t see coconuts on the list of foods &

stages.

>

[Guest guest]

Sorry to have to ask you for more information. It sounds like Jack has not been

on the diet long, but can you please remind me of when he started? It's best,

when asking questions like this, to sign you post with exactly how long on SCD

and for what diagnosis. Really hard for the moderators to remember each and

every kid with as many as are on this list.

If he has not been on the diet long, you are not necessarily going to see all

positive changes right off the bat. From the way you describe him reacting to so

many things... foods, chemicals, etc... it sounds like you have a seriously

leaky gut there. It will take time to heal.

Healing the gut will lead to a stonger barrier against the sensitivities... and

(I am guessing/assuming) even the attraction to the toxic stuff. For a while,

you may have to purge his environment of access to the felt pens and newsprint.

I know... this would be hard... but maybe everyone in the household could read

the newspaper online for a while? You could make it a family project to clear

out all the toxics and go for a " green " home. I'm sure there's thousands of

resources on the net... but here are a couple of book titles I came up with in a

30 second search:

Better Basics for the Home : Simple Solutions for Less Toxic Living, by Annie

Berthold-Bond

The Naturally Clean Home: 101 Safe and Easy Herbal Formulas for Non-Toxic

Cleansers, by Karyn Siegel-Maier

So... yes, for new SCD kids, ups and downs in terms of behavior AND in terms of

poop consistancy is quite normal.

Yes, the foul-smelling, mushy poo could be part of die-off. With behavioral ups

and downs at the same time, then yes... that could be part of die-off.

It's interesting that some of his behavioral stuff right now might happen

regardless of whether you left bananas in (for example) or not. Hard to know.

Are you absolutely sure that he does well on the melatonin? I'm sure you must

be... I'm just curious because I personally am a lifelong insomniac... and I

tried it at one point. It had the reverse effect on me and I was so shocked! I

then read up and found out that about 5% of all people have this effect. It made

me more " wired " than ever! So disappointing. I really wonder about the safety of

melatonin myself... beyond my own experience... just because it is a brain

hormone.

I have also since learned that you must sleep in an absolutely dark room in

order to make your own melatonin... so if your kids are hooked on a nightlight,

they may not be able to sleep as well... as deeply or as uninterupted as they

otherwise might. I read that a good compromise is to sneak in after the child is

asleep and turn the nightlight (or hall light) off.... maybe giving them a

flashlight or other light that automatically dims and turns itself off. OK....

getting way, WAY off topic here.

The homeopathics... alcohol is not ideal. Are you sure he really needs these

remedies at the moment? Could they be put on hold for a month or so? You could

put the drops in a bit of warm water and stir until the alcohol has evaporated.

I know it may not seem like much alcohol, but you never know.

I don't know if 3 days was " too soon " for introducing honey. Each child is

different... but I am always wary of any food a child craves excessively. Are

you absolutely sure that the honey you're using is completely 100% pure honey?

No hidden corn syrup or anything else?

I would definitely try to introduce a very small amount of SCD yogurt.... OR a

legal acidophilus supplement. You really must re-populate the gut with " good

guys " . Yogurt has other healing qualities, but start SMALL.

Are you making your own pear juice? There is no legal commercial pear juice that

I know of. Seems like he might be getting a lot of pear... in the form of the

pureed pear sauce plus pear juice.

Fermented coconut milk.... ummmm.... do you mean that which you would make

yourself? I am not sure about this. How would the fermentation be done? This is

suspect. Tell me more.

Patti, mom to Katera

really confused

Jack's behaviour has been up & down - is this normal. Last night he

was high as a kite-got into a chemical glue in the shed- & did a

mushy poo in his nappy when he went to bed-deliberately just to bug

me-he is very manipulative. The poo smelt foul like a sick one, is

this part of die off. He is also very chemically sensitive-he

obsesses about drawing with a pen on newsprint for hours & appears

high afterwards-we have stopped access to these things as much as

possible, just wondering if other kids have the same probs & how

others deal with the issue of chemicals.

I can't tell for sure if he is reacting to a food or not, so I try

him on bananas & heis behavior is rollercoastering so I take them

out, then I try something else & the same thing-how do I know. I

have stopped all supps (except melatonin & scd legal colostrum)from

our DAN man for a while but what about homeopathics- these are

liquids in a alcohol base-is this ok. Also Jack always wants honey-

I don't know what to do I allow a small amount/day in icecream. We

did intro & gave him no honey till day3 was this to soon. At the

moment I am so afraid to feed him. Should I start yogurt to help

heal his gut or leave well alone for a while,no supps have made any

difference after 9 months-I feel his gut just doesn't absorb much of

anything.

He likes to eat lots of organic meats, organic eggs & I give him

organic carrot & pear juice (2cups/day) & sneak in as much as I can

in meats or omelettes. He also has pureed pear, dairy free icecream

(just eggs & honey & coconut oil). Can fermented coconut milk be

introduced yet- I didn;t see coconuts on the list of foods & stages.

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

[Guest guest]

>

> Sorry to have to ask you for more information. It sounds like Jack

has not been on the diet long, but can you please remind me of when

he started? It's best, when asking questions like this, to sign you

post with exactly how long on SCD and for what diagnosis. Really

hard for the moderators to remember each and every kid with as many

as are on this list.

> Sorry, I thought I had put jack asd & day 13 on my post, the

first 1 I tried to send I accidently deleted so woops & soory again.

> If he has not been on the diet long, you are not necessarily going

to see all positive changes right off the bat. From the way you

describe him reacting to so many things... foods, chemicals, etc...

it sounds like you have a seriously leaky gut there. It will take

time to heal.

> We have done extensive testing on Jacks gut, he came back with

yeast + & a few other bacteria such as Klebsiella, however I was

suprised he didn't have clostridia as he has many traits, such as

sensitivity to light & noise, stiffening. I have known for a long

time Jacks gut was the key, but so far no diet has made any long

term positive effect.

> Healing the gut will lead to a stonger barrier against the

sensitivities... and (I am guessing/assuming) even the attraction to

the toxic stuff. For a while, you may have to purge his environment

of access to the felt pens and newsprint.

> We have made major changes in our life, no chemical cleaners,

perfumes, chemical free shampoos,soaps, loo paper, organic clothes,

bedding, food. We are moving soon into a new house & plan to use a

paint that is approved by the multiple chemical sensitivities group

to seal off any off gasing from the paints already in the house.

> I know... this would be hard... but maybe everyone in the

household could read the newspaper online for a while? You could

make it a family project to clear out all the toxics and go for

a " green " home. I'm sure there's thousands of resources on the

net... but here are a couple of book titles I came up with in a 30

second search:

>

> Better Basics for the Home : Simple Solutions for Less Toxic

Living, by Annie Berthold-Bond

> The Naturally Clean Home: 101 Safe and Easy Herbal Formulas for

Non-Toxic Cleansers, by Karyn Siegel-Maier

>

> So... yes, for new SCD kids, ups and downs in terms of behavior

AND in terms of poop consistancy is quite normal.

>

> Yes, the foul-smelling, mushy poo could be part of die-off. With

behavioral ups and downs at the same time, then yes... that could be

part of die-off.

>I know you must hate these soughts of qu's but when do you start to

see some steady improvement without such steep rollercoastering.

> It's interesting that some of his behavioral stuff right now might

happen regardless of whether you left bananas in (for example) or

not. Hard to know.

>

> Are you absolutely sure that he does well on the melatonin? I'm

sure you must be... I'm just curious because I personally am a

lifelong insomniac... and I tried it at one point. It had the

reverse effect on me and I was so shocked! I then read up and found

out that about 5% of all people have this effect. It made me

more " wired " than ever! So disappointing. I really wonder about the

safety of melatonin myself... beyond my own experience... just

because it is a brain hormone.

>Without melatonin Jack won't go to sleep for 3-4hrs with it he is

usually asleep in 30 mins to 1hr. I am aware it may not be a good

thing long term but was hoping that as we progress we might be able

to reduce or stop it altogether.

> I have also since learned that you must sleep in an absolutely

dark room in order to make your own melatonin... so if your kids are

hooked on a nightlight, they may not be able to sleep as well... as

deeply or as uninterupted as they otherwise might. I read that a

good compromise is to sneak in after the child is asleep and turn

the nightlight (or hall light) off.... maybe giving them a

flashlight or other light that automatically dims and turns itself

off. OK.... getting way, WAY off topic here.

>

> The homeopathics... alcohol is not ideal. Are you sure he really

needs these remedies at the moment? Could they be put on hold for a

month or so? You could put the drops in a bit of warm water and stir

until the alcohol has evaporated. I know it may not seem like much

alcohol, but you never know.

>I really don't know about this, his homeopath wants to do a MMR

reversal or drainage homeopathically. She said it was a powerful

detoxing tool that is safe & effective, but will have major adverse

behavioural effects whilst it is working. At this stage I don't know

if it is needed, many have sworn homeopathics have helped, Jack

doesn't seem to have responded to anything yet.

> I don't know if 3 days was " too soon " for introducing honey. Each

child is different... but I am always wary of any food a child

craves excessively. Are you absolutely sure that the honey you're

using is completely 100% pure honey? No hidden corn syrup or

anything else?

>It is Elixir pure raw honey, may contain some pollen,beeswax &

propolis. No heating or antibiotics used.

> I would definitely try to introduce a very small amount of SCD

yogurt.... OR a legal acidophilus supplement. You really must re-

populate the gut with " good guys " . Yogurt has other healing

qualities, but start SMALL.

>Is the acidophilus supps as effective as yogurt or am I better

using 1/4 tsp day of yogurt.

> Are you making your own pear juice? There is no legal commercial

pear juice that I know of. Seems like he might be getting a lot of

pear... in the form of the pureed pear sauce plus pear juice.

>Yes I make my own pear juice. I thought that quantities were not

limited on this, I thought this was said somewhere in the intro

phase of the diet. however I have not let Jack have more than 3

pears a day- is this too much?

> Fermented coconut milk.... ummmm.... do you mean that which you

would make yourself? I am not sure about this. How would the

fermentation be done? This is suspect. Tell me more.

>I heard of kefir & coc milk it ferments it & makes it easier on the

gut, also it has anti-viral,fungal & bacterial properties.

Is using coc oil ok then I have been using this a lot since I ran

out of ghee.

> Patti, mom to Katera

> Alison, mum to Jack, asd,scd day 14

>

>

> really confused

>

>

> Jack's behaviour has been up & down - is this normal. Last night

he

> was high as a kite-got into a chemical glue in the shed- & did a

> mushy poo in his nappy when he went to bed-deliberately just to

bug

> me-he is very manipulative. The poo smelt foul like a sick one,

is

> this part of die off. He is also very chemically sensitive-he

> obsesses about drawing with a pen on newsprint for hours &

appears

> high afterwards-we have stopped access to these things as much

as

> possible, just wondering if other kids have the same probs & how

> others deal with the issue of chemicals.

> I can't tell for sure if he is reacting to a food or not, so I

try

> him on bananas & heis behavior is rollercoastering so I take

them

> out, then I try something else & the same thing-how do I know. I

> have stopped all supps (except melatonin & scd legal colostrum)

from

> our DAN man for a while but what about homeopathics- these are

> liquids in a alcohol base-is this ok. Also Jack always wants

honey-

> I don't know what to do I allow a small amount/day in icecream.

We

> did intro & gave him no honey till day3 was this to soon. At the

> moment I am so afraid to feed him. Should I start yogurt to help

> heal his gut or leave well alone for a while,no supps have made

any

> difference after 9 months-I feel his gut just doesn't absorb

much of

> anything.

> He likes to eat lots of organic meats, organic eggs & I give him

> organic carrot & pear juice (2cups/day) & sneak in as much as I

can

> in meats or omelettes. He also has pureed pear, dairy free

icecream

> (just eggs & honey & coconut oil). Can fermented coconut milk be

> introduced yet- I didn;t see coconuts on the list of foods &

stages.

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read

the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read

the following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>